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SeaOats

Perplexed at what's going on....

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I found this board through various searches for the last few weeks as I was trying to figure out what was going on with my digestion. I've been lactose intolerant for the last 12 yrs or so and occasionally had heartburn. I went on and off Prilosec since 2006 when I had a bad attack of GERD. Everything was fine up until around June 2017 when I was getting bad gas and I determined it was chicken ... narrowing it down by taking it out of my diet  then reintroducing it various times. I totally cut out eating that and stuck to fish. I'd been dealing with a constant stuffed up nose the past year or so and headaches daily the last 6 yrs and was taking 1-4 Excedrin a day for the last 5 yrs or so. I realized this was not good and started to cut back to one pill then half a pill but at times that wasn't enough to kill the pain. Not one single morning went by when I didn't have a headache nor a stuffed up nose. I would use nasal sprays off and on as well so I could at least breathe. I also felt tired a lot but I can recall most of my life feeling tired mid afternoon but by 6pm I was ready to take a nap most nights. On weekends when not working I'd take a nap once during the afternoon or early evening. I woke up almost every morning never feeling rested as well ...groggy for the first 10 minutes and just not wanting to get up.  I made an appt to see my doctor last May to see if something was going on as far as the tiredness and just feeling off. She did a blood test and everything was fine except Vitamin D which was low when I had my physical for work. I started taking Vitamin D again and had been taking b-12 which I was also low on in the past. I also had numbness in my hands one day at work in the middle of the day for no reason as well as one foot as if I'd had no circulation...the typical "laying on hands" during the night feeling. I only had that a couple times and never thought of it again. So about late summer or so I started having a dull pain right underneath my ribcage in the middle (top of stomach). It came and went for days or weeks. I also started hiccuping alot but no heartburn at all. Symptoms  then got bad to where I had a stomach or abdomen ache for the lack of a better term off and on and it felt like I had rotting carcasses in my intestines. Its the feeling I get when I've had lactose which usually results in loose bowels but just the normal one time a day as I always have. Most of December and Jan I dealt with what I call "Death gas"....like something died inside of me and thankfully no one was much around me. I could always eat some dairy in the past with only loose bowels as the result but now it was the death gas. I had the pain in my abdomen every day and the gas just got more frequent and like clockwork it was usually 5 hours after I'd eaten anything.  Sweet potatoes bothered me, white potatoes....the list just went on.  The fish that I could eat so easily before with no gas was now giving me the death gas. I'd omitted almost everything I was taking in thinking it was the culprit....vitamins, margarine, anything and everything that was "newish" to my diet but nothing helped.  I thought maybe I had leaky gut and started taking probiotics but 4x the amount as I read the amount on the bottles were for people that didn't have issues. But it wasn't helping and I just felt worse.  I made an appt to see the doctor and she couldn't figure it out and referred me to a GI doctor. When I came home I was so disappointed and scared because I just wanted relief.  I decided to do more research as I waited for the GI to call me back. I stumbled upon Gluten Intolerance which I'd read about before but I came onto a different site which listed the "tingling hands" symptom and I remembered Id had that before. So I stopped eating gluten and the next day I felt so much better. The pain under my ribs had alleviated and by day 4 I felt like my old self....something I hadn't felt in months. Someone at work recommended I start taking the probiotics again so I did but was leery as they gave me such trouble before. I took the recommended amount though this time and by evening the stomach ache returned. Next day I woke up with the pain and had it all day. Day 3 same and I decided to read the ingredients in the probiotics and it said "contains wheat" UGHHHH.  And I know why the fish started bothering me as well...I had just started to put flour on it to make it crispy when frying :(.  I threw out the probiotics and it seemed to take a couple days till the stomach ache went away and gas.  Well I finally got an appt with GI doctor but by that time a 1.5 weeks later I was feeling pretty good having been off Gluten for about 2 weeks. I still had some tenderness in the middle below my ribs but not the radiating icky feeling I had under there in the past.  She scheduled me for a blood test which I have to get tomorrow and and endoscopy/colonostomy which I had to postpone due to insurance issues I'm working on and getting off work for the procedure.  All has been pretty good since now as it's been 3 weeks I was off Gluten but I did have a breaded crab cake sandwich a few days ago so it'll show up in the blood test as she recommended.  I didnt really have any stomach problems after wards . I still have some cramping and gas but man NOTHING like before. I was tooting ALL DAY long and it was the death kind. Now it's just a few times a day which was normal. However Ive started burping alot at times which I didnt . I also bought some Gluten Free Pretzels at Aldi's which seemed to not agree with me. I also had Ronzoni Gluten Free Pasta and I felt bloated within an hour of eating it and then had gas hours after. I tried brown rice pasta and got bloated and gassy from that. I'd read the Gluten Free things can at times give people issues but I dont know what ingredient in it that is the problem. I also dont know if the stomach issues I have now are from the pretzels or the sandwich I had 4 days ago. I don't seem to have the problems those with Celiac have that I've read and I'm starting to think it's not that (which I'll be tested for) and that this a gluten problem with other things mixed in that bother me such as corn? I never had an issue with corn except some gas I think? I just dont recall any major issues....if it's a gluten allergry I believe it is from taking the NSAID's all this time. This is what I just don't know...is it leaky gut? I never have to run to the bathroom ...nothing runs through me at all. Sorry for the long post but I figured I should tell everything so maybe someone can shed some light. I forgot to say that I was able to eat chicken again last week with no death gas but I dont want to have too much for fear of not allowing my intestines to heal. Ive been eating fish, fruits and veggies for the last 3 weeks except for the pretzels and pasta. Oh and the headaches have gone away except for today...one day after I tried the pretzels again and my nose was slightly stuffed in the morning. But other then today I've not had a headache for 3 weeks and no stuffed up nose. I just wondered how long till the stomach aches, gas and icky feeling go away. I was feeling pretty good and normal till last night :(

Edited by SeaOats

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Well I figured I'd reply to my own topic. Strange no one had any insight on it but shortly after I posted this things calmed down. My tests came back no abnormalities...so it showed nothing wrong. I believe I have leaky gut from low stomach acid from taking the Excedrin for so long. I'm doing 85-90% better since I posted this. I haven't had that terrible pain under my ribs for awhile now and have felt pretty normal. The last couple weeks however I've had some intestinal flare ups again but nothing bad and not sure if it's because I started eating peanut butter again or not. I bought two diff brands in the last month+ that do not contain any soybean oil as the Aldi brand had which I thought was irritating me. My stomach and intestines rumble shortly after eating or drinking anything which is what it did before I stopped the gluten/soy. I still think I have low stomach acid going on as the last week or so after eating chicken I feel bloated within an hour and gas starts up but nothing as  bad as it used to be. I ordered some Betaine HCL and waiting for that to arrive to see if that helps. I also had a little bit of non dairy creamer (which yes I know has caseine) a few times the last couple days to see if I was able to handle it and was fine but maybe this recent flare up is caused by that and the peanut butter. I used to have gas from red/yellow bell pepper but have been able to have some here and there with no issues so I added some to my salads the last few times. That could be the problem too...maybe it's all those things together creating the flare up? Very unsure but I haven't had any peanut butter in the last couple days. If anyone has any thoughts please comment and thanks

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On 3/1/2018 at 7:42 PM, SeaOats said:

I found this board through various searches for the last few weeks as I was trying to figure out what was going on with my digestion. I've been lactose intolerant for the last 12 yrs or so and occasionally had heartburn. I went on and off Prilosec since 2006 when I had a bad attack of GERD. Everything was fine up until around June 2017 when I was getting bad gas and I determined it was chicken ... narrowing it down by taking it out of my diet  then reintroducing it various times. I totally cut out eating that and stuck to fish. I'd been dealing with a constant stuffed up nose the past year or so and headaches daily the last 6 yrs and was taking 1-4 Excedrin a day for the last 5 yrs or so. I realized this was not good and started to cut back to one pill then half a pill but at times that wasn't enough to kill the pain. Not one single morning went by when I didn't have a headache nor a stuffed up nose. I would use nasal sprays off and on as well so I could at least breathe. I also felt tired a lot but I can recall most of my life feeling tired mid afternoon but by 6pm I was ready to take a nap most nights. On weekends when not working I'd take a nap once during the afternoon or early evening. I woke up almost every morning never feeling rested as well ...groggy for the first 10 minutes and just not wanting to get up.  I made an appt to see my doctor last May to see if something was going on as far as the tiredness and just feeling off. She did a blood test and everything was fine except Vitamin D which was low when I had my physical for work. I started taking Vitamin D again and had been taking b-12 which I was also low on in the past. I also had numbness in my hands one day at work in the middle of the day for no reason as well as one foot as if I'd had no circulation...the typical "laying on hands" during the night feeling. I only had that a couple times and never thought of it again. So about late summer or so I started having a dull pain right underneath my ribcage in the middle (top of stomach). It came and went for days or weeks. I also started hiccuping alot but no heartburn at all. Symptoms  then got bad to where I had a stomach or abdomen ache for the lack of a better term off and on and it felt like I had rotting carcasses in my intestines. Its the feeling I get when I've had lactose which usually results in loose bowels but just the normal one time a day as I always have. Most of December and Jan I dealt with what I call "Death gas"....like something died inside of me and thankfully no one was much around me. I could always eat some dairy in the past with only loose bowels as the result but now it was the death gas. I had the pain in my abdomen every day and the gas just got more frequent and like clockwork it was usually 5 hours after I'd eaten anything.  Sweet potatoes bothered me, white potatoes....the list just went on.  The fish that I could eat so easily before with no gas was now giving me the death gas. I'd omitted almost everything I was taking in thinking it was the culprit....vitamins, margarine, anything and everything that was "newish" to my diet but nothing helped.  I thought maybe I had leaky gut and started taking probiotics but 4x the amount as I read the amount on the bottles were for people that didn't have issues. But it wasn't helping and I just felt worse.  I made an appt to see the doctor and she couldn't figure it out and referred me to a GI doctor. When I came home I was so disappointed and scared because I just wanted relief.  I decided to do more research as I waited for the GI to call me back. I stumbled upon Gluten Intolerance which I'd read about before but I came onto a different site which listed the "tingling hands" symptom and I remembered Id had that before. So I stopped eating gluten and the next day I felt so much better. The pain under my ribs had alleviated and by day 4 I felt like my old self....something I hadn't felt in months. Someone at work recommended I start taking the probiotics again so I did but was leery as they gave me such trouble before. I took the recommended amount though this time and by evening the stomach ache returned. Next day I woke up with the pain and had it all day. Day 3 same and I decided to read the ingredients in the probiotics and it said "contains wheat" UGHHHH.  And I know why the fish started bothering me as well...I had just started to put flour on it to make it crispy when frying :(.  I threw out the probiotics and it seemed to take a couple days till the stomach ache went away and gas.  Well I finally got an appt with GI doctor but by that time a 1.5 weeks later I was feeling pretty good having been off Gluten for about 2 weeks. I still had some tenderness in the middle below my ribs but not the radiating icky feeling I had under there in the past.  She scheduled me for a blood test which I have to get tomorrow and and endoscopy/colonostomy which I had to postpone due to insurance issues I'm working on and getting off work for the procedure.  All has been pretty good since now as it's been 3 weeks I was off Gluten but I did have a breaded crab cake sandwich a few days ago so it'll show up in the blood test as she recommended.  I didnt really have any stomach problems after wards . I still have some cramping and gas but man NOTHING like before. I was tooting ALL DAY long and it was the death kind. Now it's just a few times a day which was normal. However Ive started burping alot at times which I didnt . I also bought some Gluten Free Pretzels at Aldi's which seemed to not agree with me. I also had Ronzoni Gluten Free Pasta and I felt bloated within an hour of eating it and then had gas hours after. I tried brown rice pasta and got bloated and gassy from that. I'd read the Gluten Free things can at times give people issues but I dont know what ingredient in it that is the problem. I also dont know if the stomach issues I have now are from the pretzels or the sandwich I had 4 days ago. I don't seem to have the problems those with Celiac have that I've read and I'm starting to think it's not that (which I'll be tested for) and that this a gluten problem with other things mixed in that bother me such as corn? I never had an issue with corn except some gas I think? I just dont recall any major issues....if it's a gluten allergry I believe it is from taking the NSAID's all this time. This is what I just don't know...is it leaky gut? I never have to run to the bathroom ...nothing runs through me at all. Sorry for the long post but I figured I should tell everything so maybe someone can shed some light. I forgot to say that I was able to eat chicken again last week with no death gas but I dont want to have too much for fear of not allowing my intestines to heal. Ive been eating fish, fruits and veggies for the last 3 weeks except for the pretzels and pasta. Oh and the headaches have gone away except for today...one day after I tried the pretzels again and my nose was slightly stuffed in the morning. But other then today I've not had a headache for 3 weeks and no stuffed up nose. I just wondered how long till the stomach aches, gas and icky feeling go away. I was feeling pretty good and normal till last night :(

Welcome!  

Oh no!  Did you tell the GI that you were already gluten free?  All celiac testing, be it a blood test to check for antibodies or an endoscopy to obtain intestinal biopsies,  requires you to be on a full gluten diet.  In as little as two weeks you can heal the gut. This usually is not common, but possible.  So, if you receive a negative result, discuss this with your GI.  You may need to retest after going back on gluten.  

Learn more:

http://www.cureceliacdisease.org/screening/

 

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1 hour ago, SeaOats said:

Well I figured I'd reply to my own topic. Strange no one had any insight on it but shortly after I posted this things calmed down. My tests came back no abnormalities...so it showed nothing wrong. I believe I have leaky gut from low stomach acid from taking the Excedrin for so long. I'm doing 85-90% better since I posted this. I haven't had that terrible pain under my ribs for awhile now and have felt pretty normal. The last couple weeks however I've had some intestinal flare ups again but nothing bad and not sure if it's because I started eating peanut butter again or not. I bought two diff brands in the last month+ that do not contain any soybean oil as the Aldi brand had which I thought was irritating me. My stomach and intestines rumble shortly after eating or drinking anything which is what it did before I stopped the gluten/soy. I still think I have low stomach acid going on as the last week or so after eating chicken I feel bloated within an hour and gas starts up but nothing as  bad as it used to be. I ordered some Betaine HCL and waiting for that to arrive to see if that helps. I also had a little bit of non dairy creamer (which yes I know has caseine) a few times the last couple days to see if I was able to handle it and was fine but maybe this recent flare up is caused by that and the peanut butter. I used to have gas from red/yellow bell pepper but have been able to have some here and there with no issues so I added some to my salads the last few times. That could be the problem too...maybe it's all those things together creating the flare up? Very unsure but I haven't had any peanut butter in the last couple days. If anyone has any thoughts please comment and thanks

So sorry, sometimes postings just go unnoticed.  What did you doctor advise?  Was he aware that you had gone gluten free?  

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Well I would see about getting a actual celiac panel if you can stomach the gluten challenge like cylcing lady said.

Other thoughts common with celiac and that sort of sets of a flag with what I am seeing is SIBO or Candida. Both can cause the gas and bloating with carbs. There are treatments and diet to fix them and it can take a few months. Basically you have to starve off the culprits with a low/no carb diet for a few months while taking supplements to regulate them like Candida FX and probiotics like Natures Way Fortify (gluten-free) Do some research and see if either SIBO or Candida match with your other symptoms.

Tingling hands can be a B-vitamin issues and you need to take the full spectrum of b-vitamins not just 12 as they work together. I use Liquid Health Stress & Energy and Liquid Health Neurological Support 1 tbsp each 3 times a day. THIS can also be a Magnesium issue, another common problem with celiacs ESPECIALLY if your on proton pump blockers for acid reflux. Depending on symptoms depends on what form you need. If you have constipation you need Natural Vitality Calm which is Magnesium Citrate start off 1/4tsp (1-2g) a day and over a week or so slowly up it 1-2grams or 1/4 tsp at a time til full dose OR you get loose stools then back it back down dosing to tolerance.  IF you have loose stools or now issues with bowl go with Doctors Best Powder Magnesium Glycinate and just take it as it suggest. I found taking it at night before bed really helped me to sleep like a log and works best.

Food intolerance issues come and go, and in some cases can even be related to the enzymes, again PPI for acid reflux and having a higher PH can make them less effective so your taking the right route with the HCL already.
https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
https://www.celiac.com/forums/topic/119919-digestive-enzymes/

 

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10 hours ago, cyclinglady said:

Welcome!  

Oh no!  Did you tell the GI that you were already gluten free?  All celiac testing, be it a blood test to check for antibodies or an endoscopy to obtain intestinal biopsies,  requires you to be on a full gluten diet.  In as little as two weeks you can heal the gut. This usually is not common, but possible.  So, if you receive a negative result, discuss this with your GI.  You may need to retest after going back on gluten.  

Learn more:

http://www.cureceliacdisease.org/screening/

 

At the time I visited the GI doctor I'd only been off Gluten for 2 weeks and did tell her that. She said it wasn't long enough for an inaccurate test result and suggested as well that I eat a bit of gluten before the test which I did.

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8 hours ago, Ennis_TX said:

Well I would see about getting a actual celiac panel if you can stomach the gluten challenge like cylcing lady said.

Other thoughts common with celiac and that sort of sets of a flag with what I am seeing is SIBO or Candida. Both can cause the gas and bloating with carbs. There are treatments and diet to fix them and it can take a few months. Basically you have to starve off the culprits with a low/no carb diet for a few months while taking supplements to regulate them like Candida FX and probiotics like Natures Way Fortify (gluten-free) Do some research and see if either SIBO or Candida match with your other symptoms.

Tingling hands can be a B-vitamin issues and you need to take the full spectrum of b-vitamins not just 12 as they work together. I use Liquid Health Stress & Energy and Liquid Health Neurological Support 1 tbsp each 3 times a day. THIS can also be a Magnesium issue, another common problem with celiacs ESPECIALLY if your on proton pump blockers for acid reflux. Depending on symptoms depends on what form you need. If you have constipation you need Natural Vitality Calm which is Magnesium Citrate start off 1/4tsp (1-2g) a day and over a week or so slowly up it 1-2grams or 1/4 tsp at a time til full dose OR you get loose stools then back it back down dosing to tolerance.  IF you have loose stools or now issues with bowl go with Doctors Best Powder Magnesium Glycinate and just take it as it suggest. I found taking it at night before bed really helped me to sleep like a log and works best.

