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Does Anyone Else Get Dh At Base Of "crack"

capecodda

By capecodda
in Dermatitis Herpetiformis

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capecodda Rookie
capecodda
Posted

I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

  • 4 months later...
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Guest Mattray88
Guest Mattray88
Posted

Yep....pretty much just there, or the ocasional scalp and elbow....

mtdawber Apprentice
mtdawber
Posted
I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

YES! I get them on my stomach, back (all the way down to the base of my spine), hips, back of thighs, feet, arms, elbows, neck and head.... You should get them biopsied by a dermatologist or try a gluten free diet and see if things improve. Something I am noticing and others with more time in will tell you (I'm still new at this) it takes time to clear the DH.

Eliza13 Contributor
Eliza13
Posted

Yeah...get the DH at the base of bum. LOL.

  • 1 month later...
Granny Garbonzo Apprentice
Granny Garbonzo
Posted

yes

I am nearly 50yrs old and only started getting the rash at all in the last couple of years...and wouldn't you know, it is on my bumb at the crack. I don't have any kind of herpes or anything at all, and at first I thought I had touched some poison oak or ivy while peeing in the woods....but then it returned a couple more times, and I realized maybe it was DH, and I asked here on this site, and got lots of responses saying it was the DH. I don't have insurance so rarely go to doctors, but went a couple of times for the rash as I was afraid I had some horrible disease, and no doctor ever said anything about my celiac disease causing the rash.........they KNOW I have celiac disease and STILL didn't make the connection....and since I hadn't had the rash all my life, I didn't think it was DH.....butt (pun intended) here we are with this blasted rash on the behind. More incentive to stay away from any trace of gluten I guess.

casnco Enthusiast
casnco
Posted
I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.

Oh yes! I don't have GH so I was rather concerned when this started! Found an unusual topical cream. Calmoseptic. Your pharmasist must order it. Very weird, it has menthol in it. I was skeptical at first. This isnt an area I want menthol! But it helps stop the itch. Give it a try.

By the way, do have a good remedy for the itch. I know to stay away from gluten. But this is my first sign when I have been CC'd. Bummer! (pun intended)

ItchyAmber Newbie
ItchyAmber
Posted

Got it!!! the bum itch, that is. My husband of two years has picked on me constantly since we got married about my "crabs". :o .. come to find out after 5 years of this weird, horrid, itch from Hell, it's DH! (I also have it on the base of my neck in my hair line, and on my belly)

I am sorry others feel like I do. It makes me crazy sometimes. Still waiting on Celiac panel results... it's been 12 days now since the tests. ARGH.

I'm going to try that cream! I'll try anything.

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wowzer Community Regular
wowzer
Posted

I seem to get it in the crack along with the female area. I have been tested for herpes, etc. Over the years I've had many itchy rashes, even landed in the hospital covered from head to foot and they didn't catch it. I finally googled rashes and the more I looked at the DH rashes, it looked like many of my breakouts. I'm 52 now. I have a little sister that is a celiac, diagnosed at a year old. My blood panel came out negative. I went gluten free the first of this year. I do seem more sensitive to gluten now. My first sign is blisters on my eyelid. Then the female itching. I don't think I'm eating it, I think because my son works in a pizza place, he is leaving me a gluten trail. I have to work on him.

ravenwoodglass Mentor
ravenwoodglass
Posted
I seem to get it in the crack along with the female area. I have been tested for herpes, etc. Over the years I've had many itchy rashes, even landed in the hospital covered from head to foot and they didn't catch it. I finally googled rashes and the more I looked at the DH rashes, it looked like many of my breakouts. I'm 52 now. I have a little sister that is a celiac, diagnosed at a year old. My blood panel came out negative. I went gluten free the first of this year. I do seem more sensitive to gluten now. My first sign is blisters on my eyelid. Then the female itching. I don't think I'm eating it, I think because my son works in a pizza place, he is leaving me a gluten trail. I have to work on him.

I have to say yes to this. I get that type of rash not just when I eat gluten but also when I use most panty liners. Especially the scented kind. I have had DH since childhood and interestingly enough I also have had consistently negative panels. But I was very serious ill before I knew those panels were wrong. I haven't found anything that helps with the rash unfortunately, other than time.

Granny Garbonzo Apprentice
Granny Garbonzo
Posted

Amber

Don't bother with the tests for celiac disease....I think the medical community is making a killing off testing and retesting...

I and my family don't have health insurance, so we "test" ourselves....we just stopped eating gluten for about 3 months, strictly. We know it is celiac disease because, first other members of the family had it and it is genetic, second we stopped having most our symptoms when we stopped eating gluten. Just makes too much sense for most people to grasp that they just don't need to spend a lot of time and money on doctors. Just educate yourself and get control of your own health...the doctors are in it for the money and their by the book following of accepted practices....they are not caring for your health, they are managing symptoms with pharmacuticals or surgery. There are no drugs or chemicals that we need for celiac disease, we just need to stop eating gluten. See a doctor when you really need one.

Sorry, I get frustrated with this doctor business. If I would have listened to doctors they would have removed my gall bladder and said I don't have celiac disease....now 20 years later, I still have my gall bladder and it is working fine, and I just stay away from gluten and all is well....same with my kids and grand kids. So there is the possibility that you may just feel better eating a gluten free diet and you don't really have celiac disease and you may have something else....but what does it hurt to try going gluten free? Easy.

heathen Apprentice
heathen
Posted

yes, i thought it was shingles. it drives me nuts. and it's so unattractive. ironically, it didn't start until after i went gluten-free.

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      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
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