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Could it be Celiac disease?

Madmichie
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Madmichie Newbie
Madmichie
Posted

Hello All,

How do I go about getting tested? Here's my story, I have been diagnosed with Hashimoto's and also have low ferritin and vit d. My symptoms are hair loss, tiredness, constipation, diarrhoea, headache, joint/muscle pain,  I look like a panda, have crazy mood swings and anxiety.

Whenever I talk to my doctors and tell them my symptoms, I think they just think I am a hypochondriac.

I have a telephone appointment next week to talk about my low vit d and ferritin. Can I request to be tested for celiac disease, even if there isn't any history of it in my family.

Thanks you

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trents Grand Master
trents
Posted

The fact that there isn't any history in the family of celiac disease doesn't mean that there wasn't any. It just means that no one was diagnosed with it. Many celiacs are largely asymptomatic for many years. We call that "silent celiac disease." You have many symptoms that directly or indirectly point to celiac disease. I would certainly request that from your doctor. Request a "full celiac disease panel." Don't go gluten free until the testing is done or you will invalidate the tests.

Madmichie Newbie
Madmichie
Posted
  • Author

Thank you, I will write that down, otherwise I'll forget to ask. 

trents Grand Master
trents
Posted

Here's some specifics: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

Scott Adams Grand Master
Scott Adams
Posted

This blood screening article might also be helpful:

 

BuddhaBar Collaborator
BuddhaBar
Posted

It's frustrating when doctors think you're a hypochondriac and claim it's all in your head. It was "all in my head", "psychosomatic" or maybe "just IBS, it's common" and "stress-related" for several years until I bought a self-test kit and tested positive for antibodies. Took one more self-test just to be sure and PROUDLY laid both indicators which both showed two purple lines on my GP's desk and said "I told you I was sick" like a boss!
Try it! 😀
 

Chris Mckenna Newbie
Chris Mckenna
Posted

I have seven brothers and sisters, and none had Celiac, but were never tested

. My symptoms were very close to yours, and my personal doctor did not know anything about Celiac, and avoided the subject. I was tested once for Celiac and was told that I did not have it.  Somebody told me, after the symptoms continued, to be tested again.  The second test showed that I did have Celiac Disease.

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Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum @Chris Mckenna!

Madmichie Newbie
Madmichie
Posted
  • Author
1 hour ago, BuddhaBar said:

It's frustrating when doctors think you're a hypochondriac and claim it's all in your head. It was "all in my head", "psychosomatic" or maybe "just IBS, it's common" and "stress-related" for several years until I bought a self-test kit and tested positive for antibodies. Took one more self-test just to be sure and PROUDLY laid both indicators which both showed two purple lines on my GP's desk and said "I told you I was sick" like a boss!
Try it! 😀
 

Where can I get a self test kit from?

trents Grand Master
trents
Posted

https://www.imaware.health/at-home-blood-test/celiac-disease-screening

GodsGal Community Regular
GodsGal
Posted
6 hours ago, Scott Adams said:

This blood screening article might also be helpful:

 

 

14 hours ago, Madmichie said:

Hello All,

How do I go about getting tested? Here's my story, I have been diagnosed with Hashimoto's and also have low ferritin and vit d. My symptoms are hair loss, tiredness, constipation, diarrhoea, headache, joint/muscle pain,  I look like a panda, have crazy mood swings and anxiety.

Whenever I talk to my doctors and tell them my symptoms, I think they just think I am a hypochondriac.

I have a telephone appointment next week to talk about my low vit d and ferritin. Can I request to be tested for celiac disease, even if there isn't any history of it in my family.

Thanks you

Hi Madmichie!

Thanks for posting. Definitely request the testing. I am not a medical professional. Celiac disease can have a wide variety of symptoms. I feel like it is a disease that is not well known, even in the medical community. If the doctor seems dismissive or reluctant, I would ask for a referral or seek out a second opinion.

I didn't have any family history of celiac disease either, but I tested positive. After all I have learned about it, I suspect that it may have been undiagnosed in previous generations.

Keep us posted!

 

BuddhaBar Collaborator
BuddhaBar
Posted
11 hours ago, Madmichie said:

Where can I get a self test kit from?

The pharmacy. Google and check which pharmacy has them. It's a simple test and pretty accurate. Like a pregnancy test, but with blood instead of urine. I think the one I bought had 96% accuracy. 

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    • Deborah123
      Testing

      By Deborah123 · Posted

      My 5 year old had the blood test in August 2023, which came back negative.   We just had a well-visit & he has lost weight over the last 6 months.  My new Dr thinks its ENT issues causing his irritability & fatigue.  We recently switched pediatricians, and I'm not sure how much to push for a celiac re-test.  Obviously I'm not a Dr, but my gut feeling here is to re-test.  How common are false negatives & how much should I be pushing my Dr to prescribe a re-rest?   
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