Food intolerance issues come and go, and in some cases can even be related to the enzymes, again PPI for acid reflux and having a higher PH can make them less effective so your taking the right route with the HCL already.
https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
https://www.celiac.com/forums/topic/119919-digestive-enzymes/

 

thanks for the reply. I was wondering about SIBO or Candida as well but I didn't seem to have all the symptoms. I have been off the PPI since about August or Sept and started taking the B-12 and D again just within the last month or so. I really haven't had constipation thankfully. I also did not have the D yet it was not normal. I'd say loose like sticky... sorry for this info :(....but the last couple weeks everything was back to maybe October when things were more normal. Today though it was back to the loose sticky stuff :( which I guess correlates to the flare up symptoms. I'll look into the other things you suggested which I appreciate. I'm glad to know about the food intolerances coming and going. I  guess because things have been going so well that maybe I had turned the big corner and on my way to being normal fast but I see it's going to take a lot longer. I noticed that the tiredness had came back we well the last week. I found myself needing to take naps midday on the weekends when I was home and feeling so tired most days. I felt like I got only a few hours of sleep when I was getting 7-8. I also was under a severe amount of stress late summer into winter with horrible horrible new tenants in the apartment below me which I think gave all this a stiff kick into high gear....just compounding what was already there .

As far as getting another panel done I don't think I can tolerate any gluten in order to do that. I had bought a small bag of Pumpkin seeds as I read that was a good snack to have a couple weeks ago when I went on a weekend trip with a friend. I read the package to make sure it didn't have any soy or wheat in it. Well shortly after I had some in the car on the trip I started getting stomach pains so I checked the bag again and read processed on same equipment as foods with soy, wheat and milk products. My stomach was not good for the weekend :(. 

Today was a better day and no bad gas thankfully. I guess it was "normal".  As soon as I would feel a rumbling I'd look to see if I made it past the 1-2 hr mark after eating. I have to keep telling myself having gas is normal it's just that having it so bad for so long I just think the first hint or any gas is going to bring about Armageddon :(  I have not had peanut butter or peppers today either as I'm trying to figure out which is causing the return of some of the symptoms.

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7 hours ago, SeaOats said:

thanks for the reply. I was wondering about SIBO or Candida as well but I didn't seem to have all the symptoms. I have been off the PPI since about August or Sept and started taking the B-12 and D again just within the last month or so. I really haven't had constipation thankfully. I also did not have the D yet it was not normal. I'd say loose like sticky... sorry for this info :(....but the last couple weeks everything was back to maybe October when things were more normal. Today though it was back to the loose sticky stuff :( which I guess correlates to the flare up symptoms. I'll look into the other things you suggested which I appreciate. I'm glad to know about the food intolerances coming and going. I  guess because things have been going so well that maybe I had turned the big corner and on my way to being normal fast but I see it's going to take a lot longer. I noticed that the tiredness had came back we well the last week. I found myself needing to take naps midday on the weekends when I was home and feeling so tired most days. I felt like I got only a few hours of sleep when I was getting 7-8. I also was under a severe amount of stress late summer into winter with horrible horrible new tenants in the apartment below me which I think gave all this a stiff kick into high gear....just compounding what was already there .

As far as getting another panel done I don't think I can tolerate any gluten in order to do that. I had bought a small bag of Pumpkin seeds as I read that was a good snack to have a couple weeks ago when I went on a weekend trip with a friend. I read the package to make sure it didn't have any soy or wheat in it. Well shortly after I had some in the car on the trip I started getting stomach pains so I checked the bag again and read processed on same equipment as foods with soy, wheat and milk products. My stomach was not good for the weekend :(. 

Today was a better day and no bad gas thankfully. I guess it was "normal".  As soon as I would feel a rumbling I'd look to see if I made it past the 1-2 hr mark after eating. I have to keep telling myself having gas is normal it's just that having it so bad for so long I just think the first hint or any gas is going to bring about Armageddon :(  I have not had peanut butter or peppers today either as I'm trying to figure out which is causing the return of some of the symptoms.

Food diary helps finding culprits...I find it annoying, as with me sometimes it can be linked to a high histamine meal, or something being to rough on my gut. Some people have lectin issues. Like Almond fresh roasted no issue....roasted months ago issues....made into a butter not problem...I chew them issues and a paste issues. Really odd.

Anyway, for safe seeds check out mygerbs.com I buy their whole pumpkin seeds, whole hemp seeds, and shelled sunflower seeds often. I tend to make paste/butters out of them for ease of digestion and to get the nutrients.

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It sounds like you have several intolerances...I am Celiac...and I am Lactose Intolerant...corn and all grains bother me..I think you need your Ferritin levels checked..that's your iron stores..and where you were having your pain..could be your Gallbladder which goes hand in hand with Celiac as well..if you have it..I wouldnt go back on gluten.(continual diarrhea)...so no official diagnosis..but now see a GI and they are positive I have it..proof enough for me...gluten-free 6 Years and counting..I will never knowingly eat gluten again...GOODLUCK..and research is your friend!

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4 hours ago, Ennis_TX said:

Food diary helps finding culprits...I find it annoying, as with me sometimes it can be linked to a high histamine meal, or something being to rough on my gut. Some people have lectin issues. Like Almond fresh roasted no issue....roasted months ago issues....made into a butter not problem...I chew them issues and a paste issues. Really odd.

Anyway, for safe seeds check out mygerbs.com I buy their whole pumpkin seeds, whole hemp seeds, and shelled sunflower seeds often. I tend to make paste/butters out of them for ease of digestion and to get the nutrients.

I will start a food diary again. I was doing it before the GI visit as instructed and then she never even asked about it. I actually didn't find going to her of any use so I wont be going again. They didn't even return my phone calls so I could make my first appt :(. Good to know that you have similar issues with something being ok in certain forms but then not in different form. Thanks for the links as well....I will take a look.

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11 hours ago, lisas11lisa said:

It sounds like you have several intolerances...I am Celiac...and I am Lactose Intolerant...corn and all grains bother me..I think you need your Ferritin levels checked..that's your iron stores..and where you were having your pain..could be your Gallbladder which goes hand in hand with Celiac as well..if you have it..I wouldnt go back on gluten.(continual diarrhea)...so no official diagnosis..but now see a GI and they are positive I have it..proof enough for me...gluten-free 6 Years and counting..I will never knowingly eat gluten again...GOODLUCK..and research is your friend!

I had a reply all typed out and then the site was down for upgrades. Thanks for you reply and sorry to hear about your issues and the diagnosis taking so long. I haven't had that pain I mentioned in the first post now for 2 months or so thankfully but I believe it was my small intestine but I had thought the gallbladder but didn't seem to match up with what I read and what I was told by a few people that had gallbladder issues. I had done a good deal of research on this problem I've had which led me to this site where I did more research yet I could not ever find anything that totally matched up with my issues. I guess now I see it's basically different in some ways for each person. I had some bell pepper in my salad tonite for dinner to see if it was the culprit for the gas as of the last few nights and it seems it is. Now just a little over an hour later and the gas has started...not bad like before but it's there. I didn't have any last night and no issues. Now I'll give my digestive system a rest and try out the peanut butter in a few days. I think it's both that are bothering my system. I've not had any corn since February but did have some gluten free pasta which had rice flour and it bothered me :(

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I figured I'd give an update. Shortly after my last post I had a bad sinus infection but was only given prednisone which only made the congestion in my nose go away and some sinus pressure. I continued to feel worse with it pretty much developing into Bronchitis. I called the dr about it and they phone in a z-pac. I thought "well if I have SIBO" which I still wasn't sure of...." this will alleviate the off and on symptoms I had of mushy stools and icky feeling stomach. I would get that feeling whenever I had dairy for the last 9 yrs or so. Sure enough after I was done I felt like my old self. I did take probiotics while I was on the zpac which I hadn't taken for months since it only made things worse.  Everything finally returned to what it was before all this started. I felt so much better and "normal". I tried some aged cheese, brown rice and refried beans over the course of a couple weeks and was able to have those with absolutely no issues. For the next 1.5 months or so I felt great and better than before. I continued to take the probiotics twice a day as I did before and one day had a little stomach issue with some cramping. I then had some trail mix which had soy in it but I didn't really give it much thought and the next day my stomach was hurting pretty bad and worse than before it seemed. This lasted off and on for a week. Now the mushiness has returned and seems to be constant for the last week along with cramping. I'm guessing that the zpac killed off whatever it was I had...SIBO or Candida and now I've relapsed? Not sure but I'm going to call the doctor tomorrow to see if I can get some relief. I've also had some gas return as well.  I stopped taking the pribiotics thinking maybe that's making things bad again too since I wasn't on them before after I stopped gluten and soy and I didnt have this as much as I have now. I do take Gentian with Pepsin when I have protein and that seems to help as I don't have the gas I had way back.  It's so disheartening because I thought I figured out what was going on

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Maybe you should get your test results.  You might not have had the full celiac panel.  If my GI had not ordered the entire celiac panel, my diagnosis would have been missed.  

