Covid virus/vaccine triggering celiac

[Tintern21]

Since having my vaccine in Feb 21 I have had severe celiac symptoms, still waiting to be diagnosed officially through British NHS.

With it being such a shock for me, suddenly having symptoms I wanted to pull people together to chat and support each other. If you search this forum you can see there is evidence looking at the covid virus being a trigger, yet this is the only forum I can find that is discussing it, across the whole of the Internet. I suspect the worlds media would hesitate to report on these instances. For me it has lead to many questions that are not being acknowledged by the medical profession. 

Maybe this forum can start to shape a way for this acknowledgment so people do not continue to feel ignored through such a transition. 

[Tintern21]

3 minutes ago, Tintern21 said:

Since having my vaccine in Feb 21 I have had severe celiac symptoms, still waiting to be diagnosed officially through British NHS.

With it being such a shock for me, suddenly having symptoms I wanted to pull people together to chat and support each other. If you search this forum you can see there is evidence looking at the covid virus being a trigger, yet this is the only forum I can find that is discussing it, across the whole of the Internet. I suspect the worlds media would hesitate to report on these instances. For me it has lead to many questions that are not being acknowledged by the medical profession. 

Maybe this forum can start to shape a way for this acknowledgment so people do not continue to feel ignored through such a transition. 

 

[Scott Adams]

There are other viruses that have been shown to possibly be a trigger of celiac disease, so it would not surprise me if covid-19 ends up being a trigger in some people. Clearly more research needs to be done. Here are all of the articles we've covered so far on Covid-19:

https://www.celiac.com/search/?q=covid-19&type=cms_records2&updated_after=any&sortby=newest&search_in=titles

These are interesting articles related to this:

 

 

 

 

[Tintern21]

On 1/3/2022 at 6:53 PM, Scott Adams said:

There are other viruses that have been shown to possibly be a trigger of celiac disease, so it would not surprise me if covid-19 ends up being a trigger in some people. Clearly more research needs to be done. Here are all of the articles we've covered so far on Covid-19:

https://www.celiac.com/search/?q=covid-19&type=cms_records2&updated_after=any&sortby=newest&search_in=titles

These are interesting articles related to this:

 

 

 

 

Omg thanks so much Scott. And yes more research is def needed. 

[Elliot S]

On 1/2/2022 at 12:59 PM, Tintern21 said:

Since having my vaccine in Feb 21 I have had severe celiac symptoms, still waiting to be diagnosed officially through British NHS.

With it being such a shock for me, suddenly having symptoms I wanted to pull people together to chat and support each other. If you search this forum you can see there is evidence looking at the covid virus being a trigger, yet this is the only forum I can find that is discussing it, across the whole of the Internet. I suspect the worlds media would hesitate to report on these instances. For me it has lead to many questions that are not being acknowledged by the medical profession. 

Maybe this forum can start to shape a way for this acknowledgment so people do not continue to feel ignored through such a transition. 

Hi, I just made an account on here to reply to you. About 6 months ago I got the Covid19 vaccine. A week later I was having diarrhea. Brushed it off as something I ate. I was traveling for the next two months and the diarrhea continued. Sort of chalked it up to just an irregular diet while traveling. Finished my travels and had my very regular diet again but still felt awful and had diarrhea. Noticed I was losing weight and was always tired. I’m a pretty active guy in my 20’s so I usually just suck it up and ride it out for anything health related but this wasn’t going away. To cut to the chase I eventually just recently figured out I have celiacs, which I believe was triggered by the vaccine. My mother has celiacs so I’m genetically predisposed, but I think the vaccine itself triggered it. It’s very hard to find anyone on the internet talking about this but somehow weirdly common to meet people in real life with similar stories. Your discussion doesn’t even come up with the google search engine. Had to use Bing. I’m not trying to get conspiratorial at all. But as a scientist studying SARS-CoV-2 myself I feel like all evidence should be considered so I’m adding my story to this. 

