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How Long From First Visit To Actual Biopsy?

flampton

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flampton Rookie
flampton
Posted

Hey for all those that have been biopsied,

How long did it take from initial visit to your gastroenterologist to the actual day of the biopsy?

I have been consuming a lot of gluten to try and get a diagnosis, but if the GI doc schedules me for like april or something, I couldn't even come close to eating this way that long. Gluten messes with my GI a bit, but I seem to have more of the non classical symptoms such as depression, anxiety and wicked brain fog. Problem is I'm a scientist so continuing to eat this way messes with my job.

Also when you finally got to see a gastroenterologist did you have to start jumping through hoops again to get them to test you? Do I have to convince yet another doctor to precede with the testing? I'm relatively good at it since I can quote reviews and the primary literature back at the doctor but a lot of my docs seem to have gotten upset when I have clearly showed them(pleasantly) that their present knowledge was lacking. An unhappy doctor certainly doesn't breed a happy patient.

Every day I wonder if a diagnosis is even worth it. I think as of right now it would help psychologically with staying on the diet and dealing with the myriad of social situations that revolve around the staff of pain. Yet I would love to stop eating gluten today.

Eric

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jerseyangel Proficient
jerseyangel
Posted

Hi Eric--It was on my inital visit to the GI that I got scheduled for my biopsy. I then had to wait 1 month--I also had a colonoscopy the same day, so maybe that's why the longer wait. Good luck at the Dr.--

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Hi Eric -- I saw the GI doc on Thursday, got my antitranglutaminase and antiendomysial antibody tests drawn that day, and had my scope (I believe) the next Tuesday. Including the colonoscopy, too. (BTW: If they schedule both, they DON'T think it's funny if you ask them that if they're going to use the same tube, would they put it down your throat first.) . . . . Lynne

slpinsd Contributor
slpinsd
Posted

I had a double endo/colon at the same time, too. It was scheduled a few days later. They scheduled the lady before me 2 months later. But- I told her I was scheduled for surgery in a week (I was) adn that it was urgent. I ended up having to pay a little more out of pocket becuase it had to be at a different facility.

flampton Rookie
flampton
Posted
  • Author

Thanks everone for replying

My doctor finally forwarded my file to the gasteroenterologist. Which means tomorrow I can schedule my appt. I'll let everyone know how it goes. I think I'll be upfront and basically tell them the truth. That if they can't schedule me in a reasonable amount of time I will probably be gluten free at the time of the biopsy.

One other question- it seems that everyone also received a colonoscopy. Was this pertinent to the Celiac diagnosis or was this to investigate for Crohn's or colitis?

Thanks

Eric

floridanative Community Regular
floridanative
Posted

I saw my first GI in Sept. '05 but he made me have the colon test first in Oct. Then he wanted me to have the endoscopy in early Dec. I was in denial that I could have such an odd condition at the time (and I felt good eating gluten every day) so I put the endoscopy off until Jan 11th. I wished now I hadn't waited the extra month but I only have myself to blame. Good luck to you and please tell the doc to take 6 to 8 biopsies. Most only take 2 or 3 but this is not sufficient for correct results.

flampton Rookie
flampton
Posted
  • Author

Well I made my appt today and it sucks

The receptionist said the first available appt for new patients was March 28th

This is a lot longer than I wanted to wait, like I was hoping for next week, or even the week after that

I guess this means I'm going to have to go without a diagnosis because I just don't see the point in continuing to eat gluten when I know that it is causing my problems

Has anyone gone to the gastroenterologist gluten free? What do they say?

Thanks

Eric

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    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
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      Hidden Gluten in distilled vinegar

      By trents · Posted

      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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