Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Moderate to severe bloatingp

drewbie1776

By drewbie1776
in Related Issues & Disorders

 Share

Recommended Posts

drewbie1776 Newbie
drewbie1776
Posted

I’ve been having issues for quite a while with being so bloated that it can make it difficult to take a full breath. Has anyone else experienced this? If so, what were some ways you alleviated it? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, drewbie1776.

Have you been diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity)? If the answer is yes to either, are you practicing a gluten free diet in a committed way?

knitty kitty Grand Master
knitty kitty
Posted
8 hours ago, drewbie1776 said:

I’ve been having issues for quite a while with being so bloated that it can make it difficult to take a full breath. Has anyone else experienced this? If so, what were some ways you alleviated it? 

I experienced "sailors asthma" and edema before diagnosis.  

Sailors asthma happens when you don't have enough thiamine Vitamin B1.  

Retaining water, especially edema (swelling) of the ankles and legs is another symptom of thiamine insufficiency.  

If you've been eating a high carbohydrate diet, you may not be getting enough thiamine.  The more carbohydrates you eat, the more thiamine you need.   

Supplementing with Thiamine Hydrochloride (not thiamine mononitrate) may relieve these symptoms. 

I took thiamine hydrochloride and felt better quickly.  The World Health Organization says to give thiamine and see if there's improvement because thiamine is nontoxic and safe in high doses.  Take 500-2000 mg a day.  Experiment with your dose. Everybody's different.  Some people need higher doses to feel better.  

Keep us posted on your progress!

Scott Adams Grand Master
Scott Adams
Posted

Bloating can be common in untreated celiac disease and/or other food intolerances. If you're already gluten-free and having this issue double check your diet to make sure it is 100% gluten-free, and if so, keep a food diary and try eliminating dairy/casein, and other food types to see if you can figure out the cause. This article may help:

 

cristiana Veteran
cristiana
Posted

I have found I got something a bit this when on iron pills.   I found that they caused bloating.  I drank peppermint tea, which helped bring up the trapped wind through belching - not a nice subject, but it seemed to work! 

Posterboy Mentor
Posterboy
Posted
23 hours ago, drewbie1776 said:

I’ve been having issues for quite a while with being so bloated that it can make it difficult to take a full breath. Has anyone else experienced this? If so, what were some ways you alleviated it? 

Drewbie,

You might try taking some BetaineHCL capsules aka Powdered stomach acid (always with tea or a glass or two of water).......water drives the process of digestion.

It sounds like you have many of the same symptom's as low stomach acid.

You can use the baking soda home test to see if this is happening to you......and it is going misdiagnosed/undiagnosed instead.

Here is a nice article that explains how to do that.

https://drjockers.com/5-ways-test-stomach-acid-levels/

Here is a nice article that explains how Hypochloryhdria aka Low Stomach acid can cause many of the same symptom's you describe.

called "What is Hypochlohydria"

https://www.medicalnewstoday.com/articles/322491

from the article quoting

"Symptoms of hypochlorhydria can include:

bloating, burping, diarrhea, gas, hair loss, heartburn (aka GERD), intestinal infections, nausea while taking supplements, nutrient deficiencies, including deficiencies in iron and vitamin B-12, undigested food in the stool, upset stomach, weak fingernails

There is also a link between hypochlorhydria and several other medical issues, such as:

allergies, anemia, asthma, autoimmune disorders, skin problems, including acne and psoriasis"

I would also suggest this blog post I read that summarizes a lot more of these connections between NCGS and/or Celiac disease and either Low and/or NO Stomach acid.

I can't tell you it will will help you the way it did me......only that it helped me and that it is worth doing more research on it......and I have given you good resources to research the topic of Low/NO stomach acid more for yourself.

I hope this is helpful but it not medical advice.

Good luck on your continued journeys in life!

2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things.

Posterboy by the Grace of God,

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,475
    • Most Online (within 30 mins)
      7,748
    Lilstorm
    Newest Member
    Lilstorm
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mmar
      Refractory Celiac - doctor?

      By Mmar · Posted

      Hello! I have been on a strict gluten-free diet for 20 years after my initial diagnosis, but in July had an endoscopy that showed villous atrophy (but multiple ttgs have all been normal). I have gone through everything in my house to eliminate any gluten and have been eating almost no processed foods, and will be getting a second endoscopy in a month because my GI doctor thinks it could be refractory celiac. She told me that if it’s refractory, I would need to see a “specialist” because she doesn’t know enough.  I live in Philadelphia and the Celiac Center at Jefferson has 0 appointments with any doctors, I keep trying. Does anyone know of either a doctor in Philadelphia that treats refractory celiac or a doctor elsewhere that does virtual appointments to treat refractory? Thank you!
    • knitty kitty
      10 years later, my celiac is progressing