I found one study connecting the vaccine to an autoimmune reaction. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8019233/

[Tintern21]

49 minutes ago, Elliot S said:

Hi, I just made an account on here to reply to you. About 6 months ago I got the Covid19 vaccine. A week later I was having diarrhea. Brushed it off as something I ate. I was traveling for the next two months and the diarrhea continued. Sort of chalked it up to just an irregular diet while traveling. Finished my travels and had my very regular diet again but still felt awful and had diarrhea. Noticed I was losing weight and was always tired. I’m a pretty active guy in my 20’s so I usually just suck it up and ride it out for anything health related but this wasn’t going away. To cut to the chase I eventually just recently figured out I have celiacs, which I believe was triggered by the vaccine. My mother has celiacs so I’m genetically predisposed, but I think the vaccine itself triggered it. It’s very hard to find anyone on the internet talking about this but somehow weirdly common to meet people in real life with similar stories. Your discussion doesn’t even come up with the google search engine. Had to use Bing. I’m not trying to get conspiratorial at all. But as a scientist studying SARS-CoV-2 myself I feel like all evidence should be considered so I’m adding my story to this. 

I found one study connecting the vaccine to an autoimmune reaction. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8019233/

Hey I know I shouldn't be delighted as you are suffering but I am so happy to hear from you. Your situation is so similar to mine. I felt as if I was going slightly crazy especially as there is not much on the net. Please keep in touch with me and maybe we can continue to support each other and others I am sure will come up. Maybe if you hear any similar stories you can point people in this direction. If you have any ideas on how we can escalate this please do let me know. In the meantime stay as healthy as you can. x

[Becky M]

I have been healthy/active with no stomach issues my entire life. I am 41. I got my second dose of the Pfizer vaccine in March 2021. (I also had covid the prior November). I began to have loose stools. I thought it was anxiety over the pandemic. I mentioned to my doctor at my check up and she had me do all of these tests and I was diagnosed with Celiac Disease. I will be so angry if this has anything to do with the vaccine as I do feel there is no transparency with adverse reactions. 

[trents]

6 minutes ago, Becky M said:

I have been healthy/active with no stomach issues my entire life. I am 41. I got my second dose of the Pfizer vaccine in March 2021. (I also had covid the prior November). I began to have loose stools. I thought it was anxiety over the pandemic. I mentioned to my doctor at my check up and she had me do all of these tests and I was diagnosed with Celiac Disease. I will be so angry if this has anything to do with the vaccine as I do feel there is no transparency with adverse reactions. 

It is certainly possible that the original bout of COVID you experienced in November of 2020 is what really triggered the onset of celiac disease. There can be years between the actual onset of the disease and the beginning of significant symptoms. There are many "silent" celiacs who have few if any symptoms for years before the damage to the small bowel villi progresses to the point where they begin to notice a definite problem and finally go for testing.

[knitty kitty]

20 hours ago, Elliot S said:

Hi, I just made an account on here to reply to you. About 6 months ago I got the Covid19 vaccine. A week later I was having diarrhea. Brushed it off as something I ate. I was traveling for the next two months and the diarrhea continued. Sort of chalked it up to just an irregular diet while traveling. Finished my travels and had my very regular diet again but still felt awful and had diarrhea. Noticed I was losing weight and was always tired. I’m a pretty active guy in my 20’s so I usually just suck it up and ride it out for anything health related but this wasn’t going away. To cut to the chase I eventually just recently figured out I have celiacs, which I believe was triggered by the vaccine. My mother has celiacs so I’m genetically predisposed, but I think the vaccine itself triggered it. It’s very hard to find anyone on the internet talking about this but somehow weirdly common to meet people in real life with similar stories. Your discussion doesn’t even come up with the google search engine. Had to use Bing. I’m not trying to get conspiratorial at all. But as a scientist studying SARS-CoV-2 myself I feel like all evidence should be considered so I’m adding my story to this. 

I found one study connecting the vaccine to an autoimmune reaction. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8019233/

Check out Dr. Derrick Lonsdale and Dr. Chandler Marrs' site....

https://www.hormonesmatter.com/tag/thiamine-deficiency-vaccine/

There's lots of research by the good doctors about vaccines, vaccination, and thiamine deficiency.   Thiamine deficiency turns off thiamine transporter genes and autoimmune disease genes start turning on.  

Read more of my research here....

