Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hospital Food?


taweavmo3

Recommended Posts

taweavmo3 Enthusiast

Hi all! I'm 20 weeks preggo right now, with baby #4. I haven't been diagnosed with celiac, but my daughter has it. I went gluten free for a while to see how I felt, and I felt much better. I stupidly ate regular pasta, and had a major reaction, and have stayed gluten free since. So, I haven't messed with testing at all. I have no actual paper proof that I have it. Now I'm scared about getting glutened while in hospital after I have the baby. I'll be having a c-section, so it'll be a 5 day stay. I'm wondering how accomodating the hospital cafeteria will actually be, and if I'll need my OB to actually write for a gluten free diet???? Has anyone dealt with this yet? Thanks in advance, I do plan on calling the hospital to chat about this, and asking my doctor. The last thing I need when recovering from surgery is to have another reaction!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Definitely talk to the dietary folks ahead of time -- BUT, have a stock of your own food and have your husband bring food. Some hospitals do great but many are clueless. For my first "gluten-free" meal I got chicken smothered in a thick mystery sauce on top of noodles and Boston cream pie. I was sick as a dog and new at it and still knew that wasn't gluten-free. When my doctor (who was my brother in law) complained they told him to have me take the chicken off the noodles. And this was at the same hospital where my wife was a nurse.

richard

Guest Viola

Yes! Do have your own foods and have someone bringing you fresh stuff. Hospitals, even if you talk to the dietician have a problem with the diet. One nurse brought me a sandwhich with gluten free bread, it had egg salad filling and they had no idea what was in the salad dressing they used. The problem is that they fix so many meals and they understand salt free, and liquid diet, but with gluten free the understanding seems to stop at the bread.

angielackner Contributor

i am 34 weeks pregnant, and in a similar boat...i know our hospital's dietary dept understands something of the gluten free diet as when i called to ask about eating a hamburger there (my mom works at the hospital and i sometimes lunch with her), they said the hamburger was gluten free and they even had rice buns if i asked for one! it was delicious...but anyhow, i am still going to speak with dietary ahead of time, and bring lots of my own food...plus my hubby or mom can run out to one of the area restaurants and get me something too...i just wish i could take a toaster oven...i just dont like the whole foods sandwich bread all that much unless its toasted...but i'll work with it.

so definitely talk to dietary as you get closer...and bring plenty of your own foods :) and scope out what places are around the hospital that you can send people to to get you food :)

good luck!

angie

cgilsing Enthusiast

I'm 27 weeks right now and have just decided that I'm not going to trust the hospital with that task! THe last thing that I want is to be sick for the week after the baby is born so I'm not going to leave anything to chance. I'm going to fix a couple meals beforehand and freeze them so that my husband can just come home, heat them up and bring them too me. If I have any problems and need to stay longer I'm going to have my mom come to my house and cook for me. (Thank god for Mom! She is the only other person that I can trust to cook gluten-free.....except for my husband, but he isn't much of a cook :lol: )

KayJay Enthusiast

I had the worst time getting food while in the hospital. I had a c-section too!

My doctor wrote on my chart gluten-free and the nurses knew this. But when they brought me breakfast they would put a roll on the plate or bring me cereal. I would say I can't eat this could I just have eggs and fruit it took them 2 hours to bring me a plate of food. The second time they brought me the same food that I still couldn't eat. I would get so frustrated because I was really hungry. Then at lunch the same thing happened. Finally the kitchen called and my dh said do you have any meats or anything that does not have gravy on it! They said No not today! It took them another 2 hours for lunch and I ended up with sandwich meat and cheese. :angry: So they asked me then what I wanted for dinner and I got plain chicken and a potato. It was crazy and I was so hungry by the time that I got to go home. That time I got my chicken and potato I was just about to leave to go home. I only had to stay 2 days and I was glad because I really needed to get a meal. You would think they could have gotten better before I had to go home.

Next time I will bring my own food and not even worry about the hospital food. It was really bad.

Roxyk Newbie

I have been in close contact with our hospital. I started with the head labor/delivery nurse, the anethesoligist (I can NOT spell that word), the pharmacist & the dietian. All have come up with plans for me. START EARLY talking to them. I was all set to go at 36 weeks. It is worth it to put in many phone calls to make sure they understand everything.

I'm due on the 13th, so I'll let you know how it goes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KimmyK Newbie

I had my daughter (now 21 months old) in May of last year in Clark County KY. I was induced and knew that I had Celiac. My symptoms and diagnoses came with my first daughter born in 2001. When I filled out the paperwork for my hospital admission, I put on my chart (under the allergy section) that I was Celiac and could have ABSOLUTELY NO wheat, rye, barley, oats, or products that were associated with or contained any product or byproducts of these ingredients. I delivered my daughter at 12:20 and the director of the cafeteria for our hospital was in my room at 12:30 asking specifically what I wanted for lunch, dinner and breakfast during the rest of my stay. I was able to ask for chicken, salad (brought my own dressing from home), fresh vegetables, steak, etc. and had NO problems while I was there. You may ask to speak specifcally to the head of the cafeteria to take care of the problem... Hope this was helpful...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,787
    • Most Online (within 30 mins)
      7,748

    Doris Barnes
    Newest Member
    Doris Barnes
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Manaan2, have you considered the possibility that she might be cross reacting to some food or foods that technically don't contain gluten but whose proteins closely resemble gluten. Chief candidates might be dairy (casein), oats (avenin), soy, corn and eggs. One small study showed that 50% of celiacs react to CMP (Cow's Milk Protein) like they do gluten.
    • Lily Ivy
      Gluten withdrawal is temporary, eat well!!
    • Manaan2
      I realize I'm super late in the game regarding this topic but in case anyone is still reading/commenting on this one-does anyone who is especially sensitive have their personal observations to share regarding Primal Kitchen brand?  My daughter was diagnosed almost 2 years ago with celiac and within 6 months, her follow up labs were normal and a year later vitamin levels significantly improving, but we are still battling GI symptoms; particularly, constipation, so much that she has been on MiraLax every day since she was 3.  We've managed to get her down to a half cap every other day but without that, she continues to have issues (when she has a known, accidental ingestion unfortunately it takes a lot more MiraLax and additional laxatives to help her).  I was searching for something else and found this and am wondering if anyone has any specific comments regarding Primal Kitchen.  I feel like we are so incredibly careful with diet, logging diet and symptoms to look for patterns (we've had multiple dieticians help with this piece as well), not eating out, contacting companies and of course, there is always room for improvement but I'm running out of ideas regarding where her issues could be coming from.  Even if the Primal Kitchen is contributing, I'm sure it's not the only thing contributing but I can't help but think there must be handful of things that are working together and against her.  The ingredients list distilled white vinegar, but also white wine vinegar and balsamic, then "spices" which I'm always cautious about.  However, after contacting the company, I felt more comfortable allowing her to consume their products but over time I've realized that the front-line customer service support people don't always provide the most accurate of information.  Thanks for reading to anyone that does.   
    • Bebee
      Thank you knitty kitty!!  I appreciate your help and knowledge!
    • knitty kitty
      Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea.   Usually a gluten challenge is done before endoscopy with biopsies taken,  however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases.   You can still have the endoscopy with biopsy samples taken now.  After several months with dietary changes, you can have another to compare results and check that intestinal health has improved.   You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have.  Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues.  Our skin is a reflection of our gastrointestinal health.     Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check.   Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
×
×
  • Create New...