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cmoore

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There are people that have both a wheat allergy and celiac. Since celiac can appear at any age it could be diagnosed at any age. Folks are even being diagnosed who are in nursing homes. have you been tested for celiac? Do you think your 'wheat allergy' could have been a misdiagnosis and you may have actually been celiac?

 


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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7 hours ago, cmoore said:

If a person was diagnosed with a Wheat allergy at 9 yrs old with none of the usual Celiac symptoms, what are the chances you could still have a gluten Sensitivity problem at 60 years old?

It probably depends on what you actually had.  They didn't test for Celiac and the allergy testing wasn't the most accurate.  Have you been strictly wheat free for all those years?  You could certainly go to an allergist and explain the situation.  Try wheat in the office (in case of a bad reaction).


 

 

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My girlfriend was recently diagnosed in her 50's with celiac disease.  Her sister was diagnosed as a kid.  Doctors then told her parents that she would out grow it.  So, in her late teens, she went back on gluten.  She did well for years.  A few things, but she ignored it.  Got re-tested after my girlfriend's (her sister) some 50 years later.  Yep, the celiac disease never went away (which we know now to be lifelong).  

You can test for an allergy in the office just in case you become anaphylactic.  A supervised challenge.  If okay, you could try a 12 week gluten challenge and test for celiac disease.  

Have symptoms changed or appeared?  What is making you doubt the original diagnosis?  There are 200 symptoms of celiac disease.  Not all people ever have GI issues.  Any other autoimmune issues?  Family history?  

Edited by cyclinglady

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