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Rachel--24

Omg...i Might Be On To Something

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Chlorine Dioxide - I wrote about this earlier this week. It's also called MMS or Miracle Mineral Supplement. I really want someone else to try this stuff. Someone who suffers from Lyme preferably and or serious brain fog from candida. I need to know if my results are pschosymatic.

Ken,

You can read the posts on LymeNET. There are several posts on MMS over there....people sharing their experiences.

I cant provide you a link because this board will not allow it but just go to LymeNET's Flash Discussion and search the "medical questions" forum.

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hello everyone,

The mold problem is getting worse. I am so tired all the time now and it is drivng me crazy. I cant get an contractor here to look at the problem til next wednesday, which seems like forever.

The mold results wont be back for 5-7 more days. I knew i should of rushed them lol.

I just ordered an hair analysis test. I have been debating for months now and finally decided to do it. Im sure I will be posting those results as soon as they are done.

I tried to look for an ND that was close to me, and came up with nothing. Only alternative medicine here is the chiropractor. I think I will make an appt with him, he might know something.

If i dont start feeling better in the house, Hubby wants me to move into an hotel until the mold is cleaned out.

paula

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Ken, I was going to make the same suggesting as Rachel. My LLMD has me on so many herbs/supps, I'm not wanting to try something new right now. I'm glad it's having good results for you.

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Detox Foot Pads - I have used them for several nights now and each morning the pads look the same if not worse. I thought I would start to see them lighten up a bit but I haven't. I will continue to use them for a while to see if this happens. If it does than there might be something to it. The pads could also be contributing to my clarity of mind.

I am going on 2 weeks on the detox foot pads and they are still dark and gooey. I was hoping they would be getting lighter by now.

Im glad u feel clearer in the mind. I think im feeling worse, but im sure it is from the mold in my house.

paula

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I am going on 2 weeks on the detox foot pads and they are still dark and gooey. I was hoping they would be getting lighter by now.

Im glad u feel clearer in the mind. I think im feeling worse, but im sure it is from the mold in my house.

paula

The pads are kind of fun in a way but I didn't believe they were contributing to my (what's the opposite of brain fog?). I think the MMS is helping big time though. I'm going to give the pads a week or so and see if they change but I doubt they will.

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If i dont start feeling better in the house, Hubby wants me to move into an hotel until the mold is cleaned out.

Paula,

I think this is probably the best thing. I know...its not fun....but you'll be better off now and in the long run. You dont want to be around the house while the mold is being dealt with. It could potentially worsen your condition.

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The pads are kind of fun in a way but I didn't believe they were contributing to my (what's the opposite of brain fog?). I think the MMS is helping big time though. I'm going to give the pads a week or so and see if they change but I doubt they will.

They are helping in other aspects tho, just not in the brain fog area lol. My mom is also doing them and she loves them. She has more energy and less pain in her body. They did give me more energy the first few days and i was thinking clearer. But now im back to the brain fog and just all over tired feeling. I am thinking mine can still be dark due to the charcoal, but i could be wrong.

Did you get tingling in your legs the first time you used them. The first night it felt like my legs were on fire and they were tingling. But now they dont do that anymore, tg.

paula

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Heres my update on the detox foot pads:

They're still sitting in the unopened FedEx package. :lol:

I think they'll be there for awhile. ;)

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Ken,

You can read the posts on LymeNET. There are several posts on MMS over there....people sharing their experiences.

I cant provide you a link because this board will not allow it but just go to LymeNET's Flash Discussion and search the "medical questions" forum.

Don't send me back there again :( Those people are crazy.

I couldn't find anyone willing to say much on the subject. Sounds like they've gone through the topic a few times.

I'm sticking with it. I really think there is something to it. I'm a swimmer so I don't find the chlorine smell to be too bad and the taste is fine.

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Paula,

A hotel wouldn't be fun expense wise, but definately worth it health wise. It would be better to be out of there while they are dealing with the mold/cleanup/repair.

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Does anyone know how to copy and paste from a pdf file?? I found some mineral info that sounded pretty interesting, might be helpful, I just don't know how to copy it from the pdf in order to paste it here, other than transcribing the whole thing (which I really didn't want to do)

Carla, does that sheet include a fever?!?!?! I guess I just tend to be a worry wort and don't want you to be sick anymore :lol:

Lisa, fabulous about the C! Sounds like yuou had an awesome day :D

Paula I would have to agree getting away from the mold is the best thing to do, especially during cleanup. I can only imagine how that would be spread all around in the air, recircling :o

Any chance your recent symptoms could be attributed to the detox foot pads? It seems the change in how you felt correlates with you dong themjut a thought.

Also, really check into the company you will have remove the mold, I just saw something not too long ago on Dateline about the scams some companies are running with mold cleanup. Just be aware, and know your facts, and protect your interests!!!!

