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Lions31

Neuropathy still after 4 months gluten-free.. help

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2 hours ago, Chris H said:

Sadly my nerve pain has gone back to where it was 9 months ago. With really slight numbness in my left toe. Since quitting gluten I haven’t felt the numbing of my toe. I’m getting a food intolerance test next Thursday. My diet is so strict I don’t know where I’m going wrong. But something is definitely affecting my nerves, not as bad as gluten does but it definitely affects them. I’m hoping it’s just a setback. Feel like I’m so close but so far away. 

My nerve issues come back with that slightly numbness with even the tiniest amount of CC, a whole foods diet makes it happen less often, and screening products I use seeing if they use shared facilities or if the company handles oats or gluten in ANY other product (bit of paranoia) I found a few other things.
Tiny microexposures (as I call them, not enough to flare gut issues but cause slight numbness) I have linked with heading to the grocery store (inhaled flour from that open aired bakery?) or not washing produce from said grocery store. Few times a shared facility issue, or a case of me not washing my hands before taking meds, mints, gum, etc.

The intolerance testing things are a bit wonky and not always accurate or used to be anyway. I went through all that stuff years ago and it was a waste of money. The list was hit and miss and I got a better idea by keeping a food diary and rotating foods off for a week then trying 1  day off for a few days and recording the issues. Takes forever but way more accurate. Go down to eating 2-3 foods only no spices, seasonings etc. the  do the changing 1 out or adding 1 in for a day. Lot less guessing.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Have you ever had an MRI?  How is your spine?  A compression fracture can cause traveling nerve pain (like sciatica).  I had lots of numbness due to compression fractures (osteoporosis) due to undiagnosed celiac disease.  My pain and numbness eventually went away but can reappear when I use my back incorrectly.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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