Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Burning Tongue, Mouth Sores

busterb1

Recommended Posts

busterb1 Newbie
busterb1
Posted

This is going to sound so crazy...... About 2 months ago I developed sores on my tongue and the roof of my mouth. Soon after my tongue began to burn (as if scalded with hot water, but all the time). I also have a red strip down the middle of my tongue and the tip of my tongue is all red. My internal med Dr. had no idea what was wrong so she told me to gargle with Maalox and referred me to a dermatologist. In the meantime, I decided to try the gluten free diet just for a few days (my mom has celiac, so I thought I'd give it a whirl). My mouth felt better. I began eating gluten again and three days later I went to the dermatologist.

The dermatologist was fascinated and said he rarely sees this condition. He called it Median Rhomboid Glossitis. The normal "bumps" on your tongue get red and inflamed. He drew blood, tested for Anemia, B12 deficiency, Lupus and Celiac (only because I told him that my Mom had it and I had noticed some improvement). A week went by, still on the gluten and the pain worsened. It got so bad that I couldnt even talk without immense pain.

The Dr.said all the tests were negative. He prescribed some special mouthwash to numb my mouth and told me to wait it out. I started the self-imposed gluten free diet again 3 days ago and my mouth is improving again. I also have more energy. I will give it awhile to see if the tongue clears up (it still looks funny with the red stripe, but doesnt burn and sores are gone).

Is this crazy or what? Anyone else have this? Would being off gluten for 4 days prior to the blood test cause a negative? I just have a gut feeling about this. The Dr's will never believe me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Green12 Enthusiast
Green12
Posted
This is going to sound so crazy...... About 2 months ago I developed sores on my tongue and the roof of my mouth. Soon after my tongue began to burn (as if scalded with hot water, but all the time). I also have a red strip down the middle of my tongue and the tip of my tongue is all red. My internal med Dr. had no idea what was wrong so she told me to gargle with Maalox and referred me to a dermatologist. In the meantime, I decided to try the gluten free diet just for a few days (my mom has celiac, so I thought I'd give it a whirl). My mouth felt better. I began eating gluten again and three days later I went to the dermatologist.

The dermatologist was fascinated and said he rarely sees this condition. He called it Median Rhomboid Glossitis. The normal "bumps" on your tongue get red and inflamed. He drew blood, tested for Anemia, B12 deficiency, Lupus and Celiac (only because I told him that my Mom had it and I had noticed some improvement). A week went by, still on the gluten and the pain worsened. It got so bad that I couldnt even talk without immense pain.

The Dr.said all the tests were negative. He prescribed some special mouthwash to numb my mouth and told me to wait it out. I started the self-imposed gluten free diet again 3 days ago and my mouth is improving again. I also have more energy. I will give it awhile to see if the tongue clears up (it still looks funny with the red stripe, but doesnt burn and sores are gone).

Is this crazy or what? Anyone else have this? Would being off gluten for 4 days prior to the blood test cause a negative? I just have a gut feeling about this. The Dr's will never believe me.

It's not crazy! I am not just sensitive to gluten, I have many food intolerances/allergies and a common symptom I have is sores in the mouth and tongue. For me I find a big difference when I stay away from all processed foods, dairy, sugar, gluten, corn, etc. I don't seem to get the sores in my mouth when I am eating a fresh all whole foods diet free of chemicals, preservatives, and other food additives.

jerseyangel Proficient
jerseyangel
Posted

Wow--that's interesting. I used to get a burning feeling in my mouth--like the whole inside of my mouth was on fire. That has not happened once since I went gluten-free. I do believe it is connected.

TCA Contributor
TCA
Posted

My son had something called a geometric tongue before going gluten free. It just looked like sores all over his tongue. He was too young to complain about it, though. It's clear now that he's gluten-free. That is a symptom I have read about in various places.

  • 2 years later...
AshleyNB001 Newbie
AshleyNB001
Posted

I have the same thing. I have had mouth sores for 10 years and used to go down inside me throat while in my mouth and now they are only on my tongue. I suffered with them for four years then about 6 years ago my asthma/Allergy specialist presribed Paddock 10mg Troche. They helped them. You suck on three tablets a day for a couple of days then they disappear. You must remember though after you have these attacks to change your toothbrush so that it doesn't come back. If you are wondering what they are, they are to treat fungus. Now it probly isn't a fungus but a reaction from the celiac disease. People who have this disease get mouth sores. These pill are a miracle worker and the best part is they have no taste. I have these tablets with me all the time just in case I start to get them. I now only get them every 2-3 months and then I use this treatment and they go away. I have been recently diagnosed with Celiac and my great uncle (who died from not treating his celiac) used this treatment, too. I hope this works because when I was got them I couldn't go to school for 2 weeks at a time. They are a life saver. Make sure they are the tablets because they can come in powder form and the tablets work better. Also they won't have any side effects because they are not absorbed in the blood stream.

Once again the medication is Paddock 10mg---use 3 times daily till it is all cleared up...also when you have these attacks stay away from salty foods, fruit, juice. Altoids and Chloraseptic spray help with itchness and burny feeling. Altoids help with the treatment from the tablets and Choraspetic spray helps keep the tongue numb.

Get some fast...,

Ashley

Open Original Shared Link.

AshleyNB001 Newbie
AshleyNB001
Posted
It's not crazy! I am not just sensitive to gluten, I have many food intolerances/allergies and a common symptom I have is sores in the mouth and tongue. For me I find a big difference when I stay away from all processed foods, dairy, sugar, gluten, corn, etc. I don't seem to get the sores in my mouth when I am eating a fresh all whole foods diet free of chemicals, preservatives, and other food additives.

It can give you a false negative if you went gluten free before you blood tests!

LuvMoosic4life Collaborator
LuvMoosic4life
Posted

OMG! I though this was my own post when I read this!!!!! I had this exact same thing in febuary, soars, followed by a burning tounge, making it hard for me to even talk! I went to the helath center at school and they just told me type II herpes: canker soars...these were not canker soars!!! It would come and go and eventually a friend recommended to try going gluten-free, it worked! I havent been diagnosed though...and I still have occasional redness on my tounge and litte dots that look like soars, but nothing like what i had before.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 years later...
Cnj Newbie
Cnj
Posted

I believe there is absolutely a connection!! I've had the tongue, mouth & throat sores for most of my 38 years of life. A couple of times diagnosed as canker sores or a herpes virus, then fishered tongue, & geographic tongue. I have Crohn's Disease, & after lots of specialists & GI Dr's etc it was told to me that it makes perfect sense....as we now know that celiacs and IBD often go hand in hand, and that they affect your intestinal tract-which starts in the mouth! It also goes to show, if that's what your tongue looks like, imagine what the rest of your body is going thru as a response to what we are consuming!

Chase Corin Newbie
Chase Corin
Posted

OMG this is a wake up for me too, I have had terrible mouth sores for years now, they come and go but they are all over my mouth along my gums, top of mouth under tongue and on tongue.

My doctor keeps giving me antibiotics to swish and spit and it never works I keep telling him, and toothpaste and mouthwash can agrivate it.

I am also B12 insufficient and anemic. My doctor treats every symptom i have as a seperate and exclusive thing but I think he needs to put these things together to come up with a comprehensive diagnosis.

  • 2 weeks later...
AHopewell Newbie
AHopewell
Posted

I first had geographic tongue around age 10. Doc told my mom (who is 100% celiac and in denial)some people just have it and it wasn't a big deal. 25 years later... no more geographic tongue, mouth sores, or burning tongue!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...