Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Article On Celiac In Marie Claire!

jkmunchkin

By jkmunchkin
in Publications & Publicity

Recommended Posts

jkmunchkin Rising Star
jkmunchkin
Posted

This may have already posted on here, but I was just flipping through the magazine and was so excited when I saw this article that I wanted to let everyone know.

It's in the February issue of Marie Claire, pgs. 166 -167.

There is a picture of a (naked) girl holding a huge roll infront of her (sorry guys you see nothing and the roll isn't exactly a sexy Playboy type pose), with the title "The Hidden Reason You Feel Bloated." I saw this and thought, no way this can't be an article on Celiac in a national, top fashion magazine... but it is!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Cool! I'll have to pick up a copy. Is is well written and accurate?

Karen

jkmunchkin Rising Star
jkmunchkin
Posted
  • Author

I wouldn't run out to get a copy. You're not gonna read anything new. It was mostly accurate. For some reason the writer listed how much the blood tests cost, which if you have health insurance it costs just your copay at the doctor. The way it was written made it seem like this blood test is not covered by insurance. Also she briefly mentioned having the genes for celiac but possibly never getting it; but then incorrectly said but if you don't have the genes it is unlikely that you will develop celiac. Correct me if I'm wrong, but if you don't have the either the IQA or IQ8 gene for celiac there is no possibility you will develop it.

With the exception of these minor points, it was a good overview of celiac. More than anything I think it's just great awareness to have an article on celiac in such a popular magazine.

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted

That's great!

-Jackie :)

Rachel--24 Collaborator
Rachel--24
Posted
Correct me if I'm wrong, but if you don't have the either the IQA or IQ8 gene for celiac there is no possibility you will develop it.

There are some biopsy proven Celiacs who don't carry either the DQ2 or D8 gene. They have not yet identified all of the genes associated with celiac.

Claire Collaborator
Claire
Posted

I suspect that the "biopsy proven Celiacs who don't carry either the DQ2 or D8 gene" may well have intestinal damage caused by casein. I know I have the intestinal damage, I have food intolerances by the dozen and I do not have Celiac genes - unless I have some Celiac gene that they haven't found yet. Claire

Rachel--24 Collaborator
Rachel--24
Posted
I suspect that the "biopsy proven Celiacs who don't carry either the DQ2 or D8 gene" may well have intestinal damage caused by casein. I know I have the intestinal damage, I have food intolerances by the dozen and I do not have Celiac genes - unless I have some Celiac gene that they haven't found yet. Claire

Claire,

Maybe you have DQ1. I think those Celiacs without DQ2 or DQ8 have DQ1 in common. From what I've read if there were another Celiac gene identified in the future it would likely be that one.

I know I have the intestinal damage, I have food intolerances by the dozen and I do not have Celiac genes - unless I have some Celiac gene that they haven't found yet. Claire

Also keep in mind that you obviously have a leaky gut but may have intact villi. Those with flattened villi have Celiac. Those with a leaky gut do not necessarily have damaged villi....like a Celiac would. So basically, having numerous food intolerances doesnt mean that you have villi damage.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

cool! i have a subscription...i'll look for it!

carriecraig Enthusiast
carriecraig
Posted

I believe a few months back there was an article on celiac in Glamour (or similar) - it was great to see it in a national magazine. I'll have to dig to find the actual article and magazine...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Iron loss and potential celiac.

      These articles may be helpful:
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      5

      Skin issues

      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph, by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some...
    3. N Young
      - N Young posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Frustrated with Providers

      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time. Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten...
    4. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Iron loss and potential celiac.

      "Risk free genetically"? Very low risk, actually. But, we are still learning about the genetics of celiac disease. Speaking of milk, some studies show that CMP (Cow's Milk Protein) can damage the small bowel villi like celiac disease does. Also, some meds (NSAIDS, Olmesartan - a blood pressure med) and some infections can also blunt SB villi.
    5. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Test interpretations

      @Aretaeus Cappadocia! The post you were looking for about omeprazol acting as an anti-inflammatory/immunosuppressant was made (yesterday, I believe) by knitty kitty. Current guidelines for the gluten challenge prior to an endoscopy/biopsy of the small bowel is the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat flour...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,116
    • Most Online (within 30 mins)
      10,442
    DiDi53
    Newest Member
    DiDi53
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Iron loss and potential celiac.

