Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

PTSD and Gluten


Gluten.Solutions

Recommended Posts

Gluten.Solutions Newbie

PTSD AND GLUTEN

I was labelled with PTSD early 2006 after living with many traumas in my life. In 1969 age 14 my father took over the family shop in Tigers Bay Belfast when "The Troubles" actually meant real violence. I saw and experienced human suffering and death by soldiers and communities, hearing and watching glowing tracer bullets screaming overhead as I choked on the diluted cloud of CS gas was the least of it, this left a lasting impression on my soul. I married and began 25 years of violence, mental and physical, at the hands of my partner who was diagnosed as bi-polar spending extended periods in a secure unit. My eldest son was knocked down aged 7 and left seriously brain damaged. My mind dissolved now that I was nursing 2 very ill family members and I was now a private detective dealing with the worst underbelly of society. Now escapism presented itself in crime which resulted in 2 years in prison. I divorced and went on a 5 year cocaine filled adventure and becoming quite famous and in the media very often, google me!! This led to the wrong people noticing me and trying to kill me several times after beating me with guns, baseball bats etc.
I ran away to a weird existence in London then came back to Belfast to be with my family but sadly my disabled son passed with a grand mal seizure. 
I was prescribed all the anti depressants, pain killers, sleepers bla bla, did the CBT, lived in the dark jumping at every little sound unable to sleep and crap at being awake as anger confusion and desperation was my life.
I discovered 2 things which have significantly improved my life and helped me control PTSD to the extent that I now, at last have a normal life.

I married Tanya Dowey and this amazing girl accepted me when I was broken, knowing all my strange past and has supported me without question helping me find my way through the darkness.

I gave up eating gluten and this has had a dramatic affect on every aspect of my physical and mental health.
I sleep without nightmares without flashbacks. The constant pain in my joints/muscles has decreased. My mind is clear and I can think again. I can venture out into the world and meet people again. I lost 45 kg in weight.

This is a quick version of how Gluten free living and the love of an amazing girl has helped me.

10363652_759084460778343_8438195253002686061_n.webp

17352507_165329760651788_622529351776081100_n.webp

Link to comment
Share on other sites
  • 11 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

This is an amazing story--congratulations on your road to recovery!

Unfortunately the majority of those with celiac disease are still undiagnosed, even though the devastating effects on the nervous system in many gluten sensitive individuals are now well known.

The saddest part of the story is that it took so long for you to figure it out, but better late than never!

Link to comment
Share on other sites
  • 8 months later...
Awol cast iron stomach Experienced
On 2/25/2018 at 6:54 AM, Gluten.Solutions said:

PTSD AND GLUTEN

I was labelled with PTSD early 2006 after living with many traumas in my life. In 1969 age 14 my father took over the family shop in Tigers Bay Belfast when "The Troubles" actually meant real violence. I saw and experienced human suffering and death by soldiers and communities, hearing and watching glowing tracer bullets screaming overhead as I choked on the diluted cloud of CS gas was the least of it, this left a lasting impression on my soul. I married and began 25 years of violence, mental and physical, at the hands of my partner who was diagnosed as bi-polar spending extended periods in a secure unit. My eldest son was knocked down aged 7 and left seriously brain damaged. My mind dissolved now that I was nursing 2 very ill family members and I was now a private detective dealing with the worst underbelly of society. Now escapism presented itself in crime which resulted in 2 years in prison. I divorced and went on a 5 year cocaine filled adventure and becoming quite famous and in the media very often, google me!! This led to the wrong people noticing me and trying to kill me several times after beating me with guns, baseball bats etc.
I ran away to a weird existence in London then came back to Belfast to be with my family but sadly my disabled son passed with a grand mal seizure. 
I was prescribed all the anti depressants, pain killers, sleepers bla bla, did the CBT, lived in the dark jumping at every little sound unable to sleep and crap at being awake as anger confusion and desperation was my life.
I discovered 2 things which have significantly improved my life and helped me control PTSD to the extent that I now, at last have a normal life.

I married Tanya Dowey and this amazing girl accepted me when I was broken, knowing all my strange past and has supported me without question helping me find my way through the darkness.

I gave up eating gluten and this has had a dramatic affect on every aspect of my physical and mental health.
I sleep without nightmares without flashbacks. The constant pain in my joints/muscles has decreased. My mind is clear and I can think again. I can venture out into the world and meet people again. I lost 45 kg in weight.

This is a quick version of how Gluten free living and the love of an amazing girl has helped me.

10363652_759084460778343_8438195253002686061_n.webp

17352507_165329760651788_622529351776081100_n.webp

What a great love story. 

Link to comment
Share on other sites
Awol cast iron stomach Experienced

I know this is an old thread and clearly the author experienced trauma. I am glad he has a wonderful life now and gluten-free has improved it.

I do want to add, I hope researchers will in time (as Scott/ admin points out) look into the effect celiac/ NCGS gluten has on the nervous system of those with the conditions .

In my opinion, it is possible some people may be misdiagnosed for trauma related or mood disorders when in actuality they are undiagnosed Celiac's or NCGS with autonomic dysfunctions occuring due to immune system attacking the nervous system, leading to further delay of the primary cause and potentially more damage occuring to the cns- particularly ans.

Neurological issues maybe occuring due to a viscous trifecta of inflammation in the brain, attacks of the immune system on the nerves/ans, and the gi lining that when healthy provides serotonin when damaged does not.

This is not meant to minimize or upset people who have experienced trauma or have Co morbid conditions. I also do not wish to insult mental health care workers and researchers.

I truly hope to request researchers, neurologists, and psychology field members to not overlook the role gluten/celiac may play.

As treatment for trauma may help in the short term to alleviate symptoms, the long term effects of not testing for gluten's damage to the cns- ans is a high price to pay if delayed or not discovered at all.

 

 

 

 

Link to comment
Share on other sites
GFinDC Veteran

More research would be great AWOL-CIS.  There is a great opportunity IMHO for researchers to learn more about vitamin/mineral effects in the human body by studying celiacs.  Another aspect of nerve damage besides immune attack is lack of B vitamins and trace minerals.  But you are right, a lot more could be learned about it all.

Link to comment
Share on other sites
Awol cast iron stomach Experienced
13 hours ago, GFinDC said:

More research would be great AWOL-CIS.  There is a great opportunity IMHO for researchers to learn more about vitamin/mineral effects in the human body by studying celiacs.  Another aspect of nerve damage besides immune attack is lack of B vitamins and trace minerals.  But you are right, a lot more could be learned about it all.

I whole heartily agree, and watch my b's too. 

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
×
×
  • Create New...