I am sorry that you are still struggling.  

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Not every GI is an expert in diagnosing celiac disease.  Most people with celiac disease are undiagnosed, because doctors don't recognize the various symptoms or they just don't believe a person has it, so they won't test for it.

It is sometimes a good idea to search for a celiac disease support group in your area.  Then you can ask them for the name of a GI that they recommend.

Most peanut butter has soy in it, except for the natural or organic kinds.  Same with chocolate, it almost always has soy in it.

Developing various food intolerances is a side effect of celiac disease IMHO.  Many forum members have additional food intolerances beyond just gluten.

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18 hours ago, cyclinglady said:

Maybe you should get your test results.  You might not have had the full celiac panel.  If my GI had not ordered the entire celiac panel, my diagnosis would have been missed.  

I am sorry that you are still struggling.  

Thanks for the kind thoughts. The test results I got back a few comments ago and I said what they were which was negative on everything. I just don't think it's celiac but something that created this domino affect. I plan on going to my regular doctor because honestly I feel the GI one was useless. When I told her back in Feb that I wasn't sure I'd be able to have the colostomy and endo she said "well then we won't be able to help you". ?

11 hours ago, GFinDC said:

Not every GI is an expert in diagnosing celiac disease.  Most people with celiac disease are undiagnosed, because doctors don't recognize the various symptoms or they just don't believe a person has it, so they won't test for it.

It is sometimes a good idea to search for a celiac disease support group in your area.  Then you can ask them for the name of a GI that they recommend.

Most peanut butter has soy in it, except for the natural or organic kinds.  Same with chocolate, it almost always has soy in it.

Developing various food intolerances is a side effect of celiac disease IMHO.  Many forum members have additional food intolerances beyond just gluten.

The peanut butter I bought was organic . I had looked at the Aldi brand which I never had any issues with and it had soy so that's why I looked for a brand that didn't have any soy. I haven't had chocolate since February either due to the soy. I hadn't eaten anything but fresh fruit, vegetables, Chicken or fish since mid Feb. I did have some dried fruit which I seemed ok with but now the last two days I've gotten gas from that :(. I did have prunes awhile back and they also gave me gas which never happened before. I rarely eat prunes as it as always done the opposite of what it commonly is used for .

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    Jefferson Adams
    Woman Calls Radio Show to Admit Lying About Gluten-Free Baked Goods
    Celiac.com 10/16/2018 - Apparently, local St. Louis radio station Z1077 hosts a show called “Dirty Little Secret.” Recently, a woman caller to the show drew ire from listeners after she claimed that she worked at a local bakery, and that she routinely lied to customers about the gluten-free status of baked goods.
    The woman said she often told customers that there was no gluten in baked goods that were not gluten-free, according to local tv station KTVI.
    Apparently the woman thought this was funny. However, for people who cannot eat gluten because they have celiac disease, telling people that food is gluten-free when it is not is about as funny as telling a diabetic that food is sugar-free when it is not. Now, of course, eating gluten is not as immediately dangerous for most celiacs as sugar is for diabetics, but the basic analogy holds.
    That’s because many people with celiac disease suffer horrible symptoms when they accidentally eat gluten, including extreme intestinal pain, bloating, diarrhea, and other problems. Some people experience more extreme reactions that leave them in emergency rooms.
    As part of a story on the “joke” segment, KTVI interviewed celiac sufferer Dana Smith, who found the punchline to be less than funny. “It’s absolutely dangerous, somebody could get very sick,” said Smith. 
    KTVI also interviewed at least one doctor, Dr. Reuben Aymerich of SSM St. Clare Hospital, who pointed out that, while celiac disease is “not like diabetes where you can reduce the amount of sugar intake and make up for it later, it’s thought you need to be 100 percent compliant if you can.”
    For her part, Smith sought to use the incident as a teaching moment. She alerted the folks at Z1077 and tried to point out how serious being gluten-free is for many people. Mary Michaels, owner of Gluten Free at Last Bakery in Maryville, Illinois, says it’s time people became more respectful.
    “I wouldn’t make fun of you if you had diabetes or a heart condition it’s kind of like that,” Michals said.
    We will likely never know if the radio station caller was telling the truth, or just putting listeners on. The Z1077 morning team did post a follow-up comment, which stated that they take celiac disease seriously, and that they did not intend to offend anyone. One host said his mom has celiac disease.
    It’s good to see a positive response from the radio station. Their prank was short-sighted, and the caller deserved to be called out on her poor behavior. Hopefully, they have learned their lesson and will avoid such foolishness in the future. Let us know your thoughts below.

    Jefferson Adams
    New Study Says One in Three 'Gluten-Free' Restaurant Foods Contain Gluten
    Celiac.com 10/15/2018 - If you’re on a gluten-free diet for medical reasons, then you’re probably already cautious about eating out. A new study tells us exactly why people with celiac disease and other gluten-sensitive conditions have reason to be very careful about eating out.
    According to the latest research, one in three foods sold as "gluten-free" in U.S. restaurants actually contain trace levels of gluten.
    This is partly due to the fact that the gluten-free diet has become popular with many non-celiacs and others who have no medical need for the diet. That has led many restaurants to offer gluten-free foods to their customers, says study author Dr. Benjamin Lebwohl, of Columbia University's Celiac Disease Center. 
    But, if this research is any indication, too many restaurants don’t do a good job with gluten-free. For the study, more than 800 investigators set out to assess the true gluten content of dishes listed as "gluten-free" on menus. Armed with portable gluten sensors, they tested for gluten levels that met or exceeded 20 parts per million, the standard cutoff for any gluten-free claim.
    Based on more than 5,600 gluten tests over 18 months, the investigators determined that 27 percent of gluten-free breakfast meals actually contained gluten. At dinner time, this figure hit 34 percent. The rise could reflect a steady increase in gluten contamination risk as the day unfolds, the researchers said.
    Off course, the risk is not all equal. Some restaurants are riskier than others. Unsurprisingly, the biggest culprit seems to be restaurants that offer gluten-free pastas and pizzas. Nearly half of the pizza and pasta dishes from those establishments contained gluten, according to the study.
    Why is that? Well, as most folks with celiac disease know all too well,  kitchens aren’t really set up to segregate gluten, and "sharing an oven with gluten-containing pizza is a prime setting for cross-contamination," says Lebwohl. Also, too many restaurants use the same water to cook gluten-free pasta as they do for regular pasta, which contaminates the gluten-free pasta and defeats the purpose.
    Moreover, although the U.S. Food and Drug Administration regulates gluten-free labels on packaged food products, there is currently no federal oversight of gluten-free claims in restaurants. 
    The results of the study will be presented today at a meeting of the American College of Gastroenterology, in Philadelphia. Research presented at meetings is usually considered preliminary until published in a peer-reviewed medical journal.
    In the absence of federal enforcement at the restaurant level, the burden for making sure food is gluten-free falls to the person doing the ordering. So, gluten-free eaters beware!
    These results are probably not surprising to many of you. Do you have celiac disease? Do you eat in restaurants? Do you avoid restaurants? Do you have special tactics?  Feel free to share your thoughts below.
    Read more at UPI.com