 

Edited January 7, 2022 by knitty kitty
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[Tintern21]

On 1/6/2022 at 11:28 PM, Becky M said:

I have been healthy/active with no stomach issues my entire life. I am 41. I got my second dose of the Pfizer vaccine in March 2021. (I also had covid the prior November). I began to have loose stools. I thought it was anxiety over the pandemic. I mentioned to my doctor at my check up and she had me do all of these tests and I was diagnosed with Celiac Disease. I will be so angry if this has anything to do with the vaccine as I do feel there is no transparency with adverse reactions. 

Hiya, thanks for sharing your story. I suppose people will say there is no definite way to tell if the vaccine or the covid virus was a trigger. However my opinion is that we have the right to be made aware of possibilities. I too am very angry. I even stated my concerns as have other allergies to the doctor before the vaccine and my concerns were completely dismissed. 

I'm so sorry you are having to go through this. It is not an easy disease to live with. I struggle every day. I genuinely appreciate your comments and wish you well in combating it.

Please do let others know about this forum. If we can build a large community we may get heard eventually xx

[trents]

Tintern21, you said, "I even stated my concerns as have other allergies to the doctor before the vaccine and my concerns were completely dismissed."

Celiac disease is not an allergy. It is an autoimmune disease.

[Tintern21]

19 hours ago, trents said:

Tintern21, you said, "I even stated my concerns as have other allergies to the doctor before the vaccine and my concerns were completely dismissed."

Celiac disease is not an allergy. It is an autoimmune disease.

Thanks trents I'm fully aware of that. My point was I have other allergies. 

[Wheatwacked]

While Covid is terrible, it is not the cause of Celiac Disease. Wheat, Rye and Barley gluten is.  Any number of triggers can bring it to the forefront. You got the shots, so you are protected from a lethal case of Covid. Personally, I would rather not eat wheat than be dead of Covid.  If not the Covid shot, something else would have triggered it eventually.  Many people who "suddenly" come down with severe Celiac Disease discover other symptoms that had been diagnosed as normal aging, misdiagnosed or dismissed entirely improve with GFD and replenishment of vitamin and mineral deficiencies. 100% RDA is the bare minimum. In addition to the malabsorption there are vitamins and minerals that are deficient due to diet choices. Potassium is a nutrient of concern worldwide and is exasperated by diahrea. Choline, most Americans just don't eat enough since red meat and eggs were given a bad rap. Many people with autoimmune issues are low in vitamin D.  "When the investigators considered intakes from both food and dietary supplements, they found that 20%–25% of older adults still had inadequate zinc intakes"   https://ods.od.nih.gov/factsheets/Zinc-HealthProfessional/. Twenty years ago, zinc gluconate was proven effective against airborne viruses, yet it is often considered quackery. My last cold was in 2004, I believe because I take Cold-Eeze anytime I suspect I've been exposed.

Quote

The findings from our study suggest that zinc supplementation in all three doses (10, 25, and 50 mg) may be an effective prophylaxis of symptomatic COVID-19 and may mitigate the severity of COVID-19 infection... Furthermore, during the current COVID-19 pandemic, zinc has been identified as a clinical marker whose deficiency manifested clinically as hypozincemia and was strongly associated with serious complications including ARDS and increased mortality   A Case-Control Study for the Effectiveness of Oral Zinc in the Prevention and Mitigation of COVID-19   https://www.frontiersin.org/articles/10.3389/fmed.2021.756707/full

 

[trents]

Many people who have the genetic potential for celiac disease never develop the active form. I do not believe that is a given. I don't have any hard data on that but that is what I have seen stated many times on this forum and in other places.

[Scott Adams]

I'm going by memory here, which could be dangerous, but I believe that around 23% of the population carries the genes that allow them to get celiac disease, however, only around 1% actually get it. Also, around 10x more people than have celiac disease are in the non-celiac gluten sensitivity category, and it's unclear exactly how the genetic makeup affects this, but I believe that many in this group also have the genetic markers for celiac disease.

If the covid vaccine is a possible trigger for celiac disease, then getting covid-19 might also be a trigger. I'd much rather get celiac disease from the vaccine and not get really sick or die from covid-19, than get celiac disease from getting infected by the live virus and running additional risks or serious illness, severe long-term covid-19 effects, or death.

