Possible diagnosis for my 9 year old

[JenniferLeibfreid]

My son was being tested for a possible growth issue and one of the tests was a celiac panel. He’s never had symptoms of celiac but we did the test. His IGFBP 1 was 11 for a 9 year old that is low. His non fasting glucose was 61. His tTG AB IGA was over 250 ( maybe the lab only tests to 250?) and normal is under 15. His IGA was 115 which is normal and his endomysial antibody SCR IGA with refl titer was positive. 
so my question is…. Do we start a gluten-free diet immediately, wait until we talk to the doctor, or are these tests not that great for a diagnosis. I know I read a gluten-free diet can throw off the results of a biopsy, but do they do biopsies with numbers like this?  Sorry.. I’m at a total loss bc this was never on my radar. 
Thanks in advance for any answers and guidance. 

[trents]

In the UK many doctors will wave the endoscopy/biopsy with tTG-IGA numbers 10x in excess of normal. Not necessarily so in the states. I would continue normal amounts of gluten consumption until you can discuss this with your physician.

Edited November 27, 2021 by trents

[plumbago]

8 minutes ago, JenniferLeibfreid said:

My son was being tested for a possible growth issue and one of the tests was a celiac panel. He’s never had symptoms of celiac but we did the test. His IGFBP 1 was 11 for a 9 year old that is low. His non fasting glucose was 61. His tTG AB IGA was over 250 ( maybe the lab only tests to 250?) and normal is under 15. His IGA was 115 which is normal and his endomysial antibody SCR IGA with refl titer was positive. 
so my question is…. Do we start a gluten-free diet immediately, wait until we talk to the doctor, or are these tests not that great for a diagnosis. I know I read a gluten-free diet can throw off the results of a biopsy, but do they do biopsies with numbers like this?  Sorry.. I’m at a total loss bc this was never on my radar. 
Thanks in advance for any answers and guidance. 

The general advice is to continue eating gluten until you talk to your doctor. People do different things, sometimes, however. But yes, if you and your doctor and son opt for the biopsy via EGD, then he should continue eating gluten. There's a minimum amount, which I believe is something like one or two pieces of toast every day.

[JenniferLeibfreid]

2 hours ago, plumbago said:

The general advice is to continue eating gluten until you talk to your doctor. People do different things, sometimes, however. But yes, if you and your doctor and son opt for the biopsy via EGD, then he should continue eating gluten. There's a minimum amount, which I believe is something like one or two pieces of toast every day.

Thank you!! We will just carry on as normal until we see the doctor