Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Daft questions!!


Shelley2

Recommended Posts

Shelley2 Newbie

Hi, I'm mum to 2 girls who have both recently been diagnosed with Coeliac disease. My daft question for today is are farm trips now a no go? The reason I ask is we spent the day on a farm yesterday & the girls played in the hay barn, rolled around on the straw & we went on a tractor ride. This morning they woke up rather unhappy, have been complaining of tummy aches & been off their food all day. Is this a result of yesterday or something else? Any help greatly appreciated x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced
48 minutes ago, Shelley2 said:

Hi, I'm mum to 2 girls who have both recently been diagnosed with Coeliac disease. My daft question for today is are farm trips now a no go? The reason I ask is we spent the day on a farm yesterday & the girls played in the hay barn, rolled around on the straw & we went on a tractor ride. This morning they woke up rather unhappy, have been complaining of tummy aches & been off their food all day. Is this a result of yesterday or something else? Any help greatly appreciated x

Welcome to the forum!

not a daft question at all. I think straw is what you have after the wheat grains have been harvested... I think. Someone please correct me if I'm wrong. But of course I'm sure some of the grains could remain. It's bound to not be perfect. So I imagine rolling around in it and sitting on it is not necessarily going to get it in your mouth, but it might could. And especially it's all over your hands and you can put your fingers in your mouth, or touch your food without washing your hands. It's also then all over your clothing and you can touch those and get it in your mouth in the same way. 

I would imagine depending on the age of your children you could make sure everyone washes their hands really well while leaving the farm and taking a quick shower or bath once you get home and change into fresh clothes. But then that doesn't guarantee them not putting their fingers in their mouth when you are still at the farm, in the thick of things.

sounds like they are very sensitive so it might just be a good idea to stay away from the farm outings for now. But please, wait to see what others have to say. I might be totally wrong on this.

snuggle your children extra much!

cyclinglady Grand Master

Okay, I just have a veggie garden, so I am not a farmer.  I did a quick search and found this blog.  I know, a blog, but at least the blogger lives on a farm.  

Open Original Shared Link

Oh....an actual study that kind of supports this....

Open Original Shared Link

Let's face it.  Who is going to fund a study concerning the safety of celiacs when exposed to feed or straw.  

You do have to swallow gluten for a reaction to occur.  But that can be from unwashed hands and breathing in gluten and swallowing it.  

I hope they  recover fast!  

 

Shelley2 Newbie
6 minutes ago, cyclinglady said:

Okay, I just have a veggie garden, so I am not a farmer.  I did a quick search and found this blog.  I know, a blog, but at least the blogger lives on a farm.  

Open Original Shared Link

Oh....an actual study that kind of supports this....

Open Original Shared Link

Let's face it.  Who is going to fund a study concerning the safety of celiacs when exposed to feed or straw.  

You do have to swallow gluten for a reaction to occur.  But that can be from unwashed hands and breathing in gluten and swallowing it.  

I hope they  recover fast!  

 

Wow thanks for that, the study makes for interesting reading & even mentions holy communion wafers! Something I hadn't even thought of & my eldest won't be impressed when she takes her first holy communion next year, not sure how we'll get round that 1!!! It's all a massive learning curve but the info on here is invaluable, thanks again x

Shelley2 Newbie
50 minutes ago, Victoria1234 said:

Welcome to the forum!

not a daft question at all. I think straw is what you have after the wheat grains have been harvested... I think. Someone please correct me if I'm wrong. But of course I'm sure some of the grains could remain. It's bound to not be perfect. So I imagine rolling around in it and sitting on it is not necessarily going to get it in your mouth, but it might could. And especially it's all over your hands and you can put your fingers in your mouth, or touch your food without washing your hands. It's also then all over your clothing and you can touch those and get it in your mouth in the same way. 

I would imagine depending on the age of your children you could make sure everyone washes their hands really well while leaving the farm and taking a quick shower or bath once you get home and change into fresh clothes. But then that doesn't guarantee them not putting their fingers in their mouth when you are still at the farm, in the thick of things.

sounds like they are very sensitive so it might just be a good idea to stay away from the farm outings for now. But please, wait to see what others have to say. I might be totally wrong on this.

snuggle your children extra much!

Thanks for your reply, I made sure they washed their hands thoroughly & repeatedly while we were there but thinking back the hay barn was quite dusty while they were climbing all over the bales & in & out of tunnels. I think it's definitely something we need to avoid for now!

kareng Grand Master
6 minutes ago, Shelley2 said:

Wow thanks for that, the study makes for interesting reading & even mentions holy communion wafers! Something I hadn't even thought of & my eldest won't be impressed when she takes her first holy communion next year, not sure how we'll get round that 1!!! It's all a massive learning curve but the info on here is invaluable, thanks again x

Catholic churches have a very low gluten option for hosts.

Victoria1234 Experienced

Gluten free hosts here: Open Original Shared Link 

the 20ppm is ok with the Catholic Church, or so I've read. Communion is supposed to have a certain amount of gluten in it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ironictruth Proficient

So my brother is an organic dairy and beef farmer with celiac. His cows are mainly grass fed but do get grain in the winter..in the barn...where the dust flies and the wheat in the grain gets inhaled and on the lips. It took him awhile to figure out what was getting him sick again after he started healing. I am not sure what they did to rectify it, but he is extremely strict. 