[knitty kitty]

There is some evidence that certain stressors such as vaccination, infection, emotional stress, and injury can precipitate a deficiency in thiamine.  Diets high in empty calorie carbohydrates and fats contribute to Thiamine insufficiency.  When a stressor comes, more Thiamine is needed, but if there's a shortage, Thiamine deficiency symptoms become apparent.  

This study shows the higher the thiamine levels, the lower the virus levels in a different virus...

"Association of Thiamine Intake with Human Papillomavirus (HPV) Infection in American Women: A Secondary Data Analysis Based on the National Health and Nutrition Examination Survey from 2003 to 2016"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7670832/

"In conclusion, thiamine intake is negatively correlated with HPV infection. Dietary intake of an appropriate amount of thiamine can prevent HPV infection. The best preventive effect can be achieved when the intake is about 2 mg, and excessive intake will not increase the preventive effect."

 

This study explores thiamine deficiency in adverse reactions to the Covid vaccine.

"A novel adverse effect of the BNT162b2 mRNA vaccine: First episode of acute mania with psychotic features"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8492001/#!po=85.0000

"One hypothesis is that SARS-CoV-2 can damage the central nervous system via autoimmune mechanisms due to excessive production and release of pro-inflammatory chemokines and cytokines....Another hypothesis suggests that the inflammatory mechanisms caused by COVID-19 can trigger neuropsychiatric symptoms via thiamine deficiency. Therefore, vaccination may also lead to neuropsychiatric symptoms by damaging thiamine metabolism."

 

Two studies on thiamine deficiency in Covid patients....

"Wernicke Encephalopathy in COVID-19 Patients: Report of Three Cases"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7952637/?report=reader

"In general, patients with severe COVID-19 have shown hyperinflammatory status (cytokine storm), high catabolic state, intense nutritional impairment with significant weight loss, frequent use of diuretics and dialysis therapy. Although these clinical characteristics are risk factors for reduced thiamine levels, the occurrence of WE in COVID-19 patients has not yet been shown. Here, we report for the first time the occurrence of WE in three critical COVID-19 patients, and their response to therapy with thiamine.....

"Thiamine plays a key role in cellular oxidative metabolism and acts as a cofactor of enzymes (e.g., pyruvate desidrogenase) responsible for energy homeostasis (4). Given the reported cases we hypothesized that high catabolic states associated with COVID-19-induced cytokine storm could accelerate thiamine depletion... ...due to its effectiveness and low cost, thiamine infusion should be considered for the treatment of COVID-19-associated encephalopathies."

And....

"Encephalopathy responsive to thiamine in severe COVID-19 patients"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8011322/?report=reader

"This case series suggests that thiamine deficiency may be an etiology of encephalopathy in severe COVID-19 patients and its treatment may represent a safety and low-cost response to reduce the neurological burden."

And... this study discusses the benefits of each B vitamin in Covid...

"Be well: A potential role for vitamin B in COVID-19"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/

"...high-doses of thiamine given to people at early stages of COVID-19 could potentially limit hypoxia and decrease hospitalization."

And...

https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/

 

[Scott Adams]

This is a very interesting article that just broke on this topic, which we'll also do a summary on: Gut Bacteria Linked With Long COVID
https://www.medscape.com/viewarticle/967195

We've already written many summaries on research that ties gut bacteria imbalances as a possible trigger for celiac disease:

https://www.celiac.com/search/?&q=bacteria&type=cms_records2&search_and_or=and&search_in=titles

or preventing/treating it:

https://www.celiac.com/search/?&q=infantis&type=cms_records2&search_and_or=and&search_in=titles

 

[Bronwyn W]

On 1/2/2022 at 9:59 PM, Tintern21 said:

Since having my vaccine in Feb 21 I have had severe celiac symptoms, still waiting to be diagnosed officially through British NHS.

With it being such a shock for me, suddenly having symptoms I wanted to pull people together to chat and support each other. If you search this forum you can see there is evidence looking at the covid virus being a trigger, yet this is the only forum I can find that is discussing it, across the whole of the Internet. I suspect the worlds media would hesitate to report on these instances. For me it has lead to many questions that are not being acknowledged by the medical profession. 

Maybe this forum can start to shape a way for this acknowledgment so people do not continue to feel ignored through such a transition. 

