Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Daft questions!!


Shelley2

Recommended Posts

Shelley2 Newbie

Hi, I'm mum to 2 girls who have both recently been diagnosed with Coeliac disease. My daft question for today is are farm trips now a no go? The reason I ask is we spent the day on a farm yesterday & the girls played in the hay barn, rolled around on the straw & we went on a tractor ride. This morning they woke up rather unhappy, have been complaining of tummy aches & been off their food all day. Is this a result of yesterday or something else? Any help greatly appreciated x

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria1234 Experienced
48 minutes ago, Shelley2 said:

Hi, I'm mum to 2 girls who have both recently been diagnosed with Coeliac disease. My daft question for today is are farm trips now a no go? The reason I ask is we spent the day on a farm yesterday & the girls played in the hay barn, rolled around on the straw & we went on a tractor ride. This morning they woke up rather unhappy, have been complaining of tummy aches & been off their food all day. Is this a result of yesterday or something else? Any help greatly appreciated x

Welcome to the forum!

not a daft question at all. I think straw is what you have after the wheat grains have been harvested... I think. Someone please correct me if I'm wrong. But of course I'm sure some of the grains could remain. It's bound to not be perfect. So I imagine rolling around in it and sitting on it is not necessarily going to get it in your mouth, but it might could. And especially it's all over your hands and you can put your fingers in your mouth, or touch your food without washing your hands. It's also then all over your clothing and you can touch those and get it in your mouth in the same way. 

I would imagine depending on the age of your children you could make sure everyone washes their hands really well while leaving the farm and taking a quick shower or bath once you get home and change into fresh clothes. But then that doesn't guarantee them not putting their fingers in their mouth when you are still at the farm, in the thick of things.

sounds like they are very sensitive so it might just be a good idea to stay away from the farm outings for now. But please, wait to see what others have to say. I might be totally wrong on this.

snuggle your children extra much!

Link to comment
Share on other sites
cyclinglady Grand Master

Okay, I just have a veggie garden, so I am not a farmer.  I did a quick search and found this blog.  I know, a blog, but at least the blogger lives on a farm.  

Open Original Shared Link

Oh....an actual study that kind of supports this....

Open Original Shared Link

Let's face it.  Who is going to fund a study concerning the safety of celiacs when exposed to feed or straw.  

You do have to swallow gluten for a reaction to occur.  But that can be from unwashed hands and breathing in gluten and swallowing it.  

I hope they  recover fast!  

 

Link to comment
Share on other sites
Shelley2 Newbie
6 minutes ago, cyclinglady said:

Okay, I just have a veggie garden, so I am not a farmer.  I did a quick search and found this blog.  I know, a blog, but at least the blogger lives on a farm.  

Open Original Shared Link

Oh....an actual study that kind of supports this....

Open Original Shared Link

Let's face it.  Who is going to fund a study concerning the safety of celiacs when exposed to feed or straw.  

You do have to swallow gluten for a reaction to occur.  But that can be from unwashed hands and breathing in gluten and swallowing it.  

I hope they  recover fast!  

 

Wow thanks for that, the study makes for interesting reading & even mentions holy communion wafers! Something I hadn't even thought of & my eldest won't be impressed when she takes her first holy communion next year, not sure how we'll get round that 1!!! It's all a massive learning curve but the info on here is invaluable, thanks again x

Link to comment
Share on other sites
Shelley2 Newbie
50 minutes ago, Victoria1234 said:

Welcome to the forum!

not a daft question at all. I think straw is what you have after the wheat grains have been harvested... I think. Someone please correct me if I'm wrong. But of course I'm sure some of the grains could remain. It's bound to not be perfect. So I imagine rolling around in it and sitting on it is not necessarily going to get it in your mouth, but it might could. And especially it's all over your hands and you can put your fingers in your mouth, or touch your food without washing your hands. It's also then all over your clothing and you can touch those and get it in your mouth in the same way. 

I would imagine depending on the age of your children you could make sure everyone washes their hands really well while leaving the farm and taking a quick shower or bath once you get home and change into fresh clothes. But then that doesn't guarantee them not putting their fingers in their mouth when you are still at the farm, in the thick of things.

sounds like they are very sensitive so it might just be a good idea to stay away from the farm outings for now. But please, wait to see what others have to say. I might be totally wrong on this.

snuggle your children extra much!

Thanks for your reply, I made sure they washed their hands thoroughly & repeatedly while we were there but thinking back the hay barn was quite dusty while they were climbing all over the bales & in & out of tunnels. I think it's definitely something we need to avoid for now!

Link to comment
Share on other sites
kareng Grand Master
6 minutes ago, Shelley2 said:

Wow thanks for that, the study makes for interesting reading & even mentions holy communion wafers! Something I hadn't even thought of & my eldest won't be impressed when she takes her first holy communion next year, not sure how we'll get round that 1!!! It's all a massive learning curve but the info on here is invaluable, thanks again x

Catholic churches have a very low gluten option for hosts.

Link to comment
Share on other sites
Victoria1234 Experienced

Gluten free hosts here: Open Original Shared Link 

the 20ppm is ok with the Catholic Church, or so I've read. Communion is supposed to have a certain amount of gluten in it.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ironictruth Proficient

So my brother is an organic dairy and beef farmer with celiac. His cows are mainly grass fed but do get grain in the winter..in the barn...where the dust flies and the wheat in the grain gets inhaled and on the lips. It took him awhile to figure out what was getting him sick again after he started healing. I am not sure what they did to rectify it, but he is extremely strict. 

If you are ever looking for a Vermont farm vacation that is gluten free they rent a house out on air bnb. Lol. 

Link to comment
Share on other sites
Victoria1234 Experienced
56 minutes ago, kareng said:

Catholic churches have a very low gluten option for hosts.

Our low gluten isn't low enough, lol. 

Link to comment
Share on other sites
Ennis-TX Grand Master

Will stick with making my own communion bread and having my pastor bless it like I have been for the past few years ......on a side note the whole hay things got me a few years back. I did no think about it either and was helping set up the decorations for the farmers market during the fall festival....yeah that was a huge mistake and made me paranoid about straw/hay. 

Link to comment
Share on other sites
TexasJen Collaborator
5 hours ago, Shelley2 said:

Wow thanks for that, the study makes for interesting reading & even mentions holy communion wafers! Something I hadn't even thought of & my eldest won't be impressed when she takes her first holy communion next year, not sure how we'll get round that 1!!! It's all a massive learning curve but the info on here is invaluable, thanks again x

Here's a link to some gluten free hosts in the US - made by Benedictine Sisters of Perpetual Adoration

Open Original Shared Link

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - BluegrassCeliac replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      7

      This forum might be the last hope I have in my life. Please I beg you

    2. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    4. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,067
    • Most Online (within 30 mins)
      7,748

    myneckmybackmyceliac
    Newest Member
    myneckmybackmyceliac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
×
×
  • Create New...