If you are ever looking for a Vermont farm vacation that is gluten free they rent a house out on air bnb. Lol. 

Victoria1234 Experienced
56 minutes ago, kareng said:

Catholic churches have a very low gluten option for hosts.

Our low gluten isn't low enough, lol. 

Ennis-TX Grand Master

Will stick with making my own communion bread and having my pastor bless it like I have been for the past few years ......on a side note the whole hay things got me a few years back. I did no think about it either and was helping set up the decorations for the farmers market during the fall festival....yeah that was a huge mistake and made me paranoid about straw/hay. 

TexasJen Collaborator
5 hours ago, Shelley2 said:

Wow thanks for that, the study makes for interesting reading & even mentions holy communion wafers! Something I hadn't even thought of & my eldest won't be impressed when she takes her first holy communion next year, not sure how we'll get round that 1!!! It's all a massive learning curve but the info on here is invaluable, thanks again x

Here's a link to some gluten free hosts in the US - made by Benedictine Sisters of Perpetual Adoration

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to JForman's topic in Coping with Celiac Disease
      8

      7yo struggling!

    2. - Aretaeus Cappadocia replied to JForman's topic in Coping with Celiac Disease
      8

      7yo struggling!

    3. - Aretaeus Cappadocia commented on Jefferson Adams's article in Origins of Celiac Disease
      8

      Celiac Disease Linked to Neanderthal Ancestry

    4. - Aretaeus Cappadocia commented on Jefferson Adams's article in Diagnosis, Testing & Treatment
      4

      Scientists Make Major Advance in Autoimmune Disease Therapy

    5. - Scott Adams commented on Scott Adams's article in Additional Concerns
      8

      This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,108
    • Most Online (within 30 mins)
      10,442

    MiaPiwo
    Newest Member
    MiaPiwo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Actually, human agriculture only started 10-12,000 years ago, while the Neanderthals were gone by 30,000 years ago (and greatly diminished long before then).
    • Aretaeus Cappadocia
      In addition to the other advice offered, perhaps you could identify some good recipes for gluten-free treats that you could make at home with your child, and maybe make a little fuss over how good gluten-free treats are. I regularly make gluten-free banana bread with different recipes that use buckwheat, garbanzo bean, etc flours, gluten-free ginger snaps, etc. This might have the most impact if it's a novel treat unknown to the kids in a glutenated form. Best wishes.
    • Wheatwacked
      Chronic fatigue in the producer was the inspiration for the episode but I feel it touches on anyone that suffers and is dismissed as psycosomatic. The patient expressed my feelings elequently.  In episode 2 the doctor explains the problem well. I stopped all commercial milk protein like skim milk added to processed foods and in a few days there was a definate improvement in my  gut, bowel movements, discomfort etc. Still drinking several glasses of Pasture Fed grass fed milk with no negative effects.   Specifically, for myself Clonidine is the only medication that lowers my BP and the doctor did not renew it, insisting that I continue Losartan.  I think that she thinks I am abusing Clonidine and the reason the Losartan doesn't work is because I am non-compliant.  Absolutely not. Surprisingly after a few days withdrawal from the Clonidine my fasting blood sugar has gotten under control.  Fasting blood sugar near normal instead of over 160.  Last few days its been below 100.  I still need Glimiperide.  Without the clonidine my pulse rate is around 100 bpm, with it around 60.   Prescription of angiotensin receptor blockers in celiac disease is associated with persistent symptoms and surrogate markers of malabsorption.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12323722/ Angiotensin receptor blocker-associated enteropathy (ARB-e) is an increasingly recognised clinical entity with symptoms and histological findings identical to coeliac disease (celiac disease). There is evidence to suggest immune-mediated mucosal injury in ARB-e with a high prevalence of DQ2/DQ8; however, as IgA anti-tissue transglutaminase (anti-TTG) is usually negative   https://onlinelibrary.wiley.com/doi/full/10.1002/ueg2.12117 NEW research [Nov 2024] presented at the American College of Gastroenterology (ACG) Annual Scientific Meeting suggests that angiotensin receptor blockers (ARBs), a class of drugs commonly used to manage hypertension, may be associated with poorer outcomes in patients with coeliac disease. Findings indicated that patients taking ARBs had a higher likelihood of experiencing persistent symptoms and markers of poor small bowel healing, such as anaemia and iron deficiency.  https://www.emjreviews.com/en-us/amj/gastroenterology/news/angiotensin-receptor-blockers-may-worsen-coeliac-disease-outcomes/
    • mermaidluver22
      @BarcinoHi! I am so sorry abt your son but also relieved to know I am not alone! My ttg iga is still mildly elevated but going down. Last time we checked I had some small erosions in my ileum but recently got an MRE that showed no inflammation. Calpro 70. We are still in limbo but we are taking a conservative approach as well. Please keep me updated about his situation and outcomes! I always love to hear others opinions/experiences especially ibd specialists. 
    • Scott Adams
      Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...