Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

manda928

Need Help In Chicago, Il

Rate this topic

Recommended Posts

My boyfriend was diagnosed with celiac sprue as an infant. He remembers eating gluten-free foods as a child, but once he entered his teenage years his family sort of stopped focusing on it. He really doesn't know that much about it at all. He has no symptoms whatsoever, but I know that doesn't mean anything. I want to try and get him to see a specialist, but really don't know where to start. We live in Chicago, and I haven't been able to find out that much online in terms of a referral. I did read one post from December about a physcian referral, but I believe that was a dermatologist. Is that where you start? My hope is that he will want to be tested again, and potentially have a biopsy taken to determine what kind of damage if any has been done. Is there a kind of doctor that you "start with" in a sense, then move to nutritionist to manage the disease? Can a general family doctor administer the necessary tests, or would they then recommend a specialist? As you can tell, we need help!

I hope to learn what first steps he needs to take to address the disease again, and a referral for a doctor in Chicago would be wonderful.

Thank you!

Share this post


Link to post
Share on other sites

A gastroenterologist probably will know the most about celiac disease, then maybe a nutrionist. However, a primary care physician should know a little and they can perform almost all the testing for celiac disease (your boyfriend needs to be eating gluten for the majority of these tests though, but based on your post, I am assuming he is). However, ignorant doctors are the worst, so make sure that you and your b.f. are well educated, otherwise the docs may try to derail you with some generic diagnosis (IBS, anyone?) or tell you that you grow out of celiac disease (not true!!) or even tell you the symptoms don't match (nearly impossible since the symptoms are variable). Usually, insurance will require that you stop by a primary care physician first anyway. Some pcp's are nice enough to admit their ignorance and just give you a referral to a gastro; then again, some may know enough to help you all out. Anyway, see a pcp first, then take it from there, whether that requires additional doctors or not.

Good luck.

Share this post


Link to post
Share on other sites

Hi there. I live in chicago and was recently diagnosed with celiac. I was referred to a GI doctor. My doctor's name was Karen Kim and she is at the University of Chicago (in Hyde Park). Great hospital - lots of doctors - wonderful reputation. Anyway, I was given a blood test and tested very high positive for Celiac. This was right away - I was lucky, i didnt have to suffer for years like so many people with Celiac do. I started having noticeable symptoms for about 3 weeks - went to the doctor and they performed all sorts of tests - the blood test being one of them. Just to make sure, they did an endoscopy (tube down your throat to get a biopsy of your intestine) and it was confirmed that i had celiac.

I highly recommend Karen Kim - she was really great - both my mom and i really liked her. she actually listened to my problems and i just felt that she actually cared about me, you know? after i was confirmed with celiac - she turned me over to a dietician (Beth Wall) and a celiac specialist (Carol Semrad). Both at the University of Chicago. The dietician was wonderful she gave me so much useful information. The specialist was okay, i learned more from the dietician. but i would recommend all three doctors. If i were you, my first step would be to get into Karen Kim.

Please let me know if you would like more information - you can PM me. I am actually headed to Dr. Semrad this afternoon for my 3 month checkup!!

Good Luck.

Share this post


Link to post
Share on other sites

Wow! Thank you so much for all of the helpful information. I really appreciate all of the specifics, and he is making the appointment tomorrow! I am sure we will continue to frequent this board in the future. I look forward to possibly helping others one day. Thanks again!

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...