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Andi1401

Is it normal to have a second auto immune skin condition with DH

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I was just wondering if anyone else had a second or third Auto immune skin condition along with their DH. I have DH and HS (hidradenitis suppurativa) DH as you know gives me burning itching blisters and HS gives me abscesses. between these two conditions most of my skin is scared or damaged. Surgeons wanted to remove sections of my skin but then decided the risk was to great that the skin would not heal shut. Please if anyone has any advice I'm all ears

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4 hours ago, Andi1401 said:

I was just wondering if anyone else had a second or third Auto immune skin condition along with their DH. I have DH and HS (hidradenitis suppurativa) DH as you know gives me burning itching blisters and HS gives me abscesses. between these two conditions most of my skin is scared or damaged. Surgeons wanted to remove sections of my skin but then decided the risk was to great that the skin would not heal shut. Please if anyone has any advice I'm all ears

I have HS. It started around the same time as the DH lesion started (early 20s), and has improved upon the GFD. When I poison myself, I get the rash and I get armpit abscesses. Always together. Since being on a GFD, I have not had to have any abscesses drained.

I actually suspect that DH and HS are the same thing - several studies have indicated that avoidance of wheat and yeast (so, basically a GFD), and perhaps dairy (contains iodine, which flares DH) improve HS symptoms. Like DH, HS is also aggravated by friction from clothing. All seems a bit suggestive to me...

Anyways, how strict are you with the GFD? I found that I did not get any relief until I stopped eating anything I did not prepare myself (including restaurants, meals made by family), and stopped eating processed gluten-free replacement products (breads, baked goods, pastas, flours). No oats, point blank, either.

https://www.sciencedirect.com/science/article/pii/S0039606013001657

https://www.researchgate.net/profile/Claudio_Cannistra/publication/309267726_Interest_of_Brewer's_Yeast-Exclusion_Diet_in_the_Management_of_Hidradenitis_Suppurativa/links/59ba9993aca2724161919c4f/Interest-of-Brewers-Yeast-Exclusion-Diet-in-the-Management-of-Hidradenitis-Suppurativa.pdf

https://onlinelibrary.wiley.com/doi/pdf/10.1002/bjs.6569

(this last one has a brief comment about similarities between HS and DH in association with IBD/celiac damage)

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Thank you for all this info, I have had HS for 18 years but only started having DH symptoms after an unknown infection that caused a severe allergic reaction all over.

I do use gluten free bread and oats as no one told me not to. But I might try removing these from my diet and seeing what happens.

Do I gather then your only carbs are rice and potato.

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A couple more articles for you.

One says high doses of B12 help

https://www.ncbi.nlm.nih.gov/pubmed/21122544

And low vitamin D is a cause.

https://www.ncbi.nlm.nih.gov/pubmed/25512084

My DH and HS have responded well to Vitamin D and B12 supplementation.  I avoid yeast as well.  And I avoid nightshade vegetables like potatoes.

Get checked for nutritional deficiencies that go with Celiac Disease!

Hope this helps!

On 7/20/2018 at 2:01 PM, Andi1401 said:

I was just wondering if anyone else had a second or third Auto immune skin condition along with their DH. I have DH and HS (hidradenitis suppurativa) DH as you know gives me burning itching blisters and HS gives me abscesses. between these two conditions most of my skin is scared or damaged. Surgeons wanted to remove sections of my skin but then decided the risk was to great that the skin would not heal shut. Please if anyone has any advice I'm all ears

 

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13 hours ago, Andi1401 said:

Thank you for all this info, I have had HS for 18 years but only started having DH symptoms after an unknown infection that caused a severe allergic reaction all over.

I do use gluten free bread and oats as no one told me not to. But I might try removing these from my diet and seeing what happens.

Do I gather then your only carbs are rice and potato.

I do mostly eat potatoes, rice, beans, plantains, some quinoa for carbs. I do eat gluten-free bread, but I only buy from smaller local bakeries.

Oats are definitely a minefield at this time. It is a place where commercial interests have outstripped scientific knowledge IMHO - even the most optimistic studies recommend that celiacs eating oats be monitored very closely via bloods/endoscopy to ensure that they are not reacting to them. How many people are aware that this is the case? Not many. Unfortunately, the marketing voices of companies are a lot louder than the voices of scientists/doctors.

Aside from being more strict on the GFD, I have found that zinc oxide cream (diaper rash cream) applied topically to affected areas seems to help. Partly, because it acts as a barrier to reduces friction (petroleum jelly base), partly because it helps to kill some of the bacteria (zinc oxide).

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