Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Need A New Pcp?


floridanative

Recommended Posts

floridanative Community Regular

Back in Nov. I had a test to check for folic acid levels called a homocystene test. This was at my dad's dr.'s suggestion after his bypass heart surgery. It took me nine months to get the test done by BC/BS. So my pcp calls me with the results in Dec. and says it's a good idea to take a folic acid rx. I'm in the middle of all this Celiac testing at the time so I asked her if this could wait until Jan. She said fine. Well I ended up finding out from the GI who did my biopsy that I should indeed take a folic acid rx but he told me just to have my pcp prescribe it. So I've been dealing with my pcp's office for over two weeks trying to get an rx called in (that was gluten free of course) and I even offered to call the manuf. for the doctor so I'd get a safe rx. Well finally today the nurse called to tell me my pcp is more comfortable getting the GI to give me the rx as she doesn't want to give me the wrong thing. My first thought was well obviously I need a new pcp in addition to a new GI (which I finally found but can't get in until late April). Am I being overly sensitive to take my doctors actions as a sign she isn't not a good pcp to have anymore? She's the best doc I've ever seen and is not one to hurry you out the door with an rx as most other doctors do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tiredofdoctors Enthusiast

This happens all the time. I juggle between my PCP, a Rheumatologist, a GI doc, and two Neurologists. Sometimes it's a nightmare just getting the meds you need. Luckily, one of my neurologists knows what it's like, so he'll actually prescribe the drug after talking to one of the others -- even if it's a stomach medication. I wish you the BEST of luck. And truthfully, I don't know if it's going to change if you switch to a new PCP. Today's healthcare market is CYA -- and 99.9% of them are so scare of a lawsuit, that they err way too much on the side of caution. But then, all it takes is one lawsuit to have their malpractice carrier dump them, not be able to get insurance again, and they're screwed. No doc wants to practice without insurance. I'm not saying that what you're going through isn't WRONG -- it is. I'm just saying that the docs are so afraid of litigation that they freak out when there's the potential for trouble. Just keep plugging . . . . Hope this helps a little, anyway . . .

floridanative Community Regular

Thanks so much for your reply Lynne. It did help a lot. I realize that this new life is just going to take more work on my part to get the best healthcare I can and I just have to do it and try not to whine about it. The GI's nurse called to say that the GI should be able to call in an rx at least by tomorrow and he will note that I should not be switched to a generic unless the generic is gluten free. BC always makes me take generic and I'm pretty sure this will be more difficult to actually get the meds now but I'll just have to do what I must to get what I need. If I have to pay out of pocket for the first month supply then so be it. The good news is that the GI says as far as folic acid goes, I should not have to stay on it once my villi are healed.

tiredofdoctors Enthusiast

Just to let you know . . . it's O.K. to whine about it. :) This lifestyle is a pain in the butt. :P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,787
    • Most Online (within 30 mins)
      7,748

    Doris Barnes
    Newest Member
    Doris Barnes
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Manaan2, have you considered the possibility that she might be cross reacting to some food or foods that technically don't contain gluten but whose proteins closely resemble gluten. Chief candidates might be dairy (casein), oats (avenin), soy, corn and eggs. One small study showed that 50% of celiacs react to CMP (Cow's Milk Protein) like they do gluten.
    • Lily Ivy
      Gluten withdrawal is temporary, eat well!!
    • Manaan2
      I realize I'm super late in the game regarding this topic but in case anyone is still reading/commenting on this one-does anyone who is especially sensitive have their personal observations to share regarding Primal Kitchen brand?  My daughter was diagnosed almost 2 years ago with celiac and within 6 months, her follow up labs were normal and a year later vitamin levels significantly improving, but we are still battling GI symptoms; particularly, constipation, so much that she has been on MiraLax every day since she was 3.  We've managed to get her down to a half cap every other day but without that, she continues to have issues (when she has a known, accidental ingestion unfortunately it takes a lot more MiraLax and additional laxatives to help her).  I was searching for something else and found this and am wondering if anyone has any specific comments regarding Primal Kitchen.  I feel like we are so incredibly careful with diet, logging diet and symptoms to look for patterns (we've had multiple dieticians help with this piece as well), not eating out, contacting companies and of course, there is always room for improvement but I'm running out of ideas regarding where her issues could be coming from.  Even if the Primal Kitchen is contributing, I'm sure it's not the only thing contributing but I can't help but think there must be handful of things that are working together and against her.  The ingredients list distilled white vinegar, but also white wine vinegar and balsamic, then "spices" which I'm always cautious about.  However, after contacting the company, I felt more comfortable allowing her to consume their products but over time I've realized that the front-line customer service support people don't always provide the most accurate of information.  Thanks for reading to anyone that does.   
    • Bebee
      Thank you knitty kitty!!  I appreciate your help and knowledge!
    • knitty kitty
      Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea.   Usually a gluten challenge is done before endoscopy with biopsies taken,  however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases.   You can still have the endoscopy with biopsy samples taken now.  After several months with dietary changes, you can have another to compare results and check that intestinal health has improved.   You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have.  Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues.  Our skin is a reflection of our gastrointestinal health.     Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check.   Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
×
×
  • Create New...