Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Celiac On The Brain?

JenKuz

Recommended Posts

JenKuz Explorer
JenKuz
Posted

I had the funniest dream last night. I dreamt that I got my enterolab test results back, but they were very confusing, and I didn't know what to do, so I posted them right away for ya'll to comment. They were Gliadin 4; ttg 10; and malapsorbtion 449 (!). I'll get the results in another week or two. We'll see if I'm clairvoyant :) but I really hope not, because those results would be hard to interpret.

One thought I had, in my dream, was, Well, I guess it's not celiac, but...I'm sure gonna miss that discussion forum!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Aren't dreams like that crazy? You can't stop thinking about them. I get that sort of thing sometimes.

Let's hope that your results won't be as confusing as that!

rez Apprentice
rez
Posted
Aren't dreams like that crazy? You can't stop thinking about them. I get that sort of thing sometimes.

Let's hope that your results won't be as confusing as that!

I also am waiting for results from Enterolab for my son. We've been trying to get a diagnosis of some sort for six months now. All three of my children got food poisoning in April and haven't been the same since. I feel like my husband and I have been doing all the research and have gotten no help! We also asked them to test for H Pylori because those symptoms seem like they could match as well. It's so frustrating!!! I found out my first doctor ran the wrong test when my son was eating gluten. Now, my new doctor wants to run the right test, but he's already been off gluten for a month. Neither of them know what they're doing!! Why is the entire medical community not knowledgeable on this disease. Do you all think that Enterolab is reliable? Do you think I should discuss results with my medical doctor, or will they not take it seriously? Please reply, I'm going crazy!!

CarlaB Enthusiast
CarlaB
Posted

Medical docs probably won't take them seriously even though Dr. Fine has excellent credentials. I was very happy with their service.

JenKuz Explorer
JenKuz
Posted
  • Author
I also am waiting for results from Enterolab for my son. We've been trying to get a diagnosis of some sort for six months now. All three of my children got food poisoning in April and haven't been the same since. I feel like my husband and I have been doing all the research and have gotten no help! We also asked them to test for H Pylori because those symptoms seem like they could match as well. It's so frustrating!!! I found out my first doctor ran the wrong test when my son was eating gluten. Now, my new doctor wants to run the right test, but he's already been off gluten for a month. Neither of them know what they're doing!! Why is the entire medical community not knowledgeable on this disease. Do you all think that Enterolab is reliable? Do you think I should discuss results with my medical doctor, or will they not take it seriously? Please reply, I'm going crazy!!

I think it depends on the doctor. I was a bit skeptical of the tests, but I asked them some questions and I think they're very reliable. The medical explanation makes sense--IgA is produced in the gut, especially this one, so it makes more sense to test it in the stool than the blood. The assay uses the same substrate as the blood tests use, so it's tried-and-true. There is no known source for cross-reactivity with the substrate in the stool. So, I don't think there's anything to argue with. Plus Dr. Fine's CV is excellent. He also has major NIH grants for testing his method.

If you go to your Dr. with enterolab results, I would make sure to print some of these things and take them along.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442
    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...