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Seeing A Specialist Even Though Not Diagnosed

es2443

By es2443
in Doctors

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es2443 Contributor
es2443
Posted

I have had both the Celiac bloodwork panel and genetic test done and the results for both were negative. I decided I am just going to stick to the diet without a dianosis however I want to see a specialist who knows about the diet I am choosing. I am wondering though if I would be able to see a Celiac Specialist if my tests are negative. My mom seems to think I am doing fine myself and that a specialist is a waste of time but I feel like it would be beneficial to me. Does anyone know if I would be able to see a Celiac specialist without having positive results for Celiac?

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happygirl Collaborator
happygirl
Posted

You can see any doctor at any time. However, very few doctors actually *know* about the ins and outs of the diet. A doctor won't be able to test if you are maintaining well on the diet, as, if you don't have Celiac, the blood tests won't show anything. They will likely refer you to a nutrionist/dietician, many of whom do not know about the diet to the extent that is necessary.

In general, most GIs do not really recognize non-Celiac gluten intolerance. They will say, if you don't have Celiac, you don't hae a problem with wheat/gluten.

All this being said, there are doctors/nutrionists out there who recognize gluten intolerance separate from Celiac.

So, it mainly depends on what you think you will get out of an app't.

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