      By knitty kitty · Posted

      @GardeningForHealth, On my journey, I found following the Autoimmune Paleo Diet most helpful in reducing reactions to various foods.  It's very restrictive, but it really helps improve gut health.  It's worth the effort for a few weeks or months. Tea from any grocery store; Tea, organic; Tea, grown in USA, never-sprayed, loose leaf Tea contains TANNINS which can inactivate Thiamin resulting in Thiamin deficiency.  Tannins inhibit the absorption of other vitamins and minerals, especially iron. Tannins can inactivate digestive enzymes.  So drink tea between meals.  Choose a tea with lower levels of tannin, like green tea or Oolong tea.  Oolong tea contains amino acid Theanine which reduces inflammation in the digestive tract. Dairy; Rice, any brand, even after washing 3 times Many people develop Lactose intolerance because damaged villi in the intestinal lining of the digestive tract cannot produce the enzyme Lactase needed to digest the sugar in dairy, Lactose.   Many people with Celiac Disease react to the protein Casein the same as they react to the protein Gluten.  This is because both Casein and Gluten, as well as the protein in rice, carry a similar segment of a protein building block chain (33 mer peptide) that triggers the autoimmune response in Celiac Disease.  Basmati rice is less likely to carry this protein chain and may be better tolerated.  Don't wash rice before cooking.  The added vitamins get washed away.  Some of those grains of rice are extruded vitamins.  They dissolved into the cooking water and are reabsorbed into the grains as the rice cooks. Organic catchup, Potatoes; Tomatoes are a member of the Nightshade vegetables which have been shown to increase gastrointestinal permeability and "leaky gut syndrome."  Potatoes, Peppers and Eggplant also belong to the Nightshades, and should be avoided until healed.  Catsup usually is acidic which can be irritating to the digestive system. Any and all brands of gluten-free breads and dessert items; Cassava flour; Gluten-free flour Often these contain cross contamination with gluten.  @Scott Adams recently posted a new article about this.  Gluten free products are not enriched with vitamins and minerals needed to digest and process them.  They are high in insoluble fiber and saturated fats.  These may also contain microbial transglutaminase, see below. Sausage, Any processed meat These foods contain microbial transglutaminase, a flavor and texture enhancer, called "meat glue" in the food processing industry, which triggers and provokes anti-gluten antibodies to attack the microbial transglutaminase as well as the tissue transglutaminase produced by our own bodies as with Celiac Disease.  We have articles about microbial transglutaminase, too.  Cassava also contains Thiaminase, an enzyme which destroys Thiamin. Cucumbers from a grocery store, but not from my garden, Most apples, Zucchini, Plums Cucumbers, like these other fruits and veggies, contain lots of soluble fiber, pectin, which intestinal bacteria can ferment and then make short chain fatty acids, which are beneficial.  So that's a good thing.  However, commercially produced breeds of veggies and fruits may contain higher levels of pectins than historically home grown varieties.  Excess consumption of pectins can result in gas, bloating and diarrhea.   Bottled spices  There's an article (perhaps @Scott Adams can help us find, please) about how some spices can cause gastrointestinal symptoms. Gluten-free dairy-free ice cream These can cause reactions if one reacts to oats.  Products made from nuts or nut milks may contain high levels of lectins which are hard to digest and can cause all the usual symptoms.   Smoke from a fire; Strong cleaning chemical fumes These contain Sulfites.  Developing a hyperensitivity to Sulfites is possible in Celiac Disease.  We can be low in vitamins and minerals needed to process Sulfites.  I have Hypersensitivity Type Four where the immune system identifies Sulfites as something to be attacked.  Celiac Disease is another Hypersensitivity Type Four disorder. Packaged sweet potato chips; Packaged plantain chips;  Rice; Any and all brands of gluten-free breads and dessert items; Cassava flour; Gluten-free flour; Gluten-free dairy-free ice cream A High Carbohydrate diet can lead to Small Intestinal Bacterial Overgrowth (SIBO).  Adopting a Paleo diet like the AIP diet is a great way to change your gut biome without using antibiotics which kill off the bad with the good bacteria.  Taking probiotics may not be very effective as long as SIBO bacteria are entrenched in the digestive tract.  You change what you eat and you change what grows inside you.  You starve out the bad SIBO bacteria, repopulate and feed the good ones.  Supplementing with Benfotiamin helps because thiamine has antibacterial properties that keeps the bad bacteria in check and benefits the good bacteria.  Benfotiamin is needed to process all those carbs turning them into energy instead of them turning to fat.   I hope this has been helpful.
    • trents
      New to all of this

      By trents · Posted

      Welcome to the forum @Newhere19! Yes, we have had many forum members that for one reason or another cannot go forward with the confirmation step of the endoscopy with biopsy. Usually it is because they have already been gluten free for a significant period and react so severely to gluten ingestion that they cannot undertake the gluten challenge without endangering their health. But we also have had more than a few who have severe anxiety surrounding the endoscopy itself and cannot bring themselves to go forward with it. May I ask, what was your antibody score or scores, what was the name of the test or tests done and what were the ranges given for normal/negative vs. positive?  What symptoms do you have? What caused you to seek out celiac testing? And to answer your question, many on this forum have had to go forward with the gluten free diet without an official diagnosis for the reasons already stated. You should start seeing symptom improvement within weeks. But realize that achieving a truly free gluten lifestyle is more challenging than most of us realize at the outset. There is a real learning curve involved in order to achieve consistency. That is partly due to the many unexpected places gluten is tucked away in the food supply/supplements/medications and partly because of CC (Cross Contamination) issues. I will offer this primer to get you off to a good start:  
    • Newhere19
      New to all of this

      By Newhere19 · Posted

      I recently had bloodwork done with a GI specialist and was told that I have celiac.. .but they will not confirm the diagnosis without an endoscopy and biopsy. Due to severe trauma I cannot endure the endoscopy and they made it quite clear full sedation is not an option. So now I have to venture forward assuming this is in fact what is causing all of my symptoms. Has anyone else here had the same experience and started the gluten free diet to see if you're really suffering from celiac? If so, how long did you commit before safely saying the results are accurate? My thought was at least three months would be necessary. Much love to everyone ❤️ 
    • trents
      Gluten-Free Foods

      By trents · Posted

×
×
  • Create New...