Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Nightmare questiion and allergy question

healthysquirrel
 Share

Recommended Posts

healthysquirrel Enthusiast
healthysquirrel
Posted

Hello Everyone,

For the past few weeks, I have had a recurring nightmare that I have Celiac Disease, thhen I wake up and realize that it is true. ? 
It is so strange. I am still a newbie I guess. Does this happen to anyone else?

I have a question about soy, apples, milk and hazlenuts.
I am newly allergic to all of those, I hear the milk allergy will go away with the return of my villi.
Has anyone encountered the same sort of healing with other allergies? Have any gone away? Apples were so damn easy to put in my purse and have handy for a good gluten free snack!

Thanks, Hope I'm being clear, been in a brain fog for a few days ;)

Wishing you all health!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pikakegirl Enthusiast
pikakegirl
Posted

Yes on the nightmares. Usually I know I am Celiac and my family gives me food but it has gluten in it and I am furious. That has never happened and they arensuper supportive to the point my home is gluten free so go figure.

As for food allergies and inollerences. I had blood tests for food but they are 50% accurate at best. I never had these before going gluten free but while healing for many years I had countless intollerences. I ended up on an elimination diet for years. Mind you I had no undamaged GI and I was in my 40s so it took longer for me to heal fully which I am now. I still have intollerences to legumes, citrus, soy, casin, chicken (not eggs), nightshades..... some of those have to do with neurotoxins being very high in the vegetable itself. I went on the FODMAP diet and got rid of gas and bloat. Some nuts are ok others go right through. I can do dairy but my CRP marker for inflamation goes up. I am also MTHFR single gene positive so foods high in folic acid make me feel awful so i avoid and take lmethyfolate daily. Many vitamins i take are the methyl form, the broken down form. 

Keep coming here, lots of great information and great people. You will heal and it gets better little by little. My change in diet cleared my arteries, got rid of my kidney stones, made my hair and skin soft, fixed my gi cramping and gas.....hang in there.

Ennis-TX Grand Master
Ennis-TX
Posted
3 hours ago, healthysquirrel said:

Hello Everyone,

For the past few weeks, I have had a recurring nightmare that I have Celiac Disease, thhen I wake up and realize that it is true. ? 
It is so strange. I am still a newbie I guess. Does this happen to anyone else?

I have a question about soy, apples, milk and hazlenuts.
I am newly allergic to all of those, I hear the milk allergy will go away with the return of my villi.
Has anyone encountered the same sort of healing with other allergies? Have any gone away? Apples were so damn easy to put in my purse and have handy for a good gluten free snack!

Thanks, Hope I'm being clear, been in a brain fog for a few days ;)

Wishing you all health!

Yeah get those nightmares randomly of eating somewhere or something not safe.

Food allergies? Allergies do not really go away.....they are pretty much life.
Food sensitivities and intolerance issues do go away sometimes. I used to have a legume issue with pea protein that went away in a few months, the sesame issue stuck around for over a year I can eat in moderation now, and double issues with olives (Adultered with corn oil I was allergic to and then I had a sensitivity to real ones. The latter went away...still have the corn issues and stick to certain brands.) I get rolling issues of intolerance or food sensitivities that spike after a exposure and sometimes go away....lettuce is still a NO, and peanuts have made me vomit for the past 3 some odd years. Soy will give me bloating, and soy lectin containing foods are fine.
Some other things are enzyme break down thing, so I can not eat animal fats, or meats without feeling sick.
But I am forever allergic to corn and whey, but I will say certain things can make them MUCH worse, less antihistamines, or taking foods high in iodine can make reactions more drastic.

This covers many issues well. Open Original Shared Link
 

healthysquirrel Enthusiast
healthysquirrel
Posted
  • Author
On 11/15/2018 at 7:58 PM, Ennis_TX said:

Yeah get those nightmares randomly of eating somewhere or something not safe.

Food allergies? Allergies do not really go away.....they are pretty much life.
Food sensitivities and intolerance issues do go away sometimes. I used to have a legume issue with pea protein that went away in a few months, the sesame issue stuck around for over a year I can eat in moderation now, and double issues with olives (Adultered with corn oil I was allergic to and then I had a sensitivity to real ones. The latter went away...still have the corn issues and stick to certain brands.) I get rolling issues of intolerance or food sensitivities that spike after a exposure and sometimes go away....lettuce is still a NO, and peanuts have made me vomit for the past 3 some odd years. Soy will give me bloating, and soy lectin containing foods are fine.
Some other things are enzyme break down thing, so I can not eat animal fats, or meats without feeling sick.
But I am forever allergic to corn and whey, but I will say certain things can make them MUCH worse, less antihistamines, or taking foods high in iodine can make reactions more drastic.

