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Is it enough to rule out celiac?

Ven2119

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Ven2119 Newbie
Ven2119
Posted

I have GI problems for two years now. I recently found that I have severe vitamin d deficiency and anemia. My doctor suggested that I get tested for celiac. Now, my country is not very informed on celiac and our doctors say that they are not experts on this condition, so my question is, if my EMA iga, ttg iga, ttg igg and immunoglobulin iga are normal, that would rule out celiac, right? 

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kareng Grand Master
kareng
Posted

I would think so.  

Cara in Boston Enthusiast
Cara in Boston
Posted

You could also have NCGI (non Celiac gluten intolerance). Same symptoms, negative blood tests.  Why not try eating gluten free and see if you improve.  Give it time (6-8 weeks) and don't cheat.  If you improve, you'll have your answer.  

Given the negative blood tests, it is not likely they will test you further, so changing your diet is fine.  

cyclinglady Grand Master
cyclinglady
Posted

Well, some people (like me) test negative on the EMA and TTG tests.  I test positive (even on follow-up testing) to only the DGP IgA.  My intestinal biopsies revealed some severe damage.  Then there  are celiacs (about 10%) who are seronegative.  All these are reasons why the intestinal biopsy is still consider the best test for making a celiac disease diagnosis.  

If an endoscopy or the DGP test is not available to you, consider trial the diet for six months.  

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  • Posts

    • RMJ
      Osteoporosis

      By RMJ · Posted

      Vitamin K is also thought to help bone health, although not all scientific studies agree. 
    • trents
      Osteoporosis

      By trents · Posted

      @marion wheaton, are you on vitamin and mineral supplements that are appropriate for bone health in order to offset the malabsorption problem until your gut heals thoroughly? I'm talking about supplements more potent than an adult multivitamin. We routinely recommend to newly diagnosed celiacs to be taking a high potency B-complex, 5-10k of D3, Magnesium glycinate or Magnesium citrate, and zinc picolinate. All supplements need to be gluten free of course.
    • RMJ
      Osteoporosis

      By RMJ · Posted

      I’ve been taking oral alendronate for 4 years.  I haven’t had any doctors be concerned about it.  My dentist recommended against the related iv medications because of potential adverse effects on the bones in the jaw - osteonecrosis.  Supposedly rare side effect but he had seen it several times. I originally had the same concern as @trents - slowing resorption instead of building new bone.  I learned that that was a problem with the original bisphosphonates but not so much with alendronate and other newer ones.
    • trents
      Osteoporosis

      By trents · Posted

      Both are valid concerns IMO. I developed osteopenia from celiac disease and was taking alendronate for a time. Honestly though, I can't remember if it was before diagnosis or after diagnosis of celiac disease. I was diagnosed over twenty years ago. I don't remember having any problems with the med itself but I do remember stopping it because I was concerned about the mechanism of its action. Namely, it slows down the resorption of old bone cells rather than speeding up the production of new ones. My concern was that it might increase bone mass but actually result in softer bones. That may have been a dated concern but back then it was a reservation held by some in the medical community. And then there are all the potential side effects and drug interactions associated with it. I think once the villous lining of my small bowel began to heal and nutrient absorption improved, the bone demineralization problem at least stabilized. I am now 73 and have had no problems with fractures but I did develop kyphosis (forward curvature of the upper spine) and a little scoliosis previous to the celiac diagnosis which, of course, are irreversible. I have some occasional problems with nerve impingement in the neck as a result of the original demineralization but all in all, not as many problems as I expected. At least to this point. I do some modest weight lifting pretty regularly so I think that has helped restrengthen my bones.  My experience may not be normative, however, and there is also the difference between male and female hormones and their effect on bone health. Found this: https://www.drugs.com/tips/alendronate-patient-tips
    • marion wheaton
      Osteoporosis

      By marion wheaton · Posted

      They are concerned about the GI side effects and malabsorption of the medication. 
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