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been seeing different doctors for a couple of months now.

for some reason every few weeks I get these flare ups I guess you would say. Burning my stomach feels like somone punched it or like I ripped a scab off inside. 

Docs wants to give me some anti depressants. Others tell me to eat more yogurt.

could this possibly be stomach ulcers? They wanted to do a Scan with contrast but I canceled because I didn't want to drink it i was scared it would make me sick.

I don't want to go to anymore doctors and I don't want another endoscopy.

i get ulcers on my mouth every few weeks too so maybe my stomach is effected also?

i am completely gluten free I try to be anyway, I live with roommates who do eat gluten sandwiches and we do share the same plates but I do wash with bleach before using.

 

I did get fries a few weeks ago from bojangles and found some chicken crumbs in there. I already eaten one but threw the rest away. ( bojangles is a fried chicken place but they told me they cook their fries separately) 

Never going there again. 

 

I irrate my roommates with not being able to eat out and everything hurting me. Not really sure what else to do really. 

 

Is there a way for me to self diagnose ulcers if that's what it is? 

I use to think it was endometriosis, but still not totally sure.

oh and I also take a lot of Advil...trying to stop because I heard they can cause ulcer and stomach problems.

 

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Mouth ulcers? Hmm what kind, I get blood blisters in my mouth from corn and a few others things I am highly allergic to. I have heard of some people reacting to citric acids and certain other foods that might cause these. Other thoughts could be a type of defency. If you have really bad bleeding ulcers in the stomach or small intestine they will cause black tar like stools, large intestine bleeding ulcers will cause red streaks and blood clots in the stool.

The burning bunch sensation could be a sibo or gluten exposure issue, is it present with gas? Do you have the urge to puke or any stool issues present with it like constipation or D? Are you on PPIs? Perhaps a digestive enzyme might help a bit, or a few other things come to mind.

 IF you had major ulcers they would have found them on the endoscope as it was running down your throat and through your stomach. At least in most cases they do, mine did and found and removed a few polyps.

Shared plates issue should be find if washed well and not scratched, but I might suggest paper plates and utensils to play it safe, and your own cook ware/cooking area. Freezer paper is a life saver for prep areas and using parchment and tin foil for liners can be great too. And the blessing of dedicated microwave cookware and covers for cheap is glorious.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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1 hour ago, WinifriedA said:

been seeing different doctors for a couple of months now.

for some reason every few weeks I get these flare ups I guess you would say. Burning my stomach feels like somone punched it or like I ripped a scab off inside. 

Docs wants to give me some anti depressants. Others tell me to eat more yogurt.

could this possibly be stomach ulcers? They wanted to do a Scan with contrast but I canceled because I didn't want to drink it i was scared it would make me sick.

I don't want to go to anymore doctors and I don't want another endoscopy.

i get ulcers on my mouth every few weeks too so maybe my stomach is effected also?

i am completely gluten free I try to be anyway, I live with roommates who do eat gluten sandwiches and we do share the same plates but I do wash with bleach before using.

 

I did get fries a few weeks ago from bojangles and found some chicken crumbs in there. I already eaten one but threw the rest away. ( bojangles is a fried chicken place but they told me they cook their fries separately) 

Never going there again. 

 

I irrate my roommates with not being able to eat out and everything hurting me. Not really sure what else to do really. 

 

Is there a way for me to self diagnose ulcers if that's what it is? 

I use to think it was endometriosis, but still not totally sure.

oh and I also take a lot of Advil...trying to stop because I heard they can cause ulcer and stomach problems.

 

My suggestion is to first rule out a celiac flare-up.  It sounds like you are still getting gluten into your diet (eating out, washing your dishes with bleach is fine for killing germs, but not removing gluten).  If you do not have a dishwasher, use a separate sponge and dedicate plates and other utensils just for you.  

A few gluten exposures can activate celiac disease.  Each glutening can vary.  Everyone is different. For some it is just a week or so of misery.  For others it can last a few months!!!!  Celiac symptoms can vary too.  So, sometimes it is hard to tell if you have been glutened.  

Consider not eating out for a while, check your labels and research safe shared household tips.  

Hooe you feel better soon!  