    Carol Fenster, Ph.D.
    Almost Homemade: Using Ready-Made Cereals and Crackers in Home Cooking
    Celiac.com 10/13/2018 - Two important principles sort of collided in my brain the other day.  One was the recent recommendation to increase our intake of whole grains based on the new food pyramid from the USDA.  The other was our interest in time-saving prepared foods to make dishes that are at least partially homemade.
    About the same time these two ideas were melding in my brain, I realized how many wonderful new gluten-free cereals and crackers are now on the market.  I wondered if we could boost our whole grain intake by using ready-made gluten-free cereals or crackers in home cooking.  While not all of the cereals and crackers are truly “whole” grain, most are only partially refined and still quite nutritious.
    So, here’s my idea: One of my favorite desserts is a fruit crisp.  You can make it any time of the year, using fruits in season (in my case, fruits that have sat on the kitchen counter past their prime, yet are still edible).  In the fall it might be apples.  Winter is perfect for pears.  I like stone fruits during summer, such as peaches, plums, or cherries.  Or, if you’re really desperate just open a can of whatever fruit appeals to you.
    Revving Up Your Home Cooking with Ready-Made Cereals 
    Here’s where the new cereals come in.  Prepare the fruit filling according to any fruit crisp recipe or use the recipe I provide here.  For the topping, I like to toss Nutty Rice or the new Nutty Flax cereal from Enjoy Life Foods with maple syrup (or honey, brown rice syrup, or agave nectar).  Add ground cinnamon to taste and then sprinkle it over the prepared fruit.  Spray with cooking spray and bake at 350°F until the fruit is done and the topping is browned. 
    Sometimes to speed things up, I microwave the covered fruit filling for 5-10 minutes on high, then uncover it, add the topping, and bake at 350°F for 15-20 minutes or until the fruit is soft and the topping is crisp and nicely browned.  I particularly like the Nutty Flax cereal because it uses both flax and sorghum for a nutritious combination.  Add extra spices such as 1/8 teaspoon each of nutmeg, allspice, or cloves for even more flavor.  
    I also like to use the granola from Enjoy Life Foods as the topping for these fruit crisps. It’s already sweetened and flavored, available in Cinnamon Crunch, Very Berry Crunch, and Cranapple Crunch.  All it needs is a little oil.  Of course, if you prefer, you can toss it with a little extra cinnamon plus some maple syrup (or honey, brown rice syrup, or agave nectar) to heighten the sweetness.  Add extra spices such as 1/8 teaspoon each of nutmeg, allspice, or cloves for even more flavor.  Sprinkle over filling and spray with cooking spray.
    You can also add about ½ cup of this granola to your favorite bran muffins, cookies, or quick breads.  The granola supplies a nice crunch and additional flavor and nutrients.  Depending on your recipe, you may need to add more liquid to compensate for the cereal.  
    Quinoa cereals by Altiplano Gold are packaged in individual serving packets, making them especially easy to incorporate into our baking.  They come in three flavors––Organic Oaxacan Chocolate, Spiced Apple Raisin, and Chai Almond––and just need boiled water to make a hot cereal.  Quinoa is a powerhouse of nutrients so I like to use the cereals in additional ways as well.
    Using the same concept for the fruit crisp above, I just sprinkle the Spiced Apple Raisin or Chai Almond dry cereal on the prepared fruit filling.  Since the cereal is already sweetened and flavored, it only needs a little cooking spray.  Bake at 350°F for 15-20 minutes.  If your fruit needs additional cooking time (such as apples) try the microwave method I discuss above.
    You can add ½ cup of the Chocolate flavor to a batch of chocolate brownies or chocolate cookies for added fiber and nutrients.  Depending on the recipe, you may need to add a little extra liquid to compensate for the cereal which counts as a dry ingredient. 
    Creative Uses of Crackers in Home Cooking
    New crackers by the whimsical name of Mary’s Gone Crackers are chock-full of fiber and nutrients.  They come in Original and Caraway flavors and are a nutritious treat by themselves.  I also take them with me on trips because they travel so well. 
    One creative way to use these crackers and appease your sweet tooth is to dip the whole Original-flavor cracker halfway into melted chocolate.  Ideally, let the chocolate-dipped crackers cool on waxed paper (if you can wait that long) or else just pop them into your mouth as you dip them.  You can also place a few crackers on a microwave-safe plate, top each with a few gluten-free chocolate chips and microwave on low power until the chips soften.  Let them cool slightly so the chocolate doesn’t burn your mouth.  These crackers also work great with dips and spreads. 
    Aside from dipping in chocolate, these crackers have additional uses in baking.  For example, finely crush the Original or Caraway flavor crackers in your food processor and use them as the base for a crumb crust for a quiche or savory tart.  The Original flavor would also work great as a replacement for the pretzels typically used for the crust in a margarita pie.  Just follow your crumb crust recipe and substitute the ground crackers for the crackers or pretzels. 
    The crackers have very little sugar, but the Original flavor will work as a crumb crust for a sweet dessert as well.  Again, just follow your favorite recipe which will probably call for melted butter or margarine plus sugar.  Press the mixture into a pie plate and bake at 350°F for 10 minutes to set the crust.  Fill it with a no-bake pudding, custard, or fresh fruit.
    The crushed crackers can also be added to breads and muffins for a fiber and nutrient boost.  Depending on how much you add (I recommend starting with ½ cup) you may need to add more liquid to the recipe.  
    I’ve just given you some quick ideas for ways to get more grains into your diet and streamline your cooking at the same time.  Here is an easy version of the Apple Crisp I discuss in this article.  I bet you can think of some other opportunities to make our gluten-free diet even healthier with wholesome cereals and crackers. 
    Carol Fenster’s Amazing Apple Crisp
    You may use pears or peaches in place of the apples in this easy home-style dessert. If you prefer more topping, you can double the topping ingredients. This dish is only moderately sweet; you may use additional amounts of sweetener if you wish. Cereals by Enjoy Life Foods and Altiplano Gold work especially well in this recipe. The nutrient content of this dish will vary depending on the type of fruit and cereals used.
    Filling ingredients:
    3 cups sliced apples (Gala, Granny Smith, or your choice) 2 Tablespoons juice (apple, orange)   2 Tablespoons maple syrup  (or more to taste) ½ teaspoon cornstarch  1 teaspoon vanilla extract ¼ teaspoon ground cinnamon ¼ teaspoon salt Topping ingredients:
    ¼ cup ready-made cereal ¼ cup gluten-free flour blend of choice ¼ cup finely chopped nuts 2 Tablespoons maple syrup  (or more to taste) 2 Tablespoons soft butter or margarine 1 teaspoon vanilla extract ¼ teaspoon ground cinnamon ¼ teaspoon salt Directions:
    1.  Preheat oven to 375F.  Toss all filling ingredients in 8 x 8-inch greased pan. 
    2. In small bowl, combine topping ingredients. Sprinkle over apple mixture. Cover with foil; bake 25 minutes. Uncover; bake another 15 minutes or until topping is crisp. Top with vanilla ice cream or whipped cream, if desired.  Serves 6.

    Jefferson Adams
    Nestlé Debuts Gluten-Free Snack Bar Line Called
    Celiac.com 10/12/2018 - Snack giant Nestlé has announced the debut of a new line of gluten-free snack bars called "Yes!"
    The bars are made with combinations of fruits, vegetables, and nuts, and will contain no artificial sweeteners, flavors, colors or preservatives. Some bars do contain added sugar, but those made with fruits and vegetables do not. 
    The bars come in five flavors: Delicious Beetroot & Apple; Lively Lemon, Quinoa & Chilli; Tempting Sea Salt Dark Choc & Almond; Sumptuous Cranberry & Dark Choc; Delightful Coffee; and Dark Choc & Cherry.
    Yes! bars will be available in UK and Ireland. All Yes! bars are suitable for vegetarians, while the fruit and vegetable versions are vegan-friendly.
    No word yet on whether Nestlé plans to bring Yes! bars to the U.S. any time soon. 

