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Biopsy results incomplete?

Porrin

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Porrin Rookie
Porrin
Posted

Hi everyone, im from Argentina and im struggling with getting diagnosed since a bit more than a year, I've got nutritional deficiencies that doesn't seem to respond to supplements and GI problems, bloating, pain, steatorrea etc + other autoimmune disorders. They finally realized the upper endoscopy and took 2 samples, but the analysis of the samples seems very incomplete it says they found congestive duodenum mucosa and no signification histology changes, but there is not lymphocytes count or marsh classification whatsoever, should i call and ask for a more detailed report? im just getting so tired of all of this u.u

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squirmingitch Veteran
squirmingitch
Posted

They should have taken at least 6 biopsies. Yes, call them & see if there is a more detailed report. Did you get the celiac blood testing? You should have had that before the endoscopy. Do you have the results of the blood testing? If so, can you post it here along with the reference ranges?

Were you eating gluten every day or had you gone gluten free before the endoscopy or blood testing? Don't quit eating gluten until all testing is done with.

What other autoimmune diseases do you have?

I am not at all familiar with the health care/insurance of Argentina. Is it a government health care or do you guys have individual insurance plans? Can you pick your doctors?

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cyclinglady Grand Master
cyclinglady
Posted

Sorry that you are ill.  I just want to add a link regarding the celiac blood tests that your doctor should order to help confirm a diagnosis of celiac disease as many other things can damage intestinal villi.  

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Porrin Rookie
Porrin
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1 hour ago, squirmingitch said:

They should have taken at least 6 biopsies. Yes, call them & see if there is a more detailed report. Did you get the celiac blood testing? You should have had that before the endoscopy. Do you have the results of the blood testing? If so, can you post it here along with the reference ranges?

Were you eating gluten every day or had you gone gluten free before the endoscopy or blood testing? Don't quit eating gluten until all testing is done with.

What other autoimmune diseases do you have?

I am not at all familiar with the health care/insurance of Argentina. Is it a government health care or do you guys have individual insurance plans? Can you pick your doctors?

Yes i've heard that they were supossed to take 6 or more biopsis but no, i suposse they didnt know wich is sad, but at least i was expecting a more detailed report, since they havent even found a normal mucosa, congestive means inflamation at least for what i know, i eat gluten every day i was gluten free before and i used to feel better but has been more than a year since i reintroduce gluten for all the testing, the celiac panel is complete (i already checked that) and everything is negative but they said that marsh 1 sometimes get negative blood work (that happend to a close family friend) they also realized a colonoscopy cause my mother has ulcerative colitis and i have an uncle with crohns too, so they checked that and it seems ok, what they did found was chronic gastritis but with no H pylory. I've got psoriasis, hashimoto (the antibodys but thyroid still working) and now it seems i could have Sjogren too. 
Its private healt care, you pay for month and they provide you with a number of profesionals and hospitals and you can chose from that, havent been very lucky tho tbh
Thank you for your answer im gonna try to contact the hospital and ask them for a more detailed report or the samples to take to another place for a proper analysis

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squirmingitch Veteran
squirmingitch
Posted

If you can take the biopsies to another place for a second opinion that would be wonderful. 

Well since you had already been gluten free & know it makes you feel better then if you can't get anything else going on with the doctors/tests, you know you can go back to gluten free and feel better. 

The Hashimoto and Sjogren are both associated with celiac disease. It's possible that your villi just aren't damaged enough but I still am upset they didn't do the 6 biopsies. With only 2 biopsies they could have easily missed the damage. Is it possible for you to get another endoscopy? I know that would be so not fun but while you're still eating gluten..........

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