Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Really Gluten Free?

rez

By rez
in Coping with Celiac Disease

Recommended Posts

rez Apprentice
rez
Posted

Hello All! One of my son's worst symptoms before we went gluten free were canker/mouth ulcers. There were multiples and they lasted a long time and were really painful. He's been on a gluten free diet since Sept 5th, 2006. The only two lapses we've had which resulted in canker sores involved 3 Muskateers Bars/other treats. He seems to do so well when I keep him on a very strict diet. Meaning mostly whole foods and foods I buy that are labeled gluten/casein free. It's so frustrating!! Does anyone else have issues w/ mainstream candy bars. The other things he ate for Halloween were Reese's PB cups, M&M's, and a massive Hershey Caramello Bar. I found one list that says Caramello Bars are gluten-free and one that says they aren't. It's so hard to keep him away from every treat, but I just feel he doesn't tolerate them well. :( Let me know your thoughts. :) Also, does chocolate bother anyone? I know another of his symptoms was acid reflux, maybe it flares it up???????????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


daffadilly Apprentice
daffadilly
Posted

It could be the dairy in the chocolate, and yes, some people do react to chocolate, also it could be the cross contamination from the bars themselves or the wrappers - did someone with wheaty hands give it to him & then he touches the wrapper & then the candy bar? Ws the candy bowl sitting out on the counter when someone was making a cake or something?? sorry if this seems far fetched to some but I am super sensitive & things like this happen to me. I am not sure about the candy bars that you are asking about. there is a list of candy on the silly yak web site, she posted it on the list serv. Are you a member of list serv? You could also google it, or someone might chime in here that has it.

I know that a milky way bar IS NOT gluten-free

I do know that I react to ALL Brachs candy & they are not co-operative about telling you what is in their candy. I also cannot eat the miniature Hershey bars, no matter what the Hershey people say - they give me a stomach ache & no I am not eating the rice cereal ones either.

It seems to me that the candy company have changed a lot of the chocolate things recently because I can tell by the taste. the Hershey regular candy bar is no where the same as it was 40 years ago, they have changed it several times since then.

For home baking (fudge & cookies) my favorite chocolate so far is Sunspire Organic Chocolate chips, ingredients: Organic sugar, Organic Unsweetened chocolate, organic cocoa butter, soy lecithin, organic vanilla. I had no reactions to this chocolate!!!! I have kept the package because I want to replenish my stash. No DAIRY is a big plus when it comes to chocolate!!!

some people that have children, have a system for replacing all that trick or treat candy, they either buy it from the kid, or trade it for like treats that are gluten-free & not cross contaminated etc. I think they go into details like this on the kids boards like Silly Yak. I think then some of them maybe donate the treats to friends etc. The kid somes out like a hero giving all that candy away!!!

daffadilly Apprentice
daffadilly
Posted

Here is the link, the lady that does this list name is Melonie Katz

Open Original Shared Link

Nooner Newbie
Nooner
Posted

It could be another intolerance, something else in the candy bar. I react to the soy in chocolate, but I don't react if I use cocoa powder in baking.

Just a thought.

~Li

2kids4me Contributor
2kids4me
Posted

ditto to the soy. Soy is used in many candy bars.

You could try plain choc chips or plain choc with no soy and see if he reacts.

As a treat, I make crispy rice squares (gluten free crispy rice cereal, marshmallows, butter) and stick choc chips in before its sets.

HawkFire Explorer
HawkFire
Posted

I believe the soy is the issue. We had to eliminate soy several years ago.

arc Newbie
arc
Posted
I also cannot eat the miniature Hershey bars, no matter what the Hershey people say - they give me a stomach ache & no I am not eating the rice cereal ones either.

Weird. I had the same reaction this weekend when I had a few of those plain minis. I don't think I have a problem with the full size bars or Kisses.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jmengert Enthusiast
jmengert
Posted

On the Delphi forum, several people have said that Hershey's miniatures are not gluten-free because they reuse the paste for all the types, and apparently it has barley in it. However, I have not spoken to anyone myself about this, but I wanted to pass on what I've heard. I avoid the miniatures, just in case.

Gamecreature Rookie
Gamecreature
Posted

I have to agree, there's probably a risk of cross contamination in the miniature product that is not present when the full sized product is manufactured on its own, dedicated line.

mandyann Newbie
mandyann
Posted

I made myself very sick with Hershey's miniatures two weeks ago. Specifically, Reeses and Snickers, both of which are listed as gluten free on the Hershey's website (but not the miniatures). Also, a while back I gave myself an instant migraine from a 3 Muskateer's bar. My doctor feels that there is alot of cross contamination going on at the manufacturing facility.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Weird. I had the same reaction this weekend when I had a few of those plain minis. I don't think I have a problem with the full size bars or Kisses.

Me, too!!! I had Reese's Peanut Buttter Cups, Butterfinger's, and Baby RUths (each on different days), and each time I got cramps and minor D. :(

Gamecreature Rookie
Gamecreature
Posted

I think some research needs to go into the preparation of these fun-sized snacks. Maybe Mark Summers (Unwrapped) will look into it for us. In the meantime:

FUN SIZE IS NOT THE SAME AS FULL SIZE!

rez Apprentice
rez
Posted
  • Author

wow! Thanks for all the great replies and now I'll stop doubting myself!!! Mainstream candy bars may be a good thing to stay away from! :)

Lisa Mentor
Lisa
Posted
I think some research needs to go into the preparation of these fun-sized snacks. Maybe Mark Summers (Unwrapped) will look into it for us. In the meantime:

FUN SIZE IS NOT THE SAME AS FULL SIZE!

Two baby ruths "minis" got me on Sunday. Tummy still talking.

majicbunnies Contributor
majicbunnies
Posted

I had a few bags of fun sized m&ms and felt fine, then a week or two later, I seemed to react to them when I ate more. I had some the other day, and got sick today when all I had was a pb&j. I use my own peanut butter, jelly, and gluten free bread...I hope it's not the m&ms. They're my favorite! I'm assuming it was the m&ms, and it just took until they reached my intestines for them to make me sick.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat. In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue. A wedge...
    2. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired. I haven’t been to an allergist in a few years, I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young...
    3. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply
    4. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways. I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux. Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following...
    5. trents
      - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,124
    • Most Online (within 30 mins)
      10,442
    HelloFlowersGoodbyeFlour
    Newest Member
    HelloFlowersGoodbyeFlour
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...