 


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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4 hours ago, WinifriedA said:

been seeing different doctors for a couple of months now.

for some reason every few weeks I get these flare ups I guess you would say. Burning my stomach feels like somone punched it or like I ripped a scab off inside. 

Docs wants to give me some anti depressants. Others tell me to eat more yogurt.

could this possibly be stomach ulcers? They wanted to do a Scan with contrast but I canceled because I didn't want to drink it i was scared it would make me sick.

I don't want to go to anymore doctors and I don't want another endoscopy.

i get ulcers on my mouth every few weeks too so maybe my stomach is effected also?

i am completely gluten free I try to be anyway, I live with roommates who do eat gluten sandwiches and we do share the same plates but I do wash with bleach before using.

 

I did get fries a few weeks ago from bojangles and found some chicken crumbs in there. I already eaten one but threw the rest away. ( bojangles is a fried chicken place but they told me they cook their fries separately) 

Never going there again. 

 

I irrate my roommates with not being able to eat out and everything hurting me. Not really sure what else to do really. 

 

Is there a way for me to self diagnose ulcers if that's what it is? 

I use to think it was endometriosis, but still not totally sure.

oh and I also take a lot of Advil...trying to stop because I heard they can cause ulcer and stomach problems.

 

I know you don't want another endo, but that's going to tell you if you have an ulcer. My mom has to go in for an endo in August because her doctor thinks she has one. And really, it's a relatively quick and easy process and you'd have an answer. You can develop ulcers anytime, and they aren't always going to be because of gluten. I get canker sores (usually from biting my cheek or lip), and I'm psychotic about my diet - so I know I'm not eating gluten. I just get them. My grandma gets them. They just happen. 

As far as roommates, I would just try hard to keep my stuff separate from them. Gluten isn't killed with bleach. It's not bacteria. So you need to make sure you're really cleaning dishes and silverware well. If you're using glass or ceramic plates (plastic can get scratches, which is hard to clean) then you should be fine. When I'm using a shared kitchen I just re-wash things before using them. If I don't have a clean cloth to use I use a paper towel to clean things with soap and water, and then throw it away. When I was diagnosed I had just bought new non-stick pans a few months prior and I wasn't going to throw them away and buy new. I couldn't do that. They cost a fortune. I didn't throw away my dishes and silverware. I have celiac in my family and my relatives all told me that as long as I'm washing everything really well, I'm ok. I don't think I've ever been glutened because of my pans or my dishes. Our next set of pans will be stainless steel, but holy $$$. At home we're pretty much gluten free. My husband and 1 year old don't have celiac, but they just eat gluten free with my son and me because it's so much easier. My husband does like his english muffins and uses a toaster, but I keep it in a cabinet just for him, and he's really good about it. He uses a spoon to take out a serving of butter, peanut butter, or jelly and then uses a knife to spread them on his muffin. He never dips a glutened knife into anything. But he's diligent. He washes his hands after he touches gluten before he touches anything else. We treat gluten like we treat raw meat. That's our analogy. If it touches the counter, you gotta wipe it. If you touch it with your hands, wash them. You know? But roommates are hard and you're definitely not the first person I've seen on here venting about that. 

Don't eat out. If you do, look for places online that are reputable in the celiac community. You can find restaurants that do a good job with their gluten free options, but I'd talk to other people with celiac before you try them. I was eating at Chick-Fil-A from time to time after I was diagnosed because they have a dedicated fryer for their fries and their grilled nuggets are gluten free, and I think it bothered me, so I don't eat there anymore. The convenience is gone. It does really impact your social life because going out to dinner isn't what it used to be. My aunt is a veteran celiac and she assures me that eventually I'll be more comfortable eating out (I'm 8 months in).  If your roommates are irritated - too damn bad? It's not your choice to have this. 

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I was getting mouth ulcers too - could be citrus as someone said, sugar, SLS in toothpaste, hormones, stress (a big one!). I recently wrote about it on this site. For 2 weeks, I've had no sugar, and less stress. No mouth ulcers. Also, no eating pleasure. It's a bummer.

As for the stomach ulcers, have you done a fecal occult blood test (or FIT test)? That maybe can be done before another endoscopy.


Diagnosed with Celiac in 2010. Diagnosed with sleep apnea 2018.

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