Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

jnclelland

Interpreting Negative Tests

Rate this topic

Recommended Posts

Last summer I had a negative blood test for celiac and for some food allergies - but only after I had been wheat- and dairy-free for 6 weeks on the advice of my acupuncturist. After reading here for awhile, it occurred to me to wonder exactly what tests had been done, and if I could glean any information from them at all after 6 weeks off wheat (still eating barley and rye, though).

My main symptom had been eczema, on my face and the fingers of my right hand, and gradually worsening for about 10 years. In retrospect, I think I was just starting to have digestive symptoms, but they were mild enough that I didn't really realize I was having them until they went away. And since I quit wheat and dairy at the same time, I don't know which one was responsible for the digestive stuff.

After about 4 months wheat- and dairy-free (which made my ezcema maybe 80 or 90% better), I went completely gluten-free, and cut out yeast and vinegar as well. That seems to have taken care of the rest of my symptoms, so I'm pretty sure that I'm gluten-sensitive in some sense, although it's hard to know what was caused by gluten vs. the other stuff. (Vinegar definitely contributes to my eczema, for instance.)

So anyway, I finally got around to getting copies of my test results today. What was actually done was the tissue transglutamine test, and it looks pretty definitively negative:

tissue transglutamine IgA: 3.8 (< 20 is negative)

tissue transglutamine IgG: 3.9 (< 20 is negative)

I also had RAST tests done for some standard food allergens (egg white, milk, wheat, corn, peanut, soy, almond, shrimp, tuna), and they were all definitively negative as well.

So I'm left wondering what to make of all this, and whether it would be worth my while to pony up the $$$ for the Enterolab tests. I'm definitely NOT interested in going back on gluten for testing purposes. (Even if I were, my hunch is that even if I was starting to see celiac symptoms, it was probably in the very early stages and unlikely to show up on traditional tests without spending a LONG time back on gluten.)

I don't suppose that I have any definitive need for a diagnosis; I mean, I feel better off gluten, so just don't eat gluten, right? But I'm vaguely concerned that my kids could be impacted eventually, and it would be nice to have a better idea of what's actually going on with me.

Jeanne

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...