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Was this test for IGa correctly done?

Gluten free
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Gluten free Newbie
Gluten free
Posted
(edited)

Hi. I am in a new part of the country- Florida. I had my first lower and upper scope. History of stomach ca of aunt, father had diverticulitis/2' of bowel removed.  I do not know if he was ever tested for celiac/gluten (1970's). Me: Abdominal pain, severe constipation for me, joint pain, nausea, amongst other complaints. Asthma and total non functioning thyroid. I was test for gluten allergy about 2010 which came up positive . Five points above the high end if I remember correctly. A close friend (ER doc) tried to convince me to go gluten-free for a few years as going gluten-free helped him tremendously and I promised I would give it a try. As he was at my place often I did so to not to risk contaminating his food. (rest in peace, Chuck). I was gluten-free for about 5 years when gastro doc here in FL did my scopes. They did IGa bloodwork which was negative. Shouldn't I have been on gluten diet or is that no longer needed today?  ( gluten-free diet has helped about 50-75%. When I 'fell off the wagon' a couple times the first year I would feel fine first couple days then get very ill. I am extremely careful with diet. Thx 

Edited by Gluten free
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cyclinglady Grand Master
cyclinglady
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All celiac testing requires you to be on a full gluten diet.  It is 8 to 12 weeks prior to the blood test and 2 to 4 weeks prior to an endoscopy.  Sounds like your GI is clueless which is alarming.  Why isn’t he following the Amercan Gastroenterologist Association’s guidelines for celiac disease testing?  Even worse what else is he missing (e.g. cancer)?   I would strongly recommend a new GI who is celiac savvy.

Congratulations!   Your celiac disease is in remission.  It is the best news!  Everyone with celiac disease hopes for an “all healed” diagnosis!  Good job on the gluten-free diet.  

Edited by cyclinglady
kareng Grand Master
kareng
Posted
(edited)
3 hours ago, Gluten free said:

Hi. I am in a new part of the country- Florida. I had my first lower and upper scope. History of stomach ca of aunt, father had diverticulitis/2' of bowel removed.  I do not know if he was ever tested for celiac/gluten (1970's). Me: Abdominal pain, severe constipation for me, joint pain, nausea, amongst other complaints. Asthma and total non functioning thyroid. I was test for gluten allergy about 2010 which came up positive . Five points above the high end if I remember correctly. A close friend (ER doc) tried to convince me to go gluten-free for a few years as going gluten-free helped him tremendously and I promised I would give it a try. As he was at my place often I did so to not to risk contaminating his food. (rest in peace, Chuck). I was gluten-free for about 5 years when gastro doc here in FL did my scopes. They did IGa bloodwork which was negative. Shouldn't I have been on gluten diet or is that no longer needed today?  ( gluten-free diet has helped about 50-75%. When I 'fell off the wagon' a couple times the first year I would feel fine first couple days then get very ill. I am extremely careful with diet. Thx 

Wait.... you were positive for Celiac but didn’t think going gluten-free would be a good idea?  But then someone talked you into it.  While being gluten-free makes tests negative, you still have Celiac.  It’s like having high blood pressure.... you take medication and your blood pressure goes into the normal range - you aren’t “ cured “.  You still have high blood pressure when you stop the medications .  For a Celiac, the medication is a gluten-free diet.

Edited by kareng

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