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How Old? Celiac For How Long?

How old are you?  

63 members have voted

  1. 1. Age please.

    • under 18
    • 19- 29
    • 30-39

    • Celiac.com Sponsor (A6):
      Celiac.com Sponsor (A6):

      Celiac.com Sponsors (A6-m):

    • 50+
  2. 2. How long since diagnosed?

    • 1 year or less
    • 1 - 2 years
    • 3 - 4 years
    • 5 - 10 years
    • 10+ years

Recommended Posts

I'm 34yrs and was self-diagnosed / went Gluten-Free October 2005.

Diagnosed by my doctor July 2006 (when I finally could partially afford to see him ;) ) who accepted my dietary results and horrible reactions to an abbreviated gluten challenge - self-inflicted -which he promptly told me to stop!

Gluten-free since 10/05 - Positive dietary response with Doctor's validation! - Debilitating migraines, constant dizziness and lightheadedness gone; anxiety & panic attacks, depression, agoraphobia and extreme exhaustion considerably lessoned

Dairy/Casein Intolerant

Soy, Cabbage, Sugar, Peanut, Shellfish, Caffeine, Egg, Potato and Tomato allergies / intolerances

Sporadic reactions to: Poultry

Avoiding all preservatives and additives

Also Multiple Chemical/Environmental Sensitivities

Mitral Valve Prolapse

Pulmonary Embolism - 1999

Dance, when you're broken open.

Dance, if you've torn the bandage off.

Dance in the middle of fighting.

Dance in your blood.

Dance, when you are perfectly free.


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i am 13 and have been gluten free for 4 years. its the hardest thing i have EVER done but its better that getting sick all the time.i have had symptoms all my life. :)

Julia We Belive!!!!!!

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I'm 31 and was diagnosed at age 30. You'd think that my doctor would have clued in long ago with my health history. I had tonsils removed at age 2 and was a chronic sick child. Always had a cold, always throwing up, had teeth seeled as a kid b/c of enamel loss. The most disturbing symptom that I get as a result of eating gluten is complete cessation of menses. I have never had monthly cycles and was averaging maybe one period per year. Docs diagnosed me "PCOS" b/c they could not find anything wrong with me. Well....guess what? After a few weeks gluten free I got my period. 5 weeks after that I got a second one.....another 5 weeks and another cycle.....you get the picture. It's very scary to me that something that I was eating could make me stop menstruating...It must have been ravaging my body. I know it was for other reasons too....diarrhea, extreme fatigue, hair loss, knee pain....the list goes on and on.

This question of age is very important. I often wonder how much irreversable damage was done to my body that could have been prevented with an earlier diagnosis. It really is astonishing that wheat/gluten makes me stop getting my period and I wonder what else it was doing to my body that I don't know about. Oh....eating gluten also raises my prolactin and white blood cell count.

Diagnosed by my doctor on the basis of symptoms only (May 2005). My symptoms include:

-amenorhea (all my life)

-high prolactin levels

-major bloating ("Are you pregnant?")

-swollen ankles

-possible DH: had the rash on my elbows and scalp (gone now)

-joint pain

-childhood arthritis

-all dairy allergy

-dry skin

-fat in stool sample (no connection was made at the time...I was being tested for something else...When the doctor told me of the fat I replied by saying: "I eat alot of olive oil". DUH!!!!)

-mother is allergic to wheat

-ravenous appetite: I eat for 5 people

-light coloured stool

-pass stool 7 times a day sometimes


-get the hiccups alot (not sure if this is related)

-some reflux

I'm sure there are more that I don't recall at the moment. SIGH.

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Guest Villanfam

I am 29. I have had symptoms all my life, and after my dad bought me the book "Living Gluten-Free for Dummies" I realized for I had a DISEASE.

I was gluten-lite since high school, although I didn't even know what gluten was. I just knew I couldn't eat breads/pasta/pizza w/out throwing up. I had several other symptoms, rashes, and many of which are neurological but I did not relate them to eating gluten.

I diagnosed myself in Sept 2006 because I do not have insurance. I had 2 of my 3 kids tested for it and they both came back positive. I don't think I've cried so much in my life, mostly out of guilt for not knowing they had the same thing I did, and I gave it to them! They had no obvious GI symptoms except they were all very small for their age, my son was constipated, but since I was too I didn't think to much about it. Also he ate cheese like there was no tomorrow! My son had 2 peanut butter and honey sandwiches for lunch at school everyday! No vomiting, no diarrhea. If I even took one bite I would have been hugging the toilet LOL!

So here we are gluten-free since Sept 14th. And for the 1st time in my life I now know what really being "normal" feels like! It had been at least a year since I ate pasta, and when I tried the gluten free kind, I was so scared to even take the 1st bite because it looks exactly like wheat pasta! I did and then ate the whole thing and then just waited to get sick, and then nothing happened! I ate pasta w/out puking YIPPEE!!! I can eat things that I haven't been able to for so long bread/pasta/cookies/cakes/donuts, gluten free of course, but it was very liberating for myself.

For my kiddos though, it's been tough because I worry about them at school. I have been bringing lunch to School everyday and had the Principal designate a specific spot (the end of the table) for us to sit, so I don't have to worry about the other kids crumbs getting on my kids hands and food. It's really exhausting, but they are definitely worth it!!


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I have not been diagnosed, but I've been gluten free since May and I'm planning on doing a gluten challenge :blink:

I'm 18. I was going to do the poll, but there is no slot for 18 year olds....should I say I'm under 18 or that I'm 19? :huh:

age 16

14 years gluten-free (15 in feb.)

Age 19. Diagnosed in Jan of 2004

i am 13 and have been gluten free for 4 years. its the hardest thing i have EVER done but its better that getting sick all the time.i have had symptoms all my life. :)

I was going to ask the same question because I hadn't found anyone in my age range yet :) I'm 17 and I haven't been officially diagnosed, but I have a definite sensitivity (to practically all foods really...LoL..) and have been gluten free for just a month.

I'd love to chat with all of you that I quoted up there ^^^^ about your experiences and what your situations are...it's hard to be a teen/young adult and have to deal with this kind of stuff :(

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55 here. Have had GI problems for couple years. Finally dx 3 weeks ago after all blood, urine, stool tests, then endoscopic duodenal biopsies confirmation.

Definately doing better, but have had a couple small lapses. Am trying to be very, very careful, but keep finding stuff not supposed to be eating. Had a really good salad (almost never even eat salads) yesterday, with outstanding Blue Cheese dressing from Central Market. THEN, afterwards, I find out not to eat that.

Am finding this forum extremely helpful, and greatly appreciate everyone on here. Thank you, thank you. lm

gluten-free 12-18-06

colonoscopy, upper GI
blood, urine, stool tests, prometheus panel
positive endoscopy/positive duodenal biopsies (severe villous atrophy, high intraepithelial lympocytes)
diagnosed celiac disease by Gastroenterologist Andrew R. Gottesman, 12-18-06

"Sobriety sucks. That's why they invented booze in the first place." Denis Leary - Rescue Me

Beware the chocolate of Chiapa

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