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- Russ H replied to coeliacmamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1New diagnosis
Hello, and welcome to the forum. Getting use to gluten-free eating is a struggle, but it is worth it. Your daughter should begin to feel much better and the fatigue will fade but it can take some time. I am sure you will get lots of suggestions from forum members - we have a few from the UK. I am a bit pushed for time just now but will come back later. Russ -
- Ginarwebb replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms14Test interpretations
thank you so much for this information .. if I'm reading the results correctly I believe the range was <15.0 Antibody not detected > or = 15.0 Antibody detected -
- coeliacmamma posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1New diagnosis
My 16 year old has just been diagnosed with coeliac, she loves food and is now struggling with the diet. She has a variety of different co editions and thos one just tops the list, she is a musical theatre student at college and loves what she does but fatigue gets in way alot of the time, are there any good amd tasty meals I can k make that will help? ... -
- BelleDeJour replied to BelleDeJour's topic in Dermatitis Herpetiformis12Dermatitis Herpetiformis - follow up dermatology appointment coming up
Thank you so much @suek54 How are you doing today? I spoke too soon yesterday. Something (I can only think gluten-free sweets or a can of soft drink) set me off yesterday. Had a bath, applied some cream, still itching so applied some steroid and was awake until 3am. It's so frustrating. Always 2 steps forward, 1 step back. I am at work now and going to play... -
- Jmartes71 commented on Scott Adams's article in Summer 2026 Issue5Court Ruling Raises Big Questions About "Gluten-Free" Food Safety in Retirement Communities (+Video)
That's one of my biggest fears because the knowledge of how serious is completely laxed and we the patients suffer. Thank God this poor women got the results of winning that case.It should be mandated that any doctor, care facility and every ER know exactly what celiac is.NOT just a food consumption allergy as downplayed. Its not a choice its medically necessary...- celiac disease
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Posts
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Hello, and welcome to the forum. Getting use to gluten-free eating is a struggle, but it is worth it. Your daughter should begin to feel much better and the fatigue will fade but it can take some time. I am sure you will get lots of suggestions from forum members - we have a few from the UK. I am a bit pushed for time just now but will come back later. Russ -
thank you so much for this information .. if I'm reading the results correctly I believe the range was <15.0 Antibody not detected > or = 15.0 Antibody detected
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By coeliacmamma · Posted
My 16 year old has just been diagnosed with coeliac, she loves food and is now struggling with the diet. She has a variety of different co editions and thos one just tops the list, she is a musical theatre student at college and loves what she does but fatigue gets in way alot of the time, are there any good amd tasty meals I can k make that will help? Thanks for reading. -
By BelleDeJour · Posted
Thank you so much @suek54 How are you doing today? I spoke too soon yesterday. Something (I can only think gluten-free sweets or a can of soft drink) set me off yesterday. Had a bath, applied some cream, still itching so applied some steroid and was awake until 3am. It's so frustrating. Always 2 steps forward, 1 step back. I am at work now and going to play it very much on the very safe side with food for the next few days. My derm appointment is less than a week away. I will update on here because I do feel it important to help others. -
By Scott Adams · Posted
I’m sorry you’re going through all of this. It sounds very stressful, especially when you feel that your symptoms are not being taken seriously. Until you are seen next week, it may help to keep the focus very practical: take clear photos of the skin sores, write down a timeline of symptoms, list all medicines, eye drops, supplements, implants/leak history, and any test results, and bring that to the dermatologist. If there is drainage, spreading redness, fever, worsening pain, eye involvement, or signs of infection, that needs prompt medical care. I would be cautious about assuming parasites or staph without testing, and also cautious with new supplements or putting vitamin C directly on sores, since irritated skin can get worse. A dermatologist can culture lesions, biopsy if needed, and refer to infectious disease if the findings point that way. On the celiac side, I understand your concern for your son, but being HLA-DQ2 positive does not by itself mean he has celiac disease; it means he has a genetic risk. If he is eating gluten now, this is actually the best time for proper celiac blood testing before he tries a gluten-free diet. His symptoms, weight, congestion, and family history are worth discussing with a gastroenterologist, but he should not be told he has celiac based only on HLA status. For your own care, try to keep pushing for objective testing and clear documentation in your records, because that is often what gets doctors to take the next step.
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