Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

sdspain

Recommended Posts

sdspain Newbie

I have had extreme edema in my lower extremities for 20 years. Diagnosed with hyperthyroidism and had a thyroidectomy. Tried fluid pills that only helped a little. All kinds of testing including closing saphenous veins. Nothing has been found and nothing really helps. I even tried acupuncture. My acupuncturist made a comment about gluten allergy. I got curious and cut gluten out for two weeks. In that time, my brain fog started to clear. I had more energy, my edema had diminished. My skin wasn't as itchy. I started researching how auto immune diseases were a factor in gluten intolerance/celiac disease. Every symptom was getting better. I accidently ate a gluten food and swelled like a balloon, and noticed issue of not being able to think of words and forgetting. If your unsure, do your own testing. Go off gluten until you notice improvements then slowly add in oats then rye, barley and wheat. If its just a wheat allergy then you'll know as soon as your body tells you. My symptoms took 24hrs to manifest from time of ingestion. Keep a log of foods you eat and check labels. Doctors can't make money off of you so many will dismiss what you say. My suggestion is to do what makes you better and healthier. Remember, everyone's symptoms and bodies differ.l


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

For those not yet diagnosed with celiac disease it might be a better approach to first get a blood test for celiac disease, especially since you can now do this mail order for under $100. If you aren’t able to do this your elimination approach is not a bad alternative, but many people with gluten sensitivity don’t have obvious symptoms.

Awol cast iron stomach Experienced

Also joining the forum here was helpful to know how to correctly maintain gluten-free diet/lifestyle on all levels. As members here know the "landmines" many newbies need to know, even if they go self elimination diet route. 

In the past I read online  reviews for restaurant s how many Celiac's go to local restaurants with gluten-free selection  etc. It can be misleading. I found the forum here saying only entirely gluten-free restaurants are safe. I found this to be true. 

The restaurant, shared manufacturing lines, variations in  labeling,  and personal care products are the  biggest risk landmine risks for those going gluten-free.

Also sticking to a whole foods diet during healing were all helpful tips that the celiac.com members warned newbies about which other articles or websites can muddy the water on these topics which can be risky for those who need to be on a medical gluten-free diet.

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,076
    • Most Online (within 30 mins)
      10,442

    Murielle Beaulieu
    Newest Member
    Murielle Beaulieu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...