Ken, glad the MMS and foot pads are helping.

Heres my update on the detox foot pads:

They're still sitting in the unopened FedEx package.

I think they'll be there for awhile.

:lol: Rachel

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Julie,

I had thought about the foot pads could be related to all of this. I was thinking they could be correlated to the rash on my leg and on the creases of my arms. I have had rashes on the creases before, but i thought it was from almonds, well then i got rid of almonds. But the theroy failed cause the rash came back. Then i thought it was avacados, but again that theory failed. So now im back to being lost on the rash on my arms. But now the rash on my legs is really bad.

I thought maybe an Dh outbreak, but havent been glutened. Im thinking maybe from my liver detoxing, but not sure on that either.

Im hoping the hair analysis will shed some light on all this.

I am going to stop the detox foot pads and see if that helps. Plus i dont want to be pulling toxins out prior to doing the hair test. Im wondering if i should stop the charcoal also.

paula

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Don't send me back there again :( Those people are crazy.

I couldn't find anyone willing to say much on the subject. Sounds like they've gone through the topic a few times.

Yeah....thats why I suggested doing a search and reading whats already been posted on the topic of MMS. ;)

They arent always the most accepting of alternative treatments...to say the least. But...there are plenty of people there who have tried this and who have posted about it.

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Carla, does that sheet include a fever?!?!?! I guess I just tend to be a worry wort and don't want you to be sick anymore :lol:

Thanks. :rolleyes: I actually don't know, I'll have to look. BUT fevers were one of my symptoms that indicated I needed to go back on meds .... SO it's a normal symptom for me .... so I don't think they will be concerned.

My temp is normal in the morning, then late morning/early afternoon it goes up. Sometime in the night it goes back down because it's always normal in the morning.

So, no need to worry. I know it's the symptoms flaring due to the new med. :)

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Kassandra,

If you guys can swing it I'd highly recommend a visit to Amy. Believe me, we'd see Dr. E more than once a year if we could afford it. They prefer 2x a year anyway.

I'm going to talk to Dr H about whether he wants me to see Amy or not. I talked to my mom about it and she said it's fine as long as she can help me, and it's not a waste of a trip. I told her I don't think it would be.

I'm totally not excited about figuring out a "piece" of the puzzle, because it's really frustrating for me. It's yet another thing we need to address. I know someone else who has this problem, and she has had to go off all abx. I'm just worried that it's going to take me years to get better!

Why can't I just take the abx, herx, and improve?! Ugh!!!!

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Why can't I just take the abx, herx, and improve?! Ugh!!!!

I understand your frustration. Maybe the abx aren't doing you a lot of good right now. Amy would be able to verify what the other person already told you (if she was correct). Amy's not anti-abx so you would get a valid answer to what your body needs right now for treatment.

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I'm going to talk to Dr H about whether he wants me to see Amy or not. I talked to my mom about it and she said it's fine as long as she can help me, and it's not a waste of a trip. I told her I don't think it would be.

I dont think it would be a wasted trip either. She should be able to give you a better understanding of whats going on with you. Its kind of like getting a "peek" inside. She is very easy to talk to and I'm sure you will feel better about all of it....regardless of what she finds.

I have never felt scared or confused after seeing her.

I'm totally not excited about figuring out a "piece" of the puzzle, because it's really frustrating for me. It's yet another thing we need to address. I know someone else who has this problem, and she has had to go off all abx. I'm just worried that it's going to take me years to get better!

Being on abx doesnt guarantee that you'll herx and get better. Some people are taking abx for years and years and still fighting the infection. I dont know of anyone who just has Lyme....however, I do know of alot of people who *think* they only have Lyme and those are the ones who tend to take much longer to recover.

You're bound to have other things to address along the way...its part of the chronic lyme picture. As you address these things you are building your body back up...so that at some point you wont need abx to treat Lyme...your immune system will do it all on its own.

Dont worry about it taking years to get better. If you address these things you will be saving yourself alot of time. You might be treating various things for awhile...but as long as you're noticing improvement and moving forward you wont be feeling so frusterated. You will get to the point that you're doing more things....like homework, hanging with friends, feeling less tired, feeling more positive, etc. Those days will come....little by little you'll feel more like yourself...and it doesnt have to take years.

You may not need to go off of abx...but if thats whats best for you then it just means that you're not benefiting from them right now. Theres no use in taking something that is not helping or that may be causing more harm than good. Unfortunately, alot of people do suffer from taking the abx.

Because your friend had to go off of abx doesnt necessarily mean that shes taking a step backward...it means that shes taking time to prepare her body so that when she does take the abx she will be making progress that otherwise may not be made. In the short term it seems like a hassle....but in the long run it can be a huge difference in the amount of time it takes to recover.