Hi Tintern21,

I had Covid in March 2021 (not the vaccine) which definitely caused me to become introspective and search more vigorously for harmony and peace within my body. I received my final vaccine in Sept 2021 and I was diagnosed with Celiac disease 4 months ago in October 2021. On reflection, I was ignorant to the fact that I carry the celiac gene and all my life I had learn't to ignore the symptoms and / or saw them as "normal"; I am 51 and have had symptoms for +-40 years that I can remember - in primary school, I had croup every year and missed tons of school (obviously as a result of a low immune system).

This was my journey and I hope it helps.

All the very best

[plumbago]

On 1/20/2022 at 12:41 PM, Scott Adams said:

'm going by memory here, which could be dangerous, but I believe that around 23% of the population carries the genes that allow them to get celiac disease, however, only around 1% actually get it.

Scott, my understanding is that about 1% of the total US population has celiac disease. It would be interesting to know of that 23% who carry the gene, what percentage go on to develop celiac disease.

[trents]

1 hour ago, plumbago said:

Scott, my understanding is that about 1% of the total US population has celiac disease. It would be interesting to know of that 23% who carry the gene, what percentage go on to develop celiac disease.

And my understanding is that many of that 1% are still undiagnosed, i.e., diagnosed cases are much less than 1%.

[Scott Adams]

4 hours ago, plumbago said:

Scott, my understanding is that about 1% of the total US population has celiac disease. It would be interesting to know of that 23% who carry the gene, what percentage go on to develop celiac disease.

We've got an article here somewhere on the genetic stats, but this is developing and more genetic markers are being discovered. The ~23% would be those who have at least one genetic marker that could trigger celiac disease. Also, it turns out that the genetic markers for celiac disease may have been inherited from Neanderthals, which is interesting. And yes, around 1% have celiac disease, but the majority are still undiagnosed.

  

[Bronwyn W]

On 1/31/2022 at 8:42 AM, Bronwyn W said:

Hi Tintern21,

I had Covid in March 2021 (not the vaccine) which definitely caused me to become introspective and search more vigorously for harmony and peace within my body. I received my final vaccine in Sept 2021 and I was diagnosed with Celiac disease 4 months ago in October 2021. On reflection, I was ignorant to the fact that I carry the celiac gene and all my life I had learn't to ignore the symptoms and / or saw them as "normal"; I am 51 and have had symptoms for +-40 years that I can remember - in primary school, I had croup every year and missed tons of school (obviously as a result of a low immune system).

This was my journey and I hope it helps.

All the very best

Hi all, 

The reason I think that I may have had celiac disease for awhile is because I have had dermatitis herpetiformis symptoms (undiagnosed) for many, many years prior to contracting Covid and subsequent celiac disease diagnosis. 

Would it be safe to assume that dermatitis herpetiformis = celiac disease? 

Kind regards, 

 

[trents]

1 hour ago, Bronwyn W said:

Hi all, 

The reason I think that I may have had celiac disease for awhile is because I have had dermatitis herpetiformis symptoms (undiagnosed) for many, many years prior to contracting Covid and subsequent celiac disease diagnosis. 

Would it be safe to assume that dermatitis herpetiformis = celiac disease? 

Kind regards, 

 

Yes. There is no other know cause for DH other than celiac disease. But are you sure the skin issues were in fact DH and not some other kind of skin condition? My understanding is DH has a very distinctive appearance with blisters.

[Bronwyn W]

On 3/26/2022 at 12:44 AM, trents said:

Yes. There is no other know cause for DH other than celiac disease. But are you sure the skin issues were in fact DH and not some other kind of skin condition? My understanding is DH has a very distinctive appearance with blisters.

Hi Trents, 

I am not 💯 % sure, although they do seem to be blisters. This especially when scratched when itchy and worsens with heat. I will make an effort to see a dermatologist for an official diagnosis. Are you able to advise how it would officially be diagnosed? 

[trents]

Blistering is one of the characteristics of DH that sets it apart from other "rashes" though, DH is not considered a rash. I would recommend getting it biopsied for DH the next time you have an outbreak. Of course, it can be difficult to get a dermatologist appointment when you need one on short notice.