      By Scott Adams · Posted

      These articles may be helpful:    
    • Jmartes71
      Skin issues

      By Jmartes71 · Posted

      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph,  by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some pills ! I made the mistake of saying Im waiting on Infectious disease. She asked how did I get referral and I said I did it online.The next day I checked the status and it was denied! I did get  a referral to the dermatology office i went to last year that over charged me and did a biopsy on me stating inconclusive! I went to another dermatologist and he stated I should see Infectious disease at place i put in referral. With that I contacted that dermatologist and waiting to see if he thinks dermatology or Infectious disease is the route.I do have appointment for dermatology next week.Until then i did purchase Zahler paraGuard advance intestinal  flora support  from Sprouts. Im also very alarmed that the fact celiac isn't addressed properly infact its downplayed. When I had my son tested for HLA-DQ2 and it came out positive because he is eating everything and he is extremely skinny but he isn't dealing with severe diagestive issues because thats all he knows NOW or yet because he is still young 21.I too didn't know any difference when i was that age because thats all we know.Life changes will get him in latter years im afraid because what im dealing with.That scares me.The specialist we went to was only about congestion he is getting.He is getting congestion because he is eating what he isn't supposed too! Zero talk about celiac and HLA-DQ2 positive. Only talk was he is congested because we live in the Valley! They wanted to do surgery! I did write again to our district leader considering when I did call, the guy stated he knew all about celiac. I really wanted to tell him NO YOU DON'T but held my tongue. For my skin sores the cream given didn't do anything because ive also had in past.Ive been putting liquid vitamin c on it and taking vitamins which is making a little difference just with the last few days of doing.
    • N Young
      Frustrated with Providers

      By N Young · Posted

      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time.   Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten challenge. I went on an elimination diet and found relief on the Dermatitis within a month. I have no doubt that I am celiac and very sensitive now. Now my issue is that I changed physicians due to retirement and he performed a blood test and included a celiac test. I was very upset because I did not request the test and had not been eating gluten for 25 years. Of course the test was negative.  My question - Will this cause me any issues with health treatment if my records now have that I dont have celiac? I like this physician and I am appalled that he performed the test. (he told me his brother is also celiac).  I feel that we are still living in the dark ages. I dont want to cause problems because I rarely need health treatment since I live a fairly healthy lifestyle.  Since I am at this age and been through so much getting to this point am I being unreasonable for being upset? I am not expecting to see this physician for another 2 months.  Need to know if I can expect issues with future treatments. How can a physician not know about the gluten challenge this day and age?   
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      "Risk free genetically"? Very low risk, actually. But, we are still learning about the genetics of celiac disease. Speaking of milk, some studies show that CMP (Cow's Milk Protein) can damage the small bowel villi like celiac disease does. Also, some meds (NSAIDS, Olmesartan - a blood pressure med) and some infections can also blunt SB villi.
    • trents
      Test interpretations

      By trents · Posted

      @Aretaeus Cappadocia! The post you were looking for about omeprazol acting as an anti-inflammatory/immunosuppressant was made (yesterday, I believe) by knitty kitty. Current guidelines for the gluten challenge prior to an endoscopy/biopsy of the small bowel is the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat flour bread) for at least two weeks prior to the day of the procedure. @Ginarwebb, your tTG-IGA >250 would seem to be a pretty high test result, though to be sure of that statement, I would need to see what the lab used for a "normal" range. Do you have that number also? Different labs use different scales. There isn't an industry standard yet. The tTG-IGA is the centerpiece of celiac blood antibody testing. Your ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER (aka, "EMA") is positive as well. This is an older test, and a relative expensive one, compared to the tTG-IGA which has largely replaced. But the EMA is still ordered by some docs and is highly reliable. That both of them agree in your case and this is strong evidence that you have celiac disease. Concerning the ENDOMYSIAL ANTIBODY TITER (aka, "total IGA") being high, there are two things of importance. First, it tells us you are not "IGA deficient" such that your tTG-IGA test result is reliable. Second, a high total IGA test score can suggest other health concerns, some of which are serious. It can also mean nothing. Talk to your doctor about this. I would also suggest you research the implications of a high total IGA. In addition to IGA celiac diagnostic tests there are also IGG tests which are handy when total IGA is sub normal.  Here is an article outlining the various tests that can be run for diagnosing celiac disease:  
×
×
  • Create New...