It really isnt such a bad thing...considering that many people do have these types of issues but arent fortunate enough to have good Dr.'s who can get them through it.

You'll be fine. ;)

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Kassandra, does this mean you can't detox? Or is it something else?

I think that's what it means. I wonder actually if I were to work on detox a lot, if I could get the test strips to change at all? Hmmm.... Maybe I'm just really toxic right now?

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I think that's what it means. I wonder actually if I were to work on detox a lot, if I could get the test strips to change at all? Hmmm.... Maybe I'm just really toxic right now?

I think its more of a metabolic thing. I think pushing your body too hard when things arent quite yet "set up" for that can actually make things worse for you. You will probably need to get some things back into balance so that you can detox more efficiently.

If you have metals then addressing that can go a long way as far as treating the infections. Personally, I dont think you can get the test strips to change by doing extra detox and I think that doing that will probably make you feel worse.

You can do things which will support detox. By finding out where you need support you can help your body to detox much more effectively. If you have high copper you can bring that down. If you are deficient in other minerals you can bring those up. If you cant convert sulfur to sulfate right now it would probably be a good idea to avoid the high sulfur foods. You might notice just in doing that (avoiding sulfur) that you feel better.

You can also do epsom salt baths....which will help support detox....you will be providing your body with the sulfate it needs.

Doing the things which stir up toxins doesnt do alot of good if you arent able to get rid of those toxins. It will just make you feel bad. I wouldnt be too aggressive with detox treatments right now.

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Anyways just writing to tell you all high. Oh and no more constipation. :)

Hi and Yay! :)

If i dont start feeling better in the house, Hubby wants me to move into an hotel until the mold is cleaned out.

You'll have your answer if you feel better while away from the house...not fun though.

I think they'll be there for awhile. ;)

:lol:

Don't send me back there again :( Those people are crazy.

No kidding! I don't go there much anymore.

Does anyone know how to copy and paste from a pdf file?? I found some mineral info that sounded pretty interesting, might be helpful, I just don't know how to copy it from the pdf in order to paste it here, other than transcribing the whole thing (which I really didn't want to do)

Do you have a full version of acrobat, or do you only have the reader? You can try saving the PDF as a .rtf file. If it was scanned from a regular document, that might work. Or, the full version has an OCR feature that will "scan" the text and then allow you to grab it. Or, you can send the file to me and I'll do it. :P

Why can't I just take the abx, herx, and improve?! Ugh!!!!

Being on abx doesnt guarantee that you'll herx and get better. Some people are taking abx for years and years and still fighting the infection. I dont know of anyone who just has Lyme....however, I do know of alot of people who *think* they only have Lyme and those are the ones who tend to take much longer to recover.

Yeah, this is why my doctor doesn't want me on abx yet...my body would not have been able to handle them with the mold and metals issues. I did three years of abx (not for lyme though) from 2002 to 2005 and I just got sicker and sicker, so doubly now my doc doesn't want to go that route until my body is stronger.

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I think that's what it means. I wonder actually if I were to work on detox a lot, if I could get the test strips to change at all? Hmmm.... Maybe I'm just really toxic right now?

I would check for that gene .... you don't know at this point if you have it .... but if you do, you don't want to be taking abx when you need to work on something else that's out of balance.

I think Amy is a good idea. If I had ART anywhere near me, I even would have done it to see what's best. Fortunately, I handle anything my doc throws at me because I don't know anyone to do it. :( I'd really like to streamline what I'm taking in that way.

I have a good feel for what is helping and what isn't, but I'm sure I'm taking more than I need to in supps.

I think Rachel's correct about people only addressing Lyme and nothing else staying on abx indefinitely. The immune system has to be built up to take over the work. Right now I need abx because the bacterial load is too high for my immune system, but it's obvious that my immune system is getting stronger. Eventually the load will get low enough I'll be able to get off abx.

Here is a good power point by Dr. J in SC about what's involved in treating Lyme. http://www.jemsekspecialty.com/files/Excer...osisComplex.ppt

Adam is on a golfing trip with a friend .... his Rolex got stolen last night. I bought it for him years ago ..... I thought he had it insured but he didn't. With medical bills and college bills, it's not something we'll be able to replace .... especially since they cost so much more now. :( He's sad.

I bought mine my first year in college .... they changed what they make the crystal out of a couple years later. The new ones don't scratch .... so I've wanted mine to be stolen for about 20 years now! It almost fell off my wrist in a lake a couple years ago and Adam pointed it out to me .... so I didn't lose it. So, yeah, I've been wearing the same watch since 1982. Strange thing is, about a year ago, I couldn't take the feel of it on my arm .... any jewelry or clothes that weren't loose bothered me. I can wear it now, but I forget to.

His friend had a wad of cash stolen. They're not happy. And it's not a very pretty day to play golf either.

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I agree, that is awful Carla...I'm so sorry!

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