This covers many issues well. Open Original Shared Link
 

Hey Ennis_TX ! Thanks for your reply & helpful link! I am still learning. I'm glad your legume sensitivity went away since that pea protein seems to help you a lot. My apple, celery, soy, and milk allergies all showed up on a igE blood test. Some of the numbers were not very elevated, but I will see this with a new DR who is also a micronutritionist and knows a ton about celiac in a few weeks. (can't wait to be heard!!!) I would be so interested to get the same blood test in a year to see the results. Good point about soy vs soy lectin, I will see about this as well. It would be a huge relief if this is ok. As for allergies, my symptoms with apples are really nothing when i eat royal gala, all other apples make me feel only slightly acidic. Anyway, this low fodmap, gluten free, whole food diet is really working for me in many ways including digestive issues, just can't wait for the nerve and muscle pain to dissipate! 

Have a lovely evening!

healthysquirrel Enthusiast
healthysquirrel
Posted
  • Author
On 11/15/2018 at 7:15 PM, pikakegirl said:

Yes on the nightmares. Usually I know I am Celiac and my family gives me food but it has gluten in it and I am furious. That has never happened and they arensuper supportive to the point my home is gluten free so go figure.

As for food allergies and inollerences. I had blood tests for food but they are 50% accurate at best. I never had these before going gluten free but while healing for many years I had countless intollerences. I ended up on an elimination diet for years. Mind you I had no undamaged GI and I was in my 40s so it took longer for me to heal fully which I am now. I still have intollerences to legumes, citrus, soy, casin, chicken (not eggs), nightshades..... some of those have to do with neurotoxins being very high in the vegetable itself. I went on the FODMAP diet and got rid of gas and bloat. Some nuts are ok others go right through. I can do dairy but my CRP marker for inflamation goes up. I am also MTHFR single gene positive so foods high in folic acid make me feel awful so i avoid and take lmethyfolate daily. Many vitamins i take are the methyl form, the broken down form. 

Keep coming here, lots of great information and great people. You will heal and it gets better little by little. My change in diet cleared my arteries, got rid of my kidney stones, made my hair and skin soft, fixed my gi cramping and gas.....hang in there.

pikakegirl. Glad you are well surrounded, although you aren't in your nightmares...which is quite normal ?

Interesting about the accuracy of the blood tests! My intolerances seemed to have come during my healing as well. Did you stay on the low fodmap or have you reintroduced anything? What a perfect name for that gene... MTHFR!

Very good idea about the vitamins. I think that while healing, I need to change to methyl!

Glad your diet has resolved so many issues for you!

 

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted

I had weird dreams too. I had cc dreams and watching my symptoms and pain as 3rd person.  I had dreams I was hiding my favorite missed gluten  foods in my sock drawer of my bedroom nightstand and my family would bust me opening it and tell me honey / mom you are celiac you can't eat that and I would cry. I woke up one day realizing the feelings were so real and I was grieving. So yep been there.

As for intolerances I went from one to 8 to 13 and now down to 3. I was dropping anything that gave me an inflamed gi, off gi, muscle pain, nerve pain, and joint pain as my guide while mending. The veterans and community here helped me tremendously and they will you too. 

I am glad you know about the condition and are on the right track. Good luck with the healing.?

healthysquirrel Enthusiast
healthysquirrel
Posted
  • Author

Hey AWOL !

trippy nightmare! So happy to hear you have less intolerances now. Amazing. Phew! Thanks for the hope. I feel much better everyday. Suddenly seems accelerated?! I can almost walk normally. Still in pain, but I am walking about 10 x faster than a few weeks ago. Something I am doing is working. I even had a cookie today (gluten-free of course) but it was my first processed food in so long. I was scared and it was totally fine. I haven’t had alcohol in months. I am scared, but i would love a wee drink. Curious how long people take to reintroduce booze. I will never drink as I did before, i loved beer and brewed, but a drink once in a while would be fab. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Gluten-Free Bulgogi Beef: A Sweet and Savory Korean Barbecue Favorite

    2. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Breakfast ideas besides oatmeal as Avenin can be gluten?

      I read gluten-free oatmeal Avenin can cause gluten like symptoms. I read Bobs Redmill gluten-free creamy buckwheat cereal and Millet are good alternatives with ultra low heavy metals, mold but it seems it takes longer to prepare the minute oats. What have you changed your breakfast to.
    3. RMJ
      - RMJ replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

      Ginger38, that sounds very difficult. Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I ...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant...
    5. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten challenge - Need some guidance

      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,182
    • Most Online (within 30 mins)
      10,442
    CC90
    Newest Member
    CC90
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Breakfast ideas besides oatmeal as Avenin can be gluten?