    Jefferson Adams
    Gluten-Free Halloween Candy List for 2018
    Celiac.com 10/11/2018 - Halloween is upon us once again, and that means it’s time for Celiac.com’s Safe Gluten-Free Halloween Candy list for 2018. This year, we’ve added candies to both the SAFE Gluten-Free Halloween Candy list, and to our UNSAFE Non-Gluten-Free Halloween Candy list. We’ve also added more manufacturer contact information to make getting answers to gluten-free questions easier.
    Taken together, we think it’s the best, most comprehensive and most up-to-date list of safe, gluten-free Halloween candies, and other candies to watch out for. 
    Below our SAFE, GLUTEN-FREE Halloween candy list, you will find a list of UNSAFE, NON–GLUTEN–FREE candies, along with a partial list of major candy makers, links to their company websites, and other resources.
    As always, Celiac.com strives to make the Safe Gluten-Free Halloween Candy List as comprehensive as possible, please keep in mind that the list is by no means complete, or definitive, and should only be used as a guideline. 
    Before eating any candy on the list, always read labels, check manufacturer information, and choose according to your own sensitivity levels, or those of your children. Feel free to comment below if you see any issues, or if you'd like us to take note of any information you may have about a product.
    Lastly, manufacturer information can change. That means that a product this is safely gluten-free at one point may suddenly be made with gluten ingredients. The opposite is also true, as many manufacturers are doing what they can to make products gluten-free when possible. That means it’s important to read labels, and check manufacturer websites for information on changes to any specific products.
    As always, Celiac.com wishes you and your loved ones a safe and happy gluten-free Halloween 2018!
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    Harrison's Original Fruit Slices Harrison's Original Fruit Smiles Heath milk chocolate English toffee bar and snack size — contains almonds Hershey's Air Delight Hershey’s - Baking Bars Hershey’s Semi Sweet Baking Bar  Hershey’s Unsweetened Baking Bar Hershey’s and Reese's - Baking Chips Hershey’s Butterscotch Chips Hershey’s Cinnamon Baking Chips Mini Kisses Milk Chocolates Hershey’s Milk Chocolate Chips Hershey’s Semi-Sweet Chocolate Mini Chips Hershey’s Mint Chocolate Chips Hershey’s Premier White Chips Hershey’s Semi-Sweet Chocolate Baking Chips Hershey’s Special Dark Mildly Sweet Dark Chocolate Chips Hershey’s Sugar Free Semi-Sweet Baking Chips Reese’s Peanut Butter Baking Chips Hershey’s - Cocoa Hershey’s Cocoa Hershey’s Special Dark Cocoa Hershey’s Kisses Hershey’s Hugs Candy Hershey’s Kisses Milk Chocolate Filled with Caramel Hershey’s Kisses Milk Chocolate Filled with Cherry Cordial Crème Hershey’s Kisses Filled with Vanilla Crème Hershey’s Kisses Dark Chocolate Filled with Mint Truffle Hershey’s Kisses Pumpkin Spice Flavored Candies Hershey’s Kisses Carrot Cake Flavores Candies Hershey’s Kisses Meltaway Milk Chocolates Hershey’s Kisses Milk Chocolate Hershey’s Kisses Special Dark Mildly Sweet Chocolate Hershey’s Kisses Deluxe Chocolates Hershey’s Nuggets Hershey’s Nuggets Milk Chocolates Hershey’s Nuggets Milk Chocolate with Almonds Hershey’s Nuggets Special Dark Chocolate with Almonds Hershey’s Nuggets Extra Creamy Milk Chocolate with Toffee and Almonds Hershey’s Milk Chocolate Bar (1.55oz only) Hershey’s Milk Chocolate Bar with Almonds (1.45oz only) Hershey’s Milk Duds – All Hershey’s Spreads – All Except Hershey’s Chocolate Spread with Snacksters Graham Dippers Hershey’s and Reese's Toppings Hot Tamales Hot Tamales Spray Hubba Bubba Gum Humphrey Popcorn Balls I
    Ice Cream Dipper (Blue Raspberry, Strawberry) J
    Jelly Belly beans—gluten–free, dairy–free Jolly Rancher hard candy and Doubles Candy Jolly Rancher Hard Candy Stix, Lollipops and Fruit Chews Jujy’s Junior Caramels Junior Mints Just Born Jelly Beans Just Born marshmallow treats Justin's Nut Butters dark chocolate peanut butter cups Justin's Nut Butters milk chocolate peanut butter cups Justin's Nut Butters white chocolate peanut butter cups Justin's Nut Butters mini dark chocolate peanut butter cups Justin's Nut Butters mini milk chocolate peanut butter cups K
    KatySweet Chocolate Dipped Strawberries KatySweet Pecan Fudge KatySweet Plain Fudge KatySweet Raspberry Lemon Almond Bark KatySweet Walnut Fudge Kellogg's Spongebob Squarepants fruit flavored snacks Kenny's Green Apple Rings Kenny's Gummi Bears Kenny's Peach Rings Kenny's Sour Gummi Bears Kenny's Sour Gummi Worms Kenny's Sour Neon Gummi Worms Kenny's Watermelon Rings Kinder Surprise Eggs Kraft Caramels Kraft Jet–Puffed Boo Mallows and Ghost Mallows Kraft Swedish Fish Kraft Sour Patch Kids and Sour Patch Extreme L
    Laffy Taffy Plain, Stretchy & Tangy and Rope Lemonheads Lemonheads & Friends Conversation Hearts Tropical Chewy Lemonhead Chewy Lemonhead & Friends Berry Chewy Lemonhead Lifesavers LifeSavers Gummies including Big Ring Gummies, Sweet 'n' Sour, and Scary Assortment Lily's Sweets 40% Original Creamy Milk Chocolate Bar Lily's Sweets 40% Salted Almond Creamy Milk Chocolate Bar Lily's Sweets 55% Almond Dark Chocolate Bar Lily's Sweets 55% Coconut Chocolate Bar Lily's Sweets 55% Crispy Rice Dark Chocolate Bar Lily's Sweets 55% Dark Chocolate Bar with Cinnamon Lily's Sweets 55% Original Dark Chocolate Bar Lily's Sweets 70% Original Dark Chocolate Bar Lily's Sweets 70% Blood Orange Chocolate Bar Lily's Sweets 70% Candy Cane Chocolate Bar Lily's Sweets 70% Chipotle Chocolate Bar Lily's Sweets 70% Sea Salt Chocolate Bar Lily's Sweets Creamy Milk and Hazelnut Chocolate Bar Lily's Sweets Milk and Gingerbread Chocolate Bar Lily's Sweets Original Double Chocolate Crunch Bar Lily's Sweets Sour Cherry Double Chocolate Crunch Bar Lollipop Paint Shop Lovely Bananas Foster Lovely Black Licorice Lovely Caramel Apple Lovely Cashmels Lovely Chocolate Peppermint Lovely Chocolate Cherry Lovely Chewy Original Caramels Lovely Chocolate Swirl Caramels Lovely Fudgee Roll Lovely Fudgee Roll Raspberry Lovely Fruit Chews Lovely Halloween Cherry Licorice Lovely Halloween Juicy Chew Lovely Hula Chew Lovely Juicy Chew Original Lovely Juicy Chew Tropical Lovely Pumpkin Spice Lovely Salted Caramel Lovely Super fruit Chews M
    M&M's—original, peanut, peanut butter Manischewitz Fruit Slices Mars M&M's—except pretzel M&M's Mars Dove chocolate products (all flavors EXCEPT for milk chocolate cinnamon graham/cookies and cream, and some holiday varieties, such as milk chocolate truffles) Mars Munch Nut bar Mars Snickers, Snickers Dark bars, fun size and mini's—may contain almonds Mary Janes Mallo Cup Marvel Heroes Candy Sticks (Hulk, Spiderman, Wolverine) Mega Warheads Melster Chocolate Covered Marshmallow Melster Peanut Butter Kisses Melster Compound-Coated Marshmallow  Melster Chocolate-Covered Creme Drops  Melster Compound Coated Creme Drops  Melster Salt Water Taffy  Melster Peanut Butter Kisses   Melster Circus Peanuts  Melster Sanded Marshmallow   Melster Coconut Toasties  Milk Duds Milky Way Midnight Bar (not the original Milky Way Bar)
    Milky Way Caramel Bar Mike and Ike Mike and Ike Spray Mini Mentos Mini Sour Dudes Straws Monstaz Pops (jack–o–lantern lollipops) Monster Hunt plastic monster eggs filled with candy bones, skulls and pumpkins (made for Target) Mounds Bars – All Mounds dark chocolate fun size bars  N
    Necco's Sky Bar 4 in 1 chocolate bar Necco Wafers Necco Mary Janes Necco Mary Jane Peanut Butter Kisses—does contain peanuts Necco Sweethearts Conversation Hearts (available for Valentine's Day only) Necco Canada Mint & Wintergreen Lozenges Necco Haviland Thin Mints and Candy Stix Necco Clark Bars Necco Skybars Necco Haviland Peppermint & Wintergreen Patties Necco Candy Eggs Necco Talking Pumpkins (available at Halloween only) Necco Squirrel Nut Caramels and Squirrel Nut Zippers Necco Banana Split and Mint Julep Chews Necco Ultramints Nestle Milk Chocolate fun size bars Nestle Baby Ruth Nestle Bit–O–Honey Nestle Butterfinger (NOT Butterfinger Crisp or Butterfinger Stixx) Nestle Goobers—does contain peanuts Nestle Nips (both regular and sugar–free) Nestle Oh Henry! Nestle Raisinets—made on equipment that processes peanuts Nestle Sno–Caps Nestle Toll House morsels and chunks (only if labeled gluten-free) Nestle Wonka Pixy Stix Nestle Wonka Laffy Taffy Nestle Wonka Lik–M–Aid Fun Dip Nestle Wonka Spree Nik—L—Nip wax bottles with juice Now and Later O
