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A rheumatologist ran a celiac panel and called me with my results saying in his 15 years of practice he has never seen numbers this high. I am waiting for the referral to a gastro to come through. While I wait, I have been looking into why the numbers are so high with no results.  Anyone else have similar test results?  What do they mean, what’s next? 

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What do you mean when you say, "I have been looking into why the numbers are so high with no results." Are you saying you have no symptoms or are you saying your research has not turned up anything? An endoscopy and biopsy of the small bowel would seem to be the next step as it is considered to be definitive for diagnosing Celiac Disease.

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Many people with celiac disease don't have symptoms, yet if they keep eating gluten have the same risks as those who do have symptoms, so be sure not to let this guide your decisions regarding your test results. You should keep eating gluten and get the biopsy that your doctor recommended. If you do have celiac disease you should go gluten-free after all tests are finished.


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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The antibody levels don’t necessarily correlate with the degree of damage or symptoms.

My TTG IgA was 143 (positive greater than 19) and I had no symptoms.

Next is a biopsy.  Keep eating gluten until the biopsy or you could get a false negative.

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