      By xxnonamexx · Posted

      I read gluten-free oatmeal Avenin can cause gluten like symptoms. I read Bobs Redmill gluten-free creamy buckwheat cereal and Millet are good alternatives with ultra low heavy metals, mold but it seems it takes longer to prepare the minute oats. What have you changed your breakfast to.
    • RMJ
      The Struggle Has Overtaken Me

      By RMJ · Posted

      Ginger38, that sounds very difficult.  Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I consistently ate the triggers. After many years I’ve figured out how to bake gluten free but I think many recipes have more starch which wouldn’t work for diabetes. If you go with the elephant eating analogy, I think the first portion to work on would be the diabetes, since the immediate consequences of not being careful (passing out from low blood sugar, or diabetic coma from high blood sugar) are so severe. The next portion would be celiac. The serious consequences aren’t as immediate, but if you have celiac disease, I think of eating gluten like a booster shot - revving up the immune system, but to attack yourself leading to long term damage. It sounds like you are experiencing this damage now. I did a google search on “gluten free food for diabetics” and a number of sites with advice came up.  If your insurance will cover it and you can find one, a registered dietician who knows about both diabetes and celiac disease might help you figure out what to eat safely. Hopefully my post will both scare and encourage you, as requested, with a big dose of compassion because this sounds very difficult and you are clearly suffering.
    • Aretaeus Cappadocia
      The Struggle Has Overtaken Me

      By Aretaeus Cappadocia · Posted

      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant": Identify the Elephant: Clearly define the large project or goal that feels overwhelming. Break it Down: Divide the major task into smaller "bite-sized" pieces. If a piece still feels too big, break it down further. Prioritize: Decide which "bite" to take first based on necessity or impact. Focus on the Now: Instead of worrying about the whole animal, focus only on the single step you are taking right now. Maintain Consistency: Progress comes from taking the "next right step" every day until the task is complete. Celebrate Small Wins If I understood Ginger38's post correctly, you are facing the prospect of a gluten challenge, but you are already eating gluten on an intermittent basis. It also sounds like many of the symptoms you attribute to gluten consumption are in full expression. Step back and take a deep breath. Get a notebook and start a gluten-related diary. Don't try to make it perfect; just record what you can about food intake and what you experience as you go along. Talk to your Dr's office (nurse, Dr, whomever) about the challenge. The most rigorous challenge is for someone who has already gone truly gluten free but now needs a clear diagnosis. Someone who is already eating gluten should not need as much "challenge". Even at that, google describes an example challenge as 1-2 slice of bread or 1/2 cup of pasta a day. If that describes your existing diet you are already there. For the moment, try to focus on getting past the challenge and test. Once you have the results, start planning accordingly.
    • Aretaeus Cappadocia
      Gluten challenge - Need some guidance

      By Aretaeus Cappadocia · Posted

      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy a couple days in advance). Don't assume that they will read it. They might, but they also might be under tremendous time pressure and not get to it. Two other suggestions: if your healthcare provider has a web portal, sign on and search for "gluten challenge". They may have a standard page and Dr assumed you would find it on your own. If that doesn't work, call the Dr's office and ask the office for their official advice. You probably wouldn't need to speak to the Dr directly. There should be some nurse or staff member who could answer that
    • Xravith
      Gluten challenge - Need some guidance

      By Xravith · Posted

      After few months going gluten free, I decided to reintroduce gluten in my diet so I can do a proper diagnosis for Celiac disease. During the gluten free period I felt incredibly good. I stopped having hypoglycemia symptoms, I gained some muscle (Still, I am considerably underweight) and my anxiety totally disappeared. I felt totally like a new person. Now, I almost reached the second week of gluten challenge and all my symptoms are progressively coming back. The first days I was ok, just a bit of acid reflux I could control with medicines. However, after the first week I started to feel real stomach pain and tiredness, my face is growing acne and sometimes (specially when I walk) i feel painful migraines.  I am afraid If I am eating too much gluten or not enough, the "4 slices of bread" indication confuses me. I am actually eating 20 g of bread, 3 biscuits and 40 g of croissant each day. My doctor was not very specific when he gave me the medical order for the gluten challenge, so I invented my own daily gluten menu. Do you have any suggestions? 4 weeks will be enough to do the blood test with my current gluten intake?  Thank you
×
×
  • Create New...