    Oh Henry! Operation Gummy Candy P
    Palmer Peanut Butter Cups—does contain peanuts Payday Candy – All Peanut M&M's Pearson's Bun candy—maple and roasted peanuts Pearson's Mint Patties, Pearson's Nut Goodies Pearson's Salted Nut Rolls Peeps Jack–O–Lanterns, Marshmallow Pumpkins, Marshmallow Ghosts, Marshmallow Tombstones, Chocolate Mousse Cats, Milk Chocolate Covered Pumpkins, Dark Chocolate Covered Pumpkins, and Milk Chocolate Dipped Orange Chicks—"Gluten Free" Pez candy—All PEZ products are "Gluten Free" Pop Rocks Popcorn Expressions Kettle Corn Snack Bags Pixie Stix Pure Fun Halloween Pure Pops R
    Rain Blo Bubble Gum Eyes of Terror Raisinets Razzles candy gum Red Bird Assorted Puffs Red Bird Dark Chocolate Peppermint Mini Red Bird Cinnamon Puffs Red Bird Cinnamon Sticks Red Bird Citrus Puffs Red Bird Cream Penny Sticks Red Bird Lemon minis Red Bird Lemon Sticks Red Bird Peppermint Puffs Red Bird Peppermint Sticks Red Hots Reese's Fast Break candy bars and snack size Reese’s Nutrageous Bar Reese's Peanut Butter Cups snack size and miniatures—Except Reese's Peanut Butter Cup Unwrapped Minis and Seasonal Shaped Items Reese's Pieces Reese’s Peanut Butter Cups – All Except Reese’s Peanut Butter Cup Unwrapped Minis and Seasonal Shaped Items Reese’s Pieces Candy - All Except Reese’s Pieces Eggs Reese’s Spreads – All Except Reese’s Spreads with Snacksters Graham Dippers Reese's Select Peanut Butter Cremes Reese's Select Clusters Reese's Whipps Riviera Spooky Candy Rings Rolo Caramels in Milk Chocolate Candies – All Except Rolo Minis Rolo chocolate covered caramels—Except ROLO Minis Russell Stover Salt Water Taffy Russell Stover Candy Corn Taffy Russell Stover Caramel Apple Taffy S
    Scharffen Berger Products – All Except Scharffen Berger Cocoa Powder Sidewalk Chalk Sixlets Skeleton Pops (lollipops) Skittles includes Original, Sour, Wild Berry, Fizzl'd Fruits, and Crazy Core, including fun—size Smarties—(the small pastel–colored candies sold in rolls and made by Ce De). Also Candy Money, Candy Necklace, Easter Smarties, Giant Smarties, Giant Smarties Pops, Love Hearts, Mega Smarties, Smarties in a Pouch, Tropical Smarties, Smarties Double Lollies, Smarties Mega Lollies, Smarties Parties, Smarties Pops, and X—TREME Sour Smarties. Manufacturer states: These products contains NO: gluten, milk, egg, fish, crustacean shellfish, tree nuts, wheat, peanuts, or soy. (US only, NOT gluten-free in Canada). Skor Toffee Bars - All Snickers Bars (all flavors) Snickers Fudge bar Sno—Caps Sno—Cone Soda Pop So Delicious Dairy Free Coconut Milk Candy Corn So Delicious Dairy Free Coconut Milk Peppermint Star Sour Patch Spooky Candy Rings (eyeballs, Frankenstein heads and other shapes on rings) Starburst Fruit Chews and fun—size Starburst Gummibursts and Sour Gummibursts Stonyfield Organic Mixed Berry Fruit Snacks Stonyfield Organic Strawberry Fruit Snacks Sugar Babies Sugar Daddy Caramel Pops Sugar Mama Caramels Super Bubble bubble gum Surf Sweets Gummy Worms Surf Sweets Gummy Swirls Surf Sweets Gummy Bears Surf SweetsFruity Bears Surf Sweets Jelly Beans Surf Sweets Sour Worms Surf Sweets Sour Berry Bears Swedish Fish Sweet's All American Mint Taffy Sweet's Apple Fruit Sours Sweet's Banana Taffy Sweet's Black Licorice Taffy Sweet's Blue Raspberry Taffy Sweet's Bubble Gum Taffy Sweet's Buttered Popcorn Taffy Sweet's Candy Cane Taffy Sweet's Candy Corn Sweet's Candy Corn Taffy Sweet's Caramel Apple Taffy Sweet's Caramel Taffy Sweet's Cherry Cola Taffy Sweet's Cherry Fruit Sours Sweet's Cherry Hearts Sweet's Cherry Taffy Sweet's Chocolate Bridge Mix Sweet's Chocolate Cinnamon Bears Sweet's Chocolate Hazelnut taffy Sweet's Chocolate Peanut Clusters Sweet's Chocolate Peanuts Sweet's Chocolate Raisins Sweet's Chocolate Taffy Sweet's Chocolate Wonder Mints Sweet's Cinnamon Bears Sweet's Cinnamon Bunnies Sweet's Cinnamon Hearts Sweet's Cinnamon Lips Sweet's Cinnamon Santa's Sweet's Cinnamon Squares Sweet's Cinnamon Taffy Sweet's Cookie Dough Taffy Sweet's Cotton Candy Taffy Sweet's Egg Nog Taffy Sweet's Fish Sweet's Fruit Slices Sweet's Fruit Sours Sweet's Grape Fruit Sours Sweet's Guava Taffy Sweet's Gum Drops Sweet's Holiday Trees Sweet's Honey Taffy Sweet's Hot Shots Sweet's Huckleberry Taffy Sweet's Jelly Beans Sweet's Jelly Beans Sweet's Key Lime Taffy Sweet's Key lime Taffy Sweet's Lemon Fruit Sours Sweet's Marshmallow Bears Sweet's Natural Fish Sweet's Natural Lemonade rings Sweet's Natural Nummy Bears Sweet's Natural Sour Worms Sweet's Neapolitan Taffy Sweet's Orange Dark chocolate Jewels Sweet's Orange Milk chocolate Jewels Sweet's Orange Slices Sweet's Orange Slices Sweet's Orange Sticks Sweet's Orange/Vanilla Taffy Sweet's Peach Taffy Sweet's Peanut Clusters (available in both milk and dark chocolate) Sweet's Peppermint Taffy Sweet's Pink Grapefruit Sours Sweet's Raspberry Dark Chocolate Jewels Sweet's Raspberry Milk Chocolate Jewels Sweet's Raspberry Sticks Sweet's Raspberry Taffy Sweet's Red and Green fruit Sours Sweet's Red Licorice Taffy Sweet's Root Beer Taffy Sweet's Rum Taffy Sweet's S'more's Taffy Sweet's Scandinavian Swimmers Sweet's Sour Bunnies Sweet's Sour Stars Sweet's Sour Stars Sweet's Strawberry and Banana Taffy Sweet's Strawberry and Crème Taffy Sweet's Strawberry Taffy Sweet's Sugar free Cinnamon Bear cubbies Sweet's Sweet's Candy Pebbles Sweet's Vanilla Taffy Sweet's Watermelon Taffy Sweet's Wild berry Taffy Sweet's Wonder mints Sweethearts conversation hearts Forbidden Fruits (candy packaging of The Twilight Saga, New Moon the movie) Sweet's Candy Corn Taffy T
    Tasty Brand Fruit Gummies- Citrus Splash Tasty Brand Fruit Gummies- Smoothie Tasty Brand Fruit Gummies- Super fruit Tasty Brand Organic Fruit Snacks- Citrus Splash Tasty Brand Organic Fruit Snacks- Mixed Fruit Tasty Brand Organic Fruit Snacks- Scary Berry Tasty Brand Organic Fruit Snacks- Smoothie Tasty Brand Organic Fruit Snacks- Spooky Tasty Brand Organic Fruit Snacks- Super fruit Tasty Brand Organic Fruit Snacks- Wild Berry Tic Tacs Tootsie Caramel Apple Pops Tootsie Pops—original and mini Tootsie Fruit Rolls Tootsie Peppermint Pops Tootsie Rolls Tropical Dots Tootsie Rolls Midgies and snack bars Topps — Baby Bottle Pop, Ring Pops, Push Pops, Ring Pop Gummies, Bazooka Gum, Bazooka Gum Nuggets Trader Joe's Citrus Gum Drops Trader Joe's Mango Taffy Trader Joe's Sour Gummies Transformers Candy Mix—gummy shields, fruit chews, candy shields, gum rocks Tropical Stormz Pops TruJoy Fruit Chews TruJoy Organic Choco Chews TruSweet Jelly Beans TruSweet Gummy Bears TruSweet Fruity Hearts TruSweet Fruity Bears TruSweet Gummy Worms TruSweet Sour Worms TruSweet Sour Berry Bears TruSweet Watermelon Rings TruSweet Peach Rings TruSweet Spring Mix Jelly Beans TruSweet Spooky Spiders TruSweet Organic Fruity Bears TruSweet Organic Fruity Hearts TruSweet Organic Jelly Beans TruSweet Organic Peach Rings TruSweet Organic Watermelon Rings Twist and Glow, Twist and Glow Heart, Twist and Glow Pumpkin Two Moms in the Raw Gluten Free Almond Butter Cacao Truffles Two Moms in the Raw Almond Butter Cayenne Truffles Two Moms in the Raw Almond Butter Green Tea Vanilla Truffles U
    Unreal Halloween Treats Unreal Dark Chocolate Almond Butter Cups Unreal Dark Chocolate Peanut Butter Cups Unreal Dark Chocolate Peanut Butter Cups with Coconut Unreal Dark Chocolate Peanut Butter Cups with Crispy Quinoa Unreal Milk Chocolate Peanut Butter Cups Unreal Milk Chocolate Peanut Butter Cups with Crispy Quinoa V
    Vosges Haut Chocolate Bacon Dark Chocolate Bar Vosges Haut Chocolate Coconut & Cherry Caramel Bar Vosges Haut Chocolate Crispy Carrot Bar W
    Warheads Extreme Sour hard candy and Sour QBZ chewy cubes Warheads Sour Chewy Cubes Warheads Super Sour Spray, Sour Dippers, Double Drops Welches Fruit Snacks—All flavors Wild Ophelia Peanut Butter Banana Cup Wild Ophelia Peanut Butter and Cherry Cup Wild Ophelia Peanut Butter and Toasted Coconut Cup Wild Ophelia Peanut Butter and Smoked Salt Cup Wonka Bottlecaps Wonka Chocolate Laffy Taffy Wonka Giant Chewy Nerds Jelly Beans Wonka Giant Pixy Stix Wonka Gobstopper Everlasting Wonka Gobstopper Chewy Wonka Fruit Tart Chews Wonka Fun Dip and Fun Dip Sour Wonka Laffy Taffy Ropes Wonka Mix–Ups Wonka Monster Mix–Ups—SweetTarts Skulls and Bones, Spooky Nerds, Howlin' Laffy Taffy Wonka Nerds—carry a cross contamination warning on the Spooky Nerds orange and fruit punch flavors Wonka Pixy Stix Wrigley's Gum Wrigley’s Creme Savers X
