Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What disorders are similar (because I tested negative for Celiac).

temp8665

By temp8665
in Related Issues & Disorders

 Share

Recommended Posts

temp8665 Apprentice
temp8665
Posted

I just got my full celiac panel back and nothing was detected.

Which disorders should I look into now?

After I got the vaccine, the nerve across my stomach started lighting up like an electric fence.  The nerves feel smashed together on one localized side of my torso.

When I eat thick crust pizza, it makes it worse.  When I eat beans it makes it worse.

I was hoping that somehow celiac was flared as that runs in my family but that isn't the case.  So, I'm not sure what to pursue now.

Doctors I have gone to do not have any answers.

I'm trying to eat non-inflammatory foods and take supplements like Vitamin C, and Vitamin D.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

You may have NCGS (Non Celiac Gluten Sensitivity). Many of the symptoms are the same as with celiac disease but no damage is done to the lining of the small intestine. That's why the antibody tests for celiac disease will be negative. Even so, a word of caution is in order. Some experts believe that NCGS is a precursor to celiac disease so in time it might turn into that. So, if I were you with the history of celiac disease in the family, I would get tested periodically. Having said all that, whether it's celiac disease or NCGS the antidote is the same, total avoidance of gluten for a lifetime. 

Scott Adams Grand Master
Scott Adams
Posted

Yes, unfortunately there is not test yet for NCGS, even though around 10x more people have it than do celiac disease.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. alimb
      - alimb replied to alimb's topic in Coping with Celiac Disease
      2

      How to keep water down?

      I'm a minor under my parents roof, and they absolutely refuse to take me to the ER for anything celiac related, and I do not trust myself to drive at the moment. I'll try to convince them once more, though, thank you for replying
    2. nanny marley
      - nanny marley posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      New here help needed

      Hi I've joined here today hoping someone can help me I've had long running bowel issues upper pain bloating gas changing stools sickness extreme bowel pain after food was told it was ibs but had I've got older I've learned a little more I've recently cut gluten and lactose out for 6 months and I've been loads better only odd flare up but it's been something...
    3. trents
      - trents replied to alimb's topic in Coping with Celiac Disease
      2

      How to keep water down?

      Get someone to take you to the local ER and get some IV fluids on board. You already are or are at risk for serious dehydration. If you have no one who can transport you or you are too weak to make the trip in a car, call 911.
    4. alimb
      - alimb posted a topic in Coping with Celiac Disease
      2

      How to keep water down?

      Hi, I don't know if this is the right topic, but I've been glutened and I'm having a horrible time trying to keep even a sip of water -or any liquid- down. I've gotten to the point of which I'm having dry-heaving episodes because there's nothing left to vomit, and it's incredibly painful and I'm so weak and lightheaded as a result. If I try even taking the...
    5. Jefferson Adams
      0

      Gluten-Free Maple & Bacon Glazed Brussels Sprouts

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,550
    • Most Online (within 30 mins)
      7,748
    Mantooth
    Newest Member
    Mantooth
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • alimb
      How to keep water down?

      By alimb · Posted

      I'm a minor under my parents roof, and they absolutely refuse to take me to the ER for anything celiac related, and I do not trust myself to drive at the moment. I'll try to convince them once more, though, thank you for replying
    • nanny marley
      New here help needed

      By nanny marley · Posted

      Hi I've joined here today hoping someone can help me I've had long running bowel issues upper pain bloating gas changing stools sickness extreme bowel pain after food was told it was ibs but had I've got older I've learned a little more I've recently cut gluten and lactose out for 6 months and I've been loads better only odd flare up but it's been something I've obviously eaten I shouldnt of I've had to cut graveys sauces and salads out too some fruits and veg sets me off also so I've had a strict diet so I decided to go the docters again and ask to be tested for coeliac she's sent me for a blood test for CPR and a fecal test for cal protein but I was wondering would this not show anything now I have cut those foods out for so long I know there's definitely something because if I deviate off the foods I'm terrible with pain gas and diarrhea and feeling nausea and very tired I just don't want to go for  these if it should be done different and have false results I've been struggling for over 30 years I've had cancer tests all fine but just lately it got the point  were I couldn't go out because I was embarrassed because I had gas all the time and if I got a flare up I needed up be near a toilet had it was very urgent that's why I did the gluten lactose elimination diet and it seems to help 90% but she said it's fine don't stop doing that any replies would be greatly appreciated thankyou 
    • trents
      How to keep water down?

      By trents · Posted

      Get someone to take you to the local ER and get some IV fluids on board. You already are or are at risk for serious dehydration. If you have no one who can transport you or you are too weak to make the trip in a car, call 911.
    • alimb
      How to keep water down?

      By alimb · Posted

      Hi, I don't know if this is the right topic, but I've been glutened and I'm having a horrible time trying to keep even a sip of water -or any liquid- down. I've gotten to the point of which I'm having dry-heaving episodes because there's nothing left to vomit, and it's incredibly painful and I'm so weak and lightheaded as a result. If I try even taking the tiniest sip of water, doesn't matter how long after I vomit, I start feeling nauseous and I no longer have the energy to try fighting keeping it down. Is there anything I can do to try keeping it down? I've taken prescribed zofran and dicyclomine already.
    • PixieSticks
      Working in a kitchen with gluten?

      By PixieSticks · Posted

      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
×
×
  • Create New...