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3 year old blood testing

Shantaythomas16
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Shantaythomas16 Rookie
Shantaythomas16
Posted

My 3 year old is having blood testing. She is low weight. She has chronic constipation and extreme distended abdomen since she began eating table food. I have celiac disease so I requested her GP to test her. She said she was having the celiac panel done but when results came through on the online panel, the only test that showed up said “Immunoglobulin A Quan.” Her result was 22 which was in the normal range for that hospital. I’m assuming that was the Total iGA test right? Her doctor said it was negative for celiac disease but that was the only test ran. When I had my testing done at 15, all of my tests were normal range aside from my DGP IGG which was high. Then I had a positive biopsy. Is it possible her GP just doesn’t know what she is doing? When I told her which test was positive on me she says oh Well I’ll add that one but her celiac test was negative. Am I right? Is the “Immunoglobulin A Quan.” A Total IGA test? The reference range was 19-102 

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cyclinglady Grand Master
cyclinglady
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Yikes!  Get another doctor, if she refuses to order a complete panel.  Maybe get a new one anyway.  What else could this doctor be missing?  There is no excuse for a doctor not to google the tests.  Shameful!  Only a few celiacs are actually Immunoglobulin A (IgA) deficient.  They use the test to validate the “IgA” Type celiac tests (it is called a control test).  
Like you, I test positive to only the DGP IgA (not IgG) and am biopsy confirmed.  I’d have tested my kid twice so far and I insisted on a complete celiac panel.  Her doctor never balked.  A positive on the DGP is weird, I admit.  But not for little kids.  The DGP Tests are better for them.  Google it.  
 

Mayo Clinic just did a study.  Instead of 1 in 10 rush for developing celiac disease when you have a first degree relative, they found a 44% chance!  Yikes!  
 

https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/

Shantaythomas16 Rookie
Shantaythomas16
Posted
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1 hour ago, cyclinglady said:

Yikes!  Get another doctor, if she refuses to order a complete panel.  Maybe get a new one anyway.  What else could this doctor be missing?  There is no excuse for a doctor not to google the tests.  Shameful!  Only a few celiacs are actually Immunoglobulin A (IgA) deficient.  They use the test to validate the “IgA” Type celiac tests (it is called a control test).  
Like you, I test positive to only the DGP IgA (not IgG) and am biopsy confirmed.  I’d have tested my kid twice so far and I insisted on a complete celiac panel.  Her doctor never balked.  A positive on the DGP is weird, I admit.  But not for little kids.  The DGP Tests are better for them.  Google it.  
 

Mayo Clinic just did a study.  Instead of 1 in 10 rush for developing celiac disease when you have a first degree relative, they found a 44% chance!  Yikes!  
 

https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/

Thank you! It makes me feel better to know I was not wrong on thinking they weren’t running the correct test! From what I understood the Total IGA was supposed to be normal in order for the TTG IGA to be correct. And for you doing toddlers or Infants it’s better to do the DGP testing. Her GP said she added on another test after I explained my test results but I honestly have no clue which test it is they added or if they even know which test they are supposed to do. I’m so frustrated. I’m just going to focus my energy into getting her a referral to a GI. 

cyclinglady Grand Master
cyclinglady
Posted

Here is my advice.  Get the medical records.  Print off or save every lab report you get online.  It can be so useful in the future.  I have all my medical records going back 25 years, for me and my family.  When I change doctors, I bring in a family health history (tree diagram).  Every doctor loves it and so do my sister-in-laws!   I also have a single page health history.  Again, with a glance, new doctors can easily continue treatment.  Of course, I have the lab records to support all this health history.  
 

Push for the GI consult.  At the very least, talk to your own GI for advice.  I hate to see your child sick.  My daughter was only 5% in weight but 50% in height and head circumference.  But my whole family is little.  She was thriving.  It sounds like your daughter is not.  😢

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