    X–scream Mouth Morphers Fruit Gushers Y
    York Peppermint Patties - All Except York Pieces Candy, York Minis, and York Shapes (5 oz.)s YumEarth Organic Fruit Snacks YumEarth Gummy Fruits Z
    Zed Candy Skulls and Bones Zip-A-Dee-Mini Pops
    With all these selections, finding some good, gluten–free candy should be a snap. As always, be sure to read labels, as some ingredients can vary.
    **WARNING! THESE UNSAFE CANDIES CONTAIN OR MAY CONTAIN GLUTEN:
    AIRHEADS Packaging states that Airheads are: "Manufactured in a facility that processes wheat flour." Airheads.com FAQs state that: "Airheads do not contain gluten; however, they are processed in a facility that uses wheat flour, so the company does not guarantee that Airheads are gluten-free. Airheads Xtremes Rolls contains wheat flour ALTOIDS Contain gluten as wheat maltodextrin ANNABELLE'S Abba Zabba—contains: peanuts, soybean oil and soy lecithin, wheat/gluten Big Hunk—Package statement: "made in a facility that uses milk, egg, tree nuts, wheat and peanuts" Look—Contains: milk, peanuts, soy lecithin, eggs, wheat/gluten Rocky Road, Rocky Road Mint, Rocky Road Dark—Contain wheat/gluten Uno—Contains: milk, almonds, soy lecithin, wheat/gluten AMERICAN LICORICE CO. Sour Punch Sticks, Twists, Bits, Bites, Straws—contains wheat/gluten Red Vines—all varieties and flavors contain wheat/gluten BEE INTERNATIONAL Zombee Bloody Bites (glow in the dark plastic fangs with oozing candy blood bags) Zombee Candy Corn (in a tall tube with plastic pumpkin lid) Package statement: "Made in a facility that also processes milk, wheat, peanuts, tree nuts." BRACH'S All Brach's candy should be considered NOT gluten–free! Please be careful, as I have seen Brach's candies included on gluten-free safe lists! Brach's Candy Corn, Brach's Jelly Bean Nougats, and Brach's Halloween Mellowcremes ARE all processed in a facility that processes wheat. CADBURY ADAMS Sour Patch Xploderz CHUCKLES Chuckles Ju Jubes CVS Candy Corn, Autumn Mix, Candy Pumpkins Ingredients free of: wheat/gluten, milk, tree nuts, peanuts Package statement: "This product was packaged in a facility where other products containing peanuts, tree nuts, milk, wheat, soy and egg are also packaged." DOVE CHOCOLATE  Milk chocolate cinnamon graham/cookies and cream, and some holiday varieties, such as milk chocolate truffles FARLEY'S AND SATHERS Harvest Mix and Candy Corn—This product is made by Brach's. All Brach's candies are considered to contain gluten. See Brach's listings. Heide candies—Jujyfruits, Jujubes, Red Raspberry Dollars, Red Hot Dollars Wild Cherry, Heide Gummi Bears Super Bubble and Super Bubble Blast Trolli Gummi Bears, Trolli Sour Brite (Frite) Crawlers "Packaged on equipment that packages products containing traces of milk, wheat, egg, peanuts, tree nuts and/or soy protein." FERRERO Ferrero Rocher Chocolates FLIX Bag of Boogers Gummies — "Manufactured in a facility that processes gluten (wheat), milk, egg, peanuts, tree nuts and soy." FRANKFORD Frankford Fun Size Mix (Peanut Butter, Caramel and Crispy Chocolate Covered Candies) Crispy Candies SpongeBob Gummy Krabby Patties GOETZE Goetze's Caramel Creams, Cow Tales—Contain wheat flour, milk, and soy HARIBO Bears (the package now says: Dextrose - wheat or corn) Black Licorice Wheels Brixx Clark Bars Fruity Pasta Konfekt and Pontefract Cakes Red Licorice Wheels Sour S'ghetti HERSHEY Hershey Snack Sized Bars — ALL Kit Kat—contains wheat Mr. Goodbar Reese's Minis Reese's Peanut Butter Pumpkins Reese's Seasonal Rolo Minis Twizzlers—contains wheat Whoppers—contains barley malt and wheat flour Hershey's Bliss (Milk Chocolate, Milk Chocolate with Almonds, Milk Chocolate with Meltaway Center, White Chocolate with Meltaway Center, Milk Chocolate with Raspberry Meltaway Center, Dark Chocolate)—No gluten ingredients, but not on Hershey's official gluten-free list. Hershey's Special Dark Bar (note that this is confusing, since several other Special Dark products are considered gluten-free, so make sure you know what you're buying) Hershey's Cookies 'N' Creme Bar Hershey's Milk Chocolate Drops Hershey's Miniatures (any flavor, including flavors that are considered gluten-free in larger sizes) Mr. Goodbar Symphony Bar Hershey's Extra Dark Chocolate Hershey's Kisses that do not appear on the gluten-free list above Hershey's Good & Plenty Hershey's Mr. Goodbar fun size Hershey's Twizzlers, Flavored Twists IMPACT CONFECTIONS Warheads Sour Twists—contain wheat/gluten, milk Warheads Sour Jelly Beans—made in facility shared with wheat, peanuts, milk, egg and soy Warheads Sour Candy Canes—contain soy; made in facility shared with wheat, peanuts, tree nuts, milk, egg, and soy Warheads Sour Coolers—contains oat fiber MARS and WRIGLEY Mars Bar Mars Combos (a snack mix) M&M White Chocolate, Mint and M&M Coconut flavors—Check individual packages to be sure M&M Pretzel flavor and some M&M seasonal flavors Milky Way—contains barley malt Twix—contains wheat NESTLE Butterfinger Crisp or Butterfinger Stixx—contains wheat flour Butterfinger Giant Bar Butterfinger Hearts Butterfinger Jingles Butterfinger Medallions Butterfinger Pumpkins Butterfinger Snackerz Butterfinger Stixx Chewy Spree Crunch—contains barley malt Everlasting Gobstopper Hundred Grand Bar—contains barley malt Kit Kat Bar 100 Grand Bar—contains barley malt Sweetarts—Contain both maltodextrin and dextrin, which can be made from wheat and barley, and are not listed on Nestle’s gluten-free candy list) Wonka Bar (all flavors) Wonka Gummies Wonka Kazoozles Wonka Nerds Wonka Oompas and the Wonka Bar are NOT gluten–free. Wonka Oompas and the Wonka Bar are NOT gluten–free. NEWMAN'S OWN Organic Dark Chocolate & Milk Chocolate Peanut Butter Cups (Made on equipment that processes products containing peanuts, tree nuts, milk, wheat, soybean and egg products.) PALMER Palmer Bag of Boo's fudge bars Palmer Tricky Treats (mix of Googley Eyes, Boneheads, and Pumpkin Patch chocolate candies) Palmer Trick or Treat Mix Palmer Peppermint Patties RUSSELL STOVER'S—Russell Stover's products are produced on equipment that also processes peanuts, tree nuts, eggs and wheat gluten. YORK York Pieces, York Minis and York Shapes WONKA Wonka Bar Wonka Chewy Runts Wonka Chewy Spree Wonka Giant and Mini Chewy SweeTarts Wonka Nerds Wonka Oompas Wonka Runts Wonka Runts Chewy Wonka SweetTarts Wonka Sweetarts (regular) Wonka Sweetarts Chew Wonka Sweetarts Chewy Twists Wonka Sweetarts Giant Chewy Wonka Sweetarts Mini Chewy Wonka Shockers Wonka Sweetarts Gummy Bugs—contains wheat/gluten Wonka Sweetarts Rope—contains wheat/gluten Wonka Sweetarts Shockers Wonka Tart N Tinys Wonka Tart N Tinys Chew Wonka SweetTarts Boo Bag Mix Additional information and lists of gluten-free safe and unsafe Halloween candies can be found at:
    About.com Celiac.com Celiaccentral.com CeliacSupportAssociation.org Celiacfamily.com DivineCaroline.com Foodallergyfeast Glutenawayblog.com Glutenfreefacts Gluten Intolerance Group Medpedia Surefoodliving.com Urbantastebud.com Verywellfit.com Here is a partial list of major candy manufacturers and how to contact them:
    Adams & Brooks American Licorice Co. BEE International  Ferrara Candy Company  Ferrero Rocher  FLIX  Gimbal's Fine Candies  Goetze's Candy Company  Hershey's. Here's a link to Hershey's official gluten-free list. Impact Confections  Jelly Belly Just Born. Here's a link to Just Born Gluten-free FAQs Justin’s Nut Butters products are certified gluten-free by the Gluten-Free Certification Organization, which requires products to have less than 10 parts per million of gluten in them. Kraft Foods Mars Chocolate Necco  Nestle USA Palmer Pearson's PEZ  Pop Rocks  Tootsie Roll —Tootsie Roll Industries, which also makes Charms products, says that, as of fall 2018, all of the company's confections are considered gluten-free except Andes cookies. "Tootsie does not use wheat, barley, rye, oats, triticale, spelt, or any of their components, either as ingredients or as part of the manufacturing process. Corn and soy products are used during the manufacturing process," the company says.

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