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Shelley2

Daft questions!!

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Hi, I'm mum to 2 girls who have both recently been diagnosed with Coeliac disease. My daft question for today is are farm trips now a no go? The reason I ask is we spent the day on a farm yesterday & the girls played in the hay barn, rolled around on the straw & we went on a tractor ride. This morning they woke up rather unhappy, have been complaining of tummy aches & been off their food all day. Is this a result of yesterday or something else? Any help greatly appreciated x

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48 minutes ago, Shelley2 said:

Hi, I'm mum to 2 girls who have both recently been diagnosed with Coeliac disease. My daft question for today is are farm trips now a no go? The reason I ask is we spent the day on a farm yesterday & the girls played in the hay barn, rolled around on the straw & we went on a tractor ride. This morning they woke up rather unhappy, have been complaining of tummy aches & been off their food all day. Is this a result of yesterday or something else? Any help greatly appreciated x

Welcome to the forum!

not a daft question at all. I think straw is what you have after the wheat grains have been harvested... I think. Someone please correct me if I'm wrong. But of course I'm sure some of the grains could remain. It's bound to not be perfect. So I imagine rolling around in it and sitting on it is not necessarily going to get it in your mouth, but it might could. And especially it's all over your hands and you can put your fingers in your mouth, or touch your food without washing your hands. It's also then all over your clothing and you can touch those and get it in your mouth in the same way. 

I would imagine depending on the age of your children you could make sure everyone washes their hands really well while leaving the farm and taking a quick shower or bath once you get home and change into fresh clothes. But then that doesn't guarantee them not putting their fingers in their mouth when you are still at the farm, in the thick of things.

sounds like they are very sensitive so it might just be a good idea to stay away from the farm outings for now. But please, wait to see what others have to say. I might be totally wrong on this.

snuggle your children extra much!

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Okay, I just have a veggie garden, so I am not a farmer.  I did a quick search and found this blog.  I know, a blog, but at least the blogger lives on a farm.  

http://www.celestesbest.com/blog/are-hay-rides-safe-for-celiacs-and-those-on-a-gluten-free-diet-/7dec5f32-47e3-5f00-930f-53d79e2bbc2a

Oh....an actual study that kind of supports this....

http://www.nejm.org/doi/full/10.1056/NEJMc063112

Let's face it.  Who is going to fund a study concerning the safety of celiacs when exposed to feed or straw.  

You do have to swallow gluten for a reaction to occur.  But that can be from unwashed hands and breathing in gluten and swallowing it.  

I hope they  recover fast!  

 

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6 minutes ago, cyclinglady said:

Okay, I just have a veggie garden, so I am not a farmer.  I did a quick search and found this blog.  I know, a blog, but at least the blogger lives on a farm.  

http://www.celestesbest.com/blog/are-hay-rides-safe-for-celiacs-and-those-on-a-gluten-free-diet-/7dec5f32-47e3-5f00-930f-53d79e2bbc2a

Oh....an actual study that kind of supports this....

http://www.nejm.org/doi/full/10.1056/NEJMc063112

Let's face it.  Who is going to fund a study concerning the safety of celiacs when exposed to feed or straw.  

You do have to swallow gluten for a reaction to occur.  But that can be from unwashed hands and breathing in gluten and swallowing it.  

I hope they  recover fast!  

 

Wow thanks for that, the study makes for interesting reading & even mentions holy communion wafers! Something I hadn't even thought of & my eldest won't be impressed when she takes her first holy communion next year, not sure how we'll get round that 1!!! It's all a massive learning curve but the info on here is invaluable, thanks again x

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50 minutes ago, Victoria1234 said:

Welcome to the forum!

not a daft question at all. I think straw is what you have after the wheat grains have been harvested... I think. Someone please correct me if I'm wrong. But of course I'm sure some of the grains could remain. It's bound to not be perfect. So I imagine rolling around in it and sitting on it is not necessarily going to get it in your mouth, but it might could. And especially it's all over your hands and you can put your fingers in your mouth, or touch your food without washing your hands. It's also then all over your clothing and you can touch those and get it in your mouth in the same way. 

I would imagine depending on the age of your children you could make sure everyone washes their hands really well while leaving the farm and taking a quick shower or bath once you get home and change into fresh clothes. But then that doesn't guarantee them not putting their fingers in their mouth when you are still at the farm, in the thick of things.

sounds like they are very sensitive so it might just be a good idea to stay away from the farm outings for now. But please, wait to see what others have to say. I might be totally wrong on this.

snuggle your children extra much!

Thanks for your reply, I made sure they washed their hands thoroughly & repeatedly while we were there but thinking back the hay barn was quite dusty while they were climbing all over the bales & in & out of tunnels. I think it's definitely something we need to avoid for now!

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6 minutes ago, Shelley2 said:

Wow thanks for that, the study makes for interesting reading & even mentions holy communion wafers! Something I hadn't even thought of & my eldest won't be impressed when she takes her first holy communion next year, not sure how we'll get round that 1!!! It's all a massive learning curve but the info on here is invaluable, thanks again x

Catholic churches have a very low gluten option for hosts.

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Gluten free hosts here: http://www.glutenfreehosts.com/ 

the 20ppm is ok with the Catholic Church, or so I've read. Communion is supposed to have a certain amount of gluten in it.

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So my brother is an organic dairy and beef farmer with celiac. His cows are mainly grass fed but do get grain in the winter..in the barn...where the dust flies and the wheat in the grain gets inhaled and on the lips. It took him awhile to figure out what was getting him sick again after he started healing. I am not sure what they did to rectify it, but he is extremely strict. 

If you are ever looking for a Vermont farm vacation that is gluten free they rent a house out on air bnb. Lol. 

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56 minutes ago, kareng said:

Catholic churches have a very low gluten option for hosts.

Our low gluten isn't low enough, lol. 

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Will stick with making my own communion bread and having my pastor bless it like I have been for the past few years ......on a side note the whole hay things got me a few years back. I did no think about it either and was helping set up the decorations for the farmers market during the fall festival....yeah that was a huge mistake and made me paranoid about straw/hay. 

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5 hours ago, Shelley2 said:

Wow thanks for that, the study makes for interesting reading & even mentions holy communion wafers! Something I hadn't even thought of & my eldest won't be impressed when she takes her first holy communion next year, not sure how we'll get round that 1!!! It's all a massive learning curve but the info on here is invaluable, thanks again x

Here's a link to some gluten free hosts in the US - made by Benedictine Sisters of Perpetual Adoration

http://altarbreadsbspa.com/altarbreads/index.php?main_page=page&id=2&zenid=5cpp5nimldcg8n11jigsa7p1i6

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