Telehealth Appointment w/GI 5/4/21

[AmericanaMama]

Hi there,

I have a telehealth appointment with my GI doc tomorrow as a follow up to my endoscopy/biopsy I had a few weeks ago. Just to recap, my ttg-iga and ema were both positive, but the biopsy negative. I've had a history of some gastrointestinal stuff and anemia, osteoporosis, and neuropathy. I also have Sjogren's Syndrome. What would you all suggest that I address with the doctor? I'm making a list but I want to be on point and not go off in to the weeds on any of my thoughts too much. I would appreciate your input. The doc's assistant had given me a bit of an idea of what the doc might offer when she told me that my biopsy was negative but that the damage could be in to the gut where they didn't take biopsies and that I'd need to be followed.

Thank you all!

[RMJ]

I think it’s great that your doctor admits that damage might be missed during an endoscopy based on where they could take biopsies. Sounds like he knows his stuff with celiac disease.

I don’t remember if you’ve started eating gluten free or not.  If you’ve decided to go gluten free you can see if that makes the antibody levels go down by retesting in about 6 months.

[AmericanaMama]

I had been gluten free for about three days before going back on. All in, two weeks or so on gluten before the biopsy.

My doc wants to do the genetic test on me. He said since the biopsy was negative and the blood work positive (he felt was a pretty good indicator along with the other symptoms I have). I guess they use a company called Prometheus.

Robin

[Scott Adams]

A single positive blood test should be enough for you to consider going gluten-free, even if the biopsy results are inconclusive. You could ask some questions around this idea.