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Symptoms??

Jlewisrn

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Jlewisrn Contributor
Jlewisrn
Posted

I have a GI appt end of August. I'm looking for some help/opinions before then. Here are my symptoms... I have constant nausea. I always have for as long as I can remember. Every night I get nauseous and a lot during the day. I often get excruciating stomach cramps that leave me in cold sweats about to pass out on the bathroom floor. My stomach is tender for about 3 days afterward. I have been told recently that I have low vitamin D which is strange since I eat healthy and I'm outside all the time. In Jan I went to the ER with a kidney stone. The scan showed I was very constipated. I don't really feel constipated and I go everyday. I also have had unexplained infertility and 1 miscarriage in the past. Now fast forward to now... in January I got an intensely itchy   rash on my legs and underarms.My dr said it was scabies (I'm a nurse) and I was treated 2X without success. I went to a dermatologist and was told it was eczema. I was give steroids and it helped but came back as soon as I got off the cream. I have been itching for 7 months. I have an intense itch in the folds of my vagina a well. This has been going on for about 4-5 months. I also get itchy raised areas on my stomach and upper hips. 

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Jmg Mentor
Jmg
Posted
8 hours ago, Jlewisrn said:

have constant nausea. I always have for as long as I can remember. Every night I get nauseous and a lot during the day. I often get excruciating stomach cramps that leave me in cold sweats about to pass out on the bathroom floor. My stomach is tender for about 3 days afterward. I have been told recently that I have low vitamin D which is strange since I eat healthy and I'm outside all the time. In Jan I went to the ER with a kidney stone. The scan showed I was very constipated. I don't really feel constipated and I go everyday. I also have had unexplained infertility and 1 miscarriage in the past. Now fast forward to now... in January I got an intensely itchy   rash on my legs and underarms.My dr said it was scabies (I'm a nurse) and I was treated 2X without success. I went to a dermatologist and was told it was eczema. I was give steroids and it helped but came back as soon as I got off the cream. I have been itching for 7 months. I have an intense itch in the folds of my vagina a well. This has been going on for about 4-5 months. I also get itchy raised areas on my stomach and upper hips. 

Hello and welcome :)

No-one here can diagnose you (try telling your doctor the internet says its celiac!) but you may have found your answer. All your symptoms could be caused by gluten. Only way is to test and only way for test to work is for you to STAY EATING GLUTEN until all testing is complete.

I don't know how read up you are on celiac? There's an FAQ stickied above and I did a post awhile back to try and answer some common questions also: https://www.celiac.com/forums/topic/115138-suggestion-faq-intro-post-for-the-diagnosis-board-input-requested/?do=findComment&comment=970127 just ignore the top two tests, these are the ones you need your GP to run:

Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

Try and get the full panel, some only test on one of them. Also see if you can get another referral to the dermatologist for a test on your skin for celiac, That needs to be near the area not on it. Check the forums sub section for Dermatitis Herpetiformis as you could get your diagnosis via that way. 

So, read up via the linked post, stay on gluten till your appointment (and beyond most likely as the clinical pathway is blood test then endoscopy and you need to be on gluten for both.  However if you finally reach the end of the diagnostic path and the answer is negative, DO give the gluten free diet a try at that point. If you;re like me you could test negative but still react.

You will find lots of support here, ask as many questions as you like. 

Best of luck!

Matt

 

 

Jlewisrn Contributor
Jlewisrn
Posted
  • Author

Thank Matt. I have pretty positive it's something I am eating but I just don't know what. After researching I came across gluten. I'm wanting answers but actually hoping that's not it... I have read to continue to eat gluten so I am but the itching is driving me mad (and my husband. He says I thrash around all night and has been tempted to go to the other room). I'm not looking for a diagnosis here just maybe some common problems so I don't feel so crazy. Thank you so much. 

Jmg Mentor
Jmg
Posted
On 8/1/2017 at 5:48 PM, Jlewisrn said:

I'm wanting answers but actually hoping that's not it...

Well, don't be too disappointed if it is. There's very few conditions which can be pretty much totally controlled by a diet change, no medication, no side effects etc. It can be a pain, no question, but if it does turn out to be that you could look forward to a full recovery in time. :)

 

Vitalia Newbie
Vitalia
Posted

Oh my, sounds like celiac to me. I had a lot of these symptoms and was given steroid creams etc. I also had chronic Y.I, and flus, breathing difficulties, nausea, anxiety and since going gluten-free, it's disappeared. 

Jlewisrn Contributor
Jlewisrn
Posted
  • Author

It's not yeast just itching like everywhere else. I am so hoping for answers. If it's not it at least I can rule that out and move on to finding out what it is. I'm afraid if doesn't suggest to test me for that and I ask he will just think I'm on the "celiac, gluten free" bandwagon. I've already gotten some eye rolls if I mention it. 

cyclinglady Grand Master
cyclinglady
Posted

Read the DH section of the forum.  You will find out that many DH suffers can be seronegative on the celiac blood tests.  A skin biopsy (taken in a very specific way) can diagnose DH.  Taking steroids can ruin test results.  Consider finding a celiac-savvy GI or Derm.  

In any case, some thing is wrong.  Keep advocating for your health!  

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