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Jenna1028

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  1. I’ve seen some other threads on this topic, but was wondering if anyone has tried laser treatments, and|or peels, for scarring? I live in Florida where it’s tank top and short season 10 months out of the year. So it’s hard to cover up - also hard to be comfortable in long sleeves and pants when I want to itch, but that’s another topic. I hate ev...
  2. If you have genetic markers from both parents - you definitely have celiac. In my case, both parents have both markers. Genetically speaking, there was no way out for me. If a person has one marker from their mother, and the same marker is absent in the father, then they have a 50/50 chance of ever developing Celiac. Their habits and lifestyle will decide...
  3. I'm tired all the time. I only discovered that I have celiac a few months ago, and I feel like all I do is sleep. And if I'm not asleep, then I wish I was asleep. Decorating for Christmas this year has been exhausting. My friend has an autoimmune disease, and we were talking about how tired we always are. But we both noticed that it seems like we're...
  4. I think everyone should get a DNA test. Blood tests are not 100% reliable. Not to mention with DNA testing, you learn so many other things about your health. And DNA is the future. Lab work, though useful for many things, does not appear to be as helpful, or as reliable as DNA, with diagnosing so many autoimmune issues. I was adopted, so I did...
  5. Hello! And thank you for your reply! For me, I had genetic testing done and that's how the Celiac was discovered. Given that I have an allergy to wheat, I have been very careful to not consume foods with wheat for the last fifteen years. I thought I was careful about products, as well, but as it turns out I wasn't. I am now using an app "SkinSafe" its...
  6. My (adopted) mom would get those. I am convinced she had undiagnosed celiac... I found out fifteen years ago that I'm allergic to wheat, so I never eat oats just because it seemed like they were somehow related (even though everyone said they weren't - and thank God, because it seems to be like you said...) Also they're often processed in facilities...
  7. I can attest to this. I have zero gut symptoms, aside from a lifelong battle with constipation. Since I was a child, I’ve had a rash of one kind or another, and feel this was my body’s way of coping with celiac. Also, when I had a recent DNA test done, they found I was slow to metabolize, which my doctor said is another DNA marker they keep see...
  8. I'm in the middle of a DH outbreak, and I've been home reading (and reading, and reading, and reading), medical studies and journals, and doing patient research for a few weeks now. Everything I've read, suggests that patients themselves take to eating gluten when on Dapsone - not because this is recommended, or safe - if recommended, but because patients...
  9. Thank you for your response! I took your advice and started going through everything in my house. I threw out anything skeptical, and I've been doing a detox. I also found an app (skinsafe.com) for makeup, hair care, etc., and I have found that several brands of my hair products, as well skincare products, have gluten. As of now, my skin seems...
  10. Hi Everyone! So I'm new around here, and a sufferer of Celiac/DH. I found an app + website called SkinSafe.com and its been very helpful. It lists the allergens + ingredients of each product. I've been suffering for months with a DH outbreak and couldn't figure out why - thinking I had removed all gluten sources entirely, I started looking to my...
  11. Not sure if anyone is still following this thread - but according to the manufacturer, immodium is not gluten free, and never has been.
  12. So I'm convinced I've had Celiac and DH since I was a kid. That said, I've never had a DH rash this bad. It's horrible. I am wondering - now that I've had a rash this bad - will it always be this bad? Am I now more sensitive to gluten then perhaps I was before this more intense rash? And how long does it keep spreading and getting worse, before...
  13. I would have them keep an eye on your hormone levels - especially your progesterone levels. With celiac, the hormone levels get all screwy and out of whack. And low progesterone is one of the leading causes of miscarriage, and often goes undiagnosed. I have celiac, and I'm convinced my mother had it as well. She, like you, had several miscarriages...
  14. I'll look into the diet! I currently have a major DH rash - the worst of my life! So I'm trying everything. I only recently realized this is DH. I've seen so many doctors over the years and no one ever figured it out. (Which seems to be the norm around here). So frustrating. So one thing worth mentioning - I was a landscape designer for years. I...
  15. You should get tested. Celiac has over 200 symptoms, and each person can present differently. From my understanding, testing while still consuming some amount of gluten is the best way to detect it. But also some people have been tested and will show negative, even though all their symptoms point to positive. Does anyone in your family...
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