Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

emi_220

Doctor Doesn't Know What He's Talking About?

Recommended Posts

I was diagnosed about 4 months ago with celiac disease and was the first one in my family diagnosed so my parents were told to get tested also, even though they don't appear to have symptoms (although i know it's possible they still have it and are asymptomatic) . Both my mom and dad tried calling their doctors to see if insurance would pay, but they were told insurance wouldn't pay because it was just a "screening" since they didn't have symptoms. Then yesterday, my dad went for a physical and the doctor pretty much refused to test him, saying, and I quote, "if you're asymptomatic, then what difference does it make. There's no reason to stop eating gluten because there's no effect." My dad then inquired about the damage to the intestine and long term effects such as cancers, but the doctor replied that that you wouldn't get the intestinal cancer if you're asymptomatic.

Everything I've read and heard makes me think this doctor is completely mistaken, but I just wanted to make sure before I tell my dad to change doctors! It is so frusterating when people don't understand, especially if they're a doctor and should know about this stuff! So is there any truth to what he said or should we run as fast as possible in the other direction? I really want my family members to get tested but so far there doesn't seem to be much hope.

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Your parents doctor is very ill informed and there are many here that will attest to that.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

Share this post


Link to post
Share on other sites

I agree with MommaGoose, but there's another point to consider.

My parent's doctor wouldn't test them also because they are asymptomatic. After I thought about it for a while I realized that even if they tested positive the likelihood that they'd stick to the gluten-free diet was very minimal anyway, so it was a moot point.

They could always try gluten-free, or even gluten-lite, to see if it changes how they feel. It's possible they have symptoms that they don't realize are symptoms (I went almost my whole life not knowing that your tummy wasn't supposed to hurt after eating).

If the diet convinces them they need to be tested, they could either brow-beat the current doc, or start looking for a new one.


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

Share this post


Link to post
Share on other sites

Look up the NIH consensus paper from the celiac disease conference last year. It specifically notes that damage is still done in asymptomatic celiacs.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

Share this post


Link to post
Share on other sites
I was diagnosed about 4 months ago with celiac disease and was the first one in my family diagnosed so my parents were told to get tested also, even though they don't appear to have symptoms (although i know it's possible they still have it and are asymptomatic) . Both my mom and dad tried calling their doctors to see if insurance would pay, but they were told insurance wouldn't pay because it was just a "screening" since they didn't have symptoms. Then yesterday, my dad went for a physical and the doctor pretty much refused to test him, saying, and I quote, "if you're asymptomatic, then what difference does it make. There's no reason to stop eating gluten because there's no effect." My dad then inquired about the damage to the intestine and long term effects such as cancers, but the doctor replied that that you wouldn't get the intestinal cancer if you're asymptomatic.

Everything I've read and heard makes me think this doctor is completely mistaken, but I just wanted to make sure before I tell my dad to change doctors! It is so frusterating when people don't understand, especially if they're a doctor and should know about this stuff! So is there any truth to what he said or should we run as fast as possible in the other direction? I really want my family members to get tested but so far there doesn't seem to be much hope.

Yes, he is sadly mistaken. Asymptomatic celiac disease accounts for nearly 50% of new diagnoses according to recent studies. What you don't know CAN hurt you. I would suggest finding a celiac-competent doctor through your local celiac societies. First degree relatives have a 10-16% chance of being celiac.....so all your parents,siblings and any children should be tested at some point . It helps if a physician understands the related symptoms and conditions in order to prod the insurance companies to cover the tests.


Iron deficiency without anemia, unexplained weight loss 2/2003

Positive celiac biopsy 4/2003

Autoimmune thyroiditis 8/2005

Gluten Free Since 2003

Share this post


Link to post
Share on other sites
I was diagnosed about 4 months ago with celiac disease and was the first one in my family diagnosed so my parents were told to get tested also, even though they don't appear to have symptoms (although i know it's possible they still have it and are asymptomatic) . Both my mom and dad tried calling their doctors to see if insurance would pay, but they were told insurance wouldn't pay because it was just a "screening" since they didn't have symptoms. Then yesterday, my dad went for a physical and the doctor pretty much refused to test him, saying, and I quote, "if you're asymptomatic, then what difference does it make. There's no reason to stop eating gluten because there's no effect." My dad then inquired about the damage to the intestine and long term effects such as cancers, but the doctor replied that that you wouldn't get the intestinal cancer if you're asymptomatic.

Everything I've read and heard makes me think this doctor is completely mistaken, but I just wanted to make sure before I tell my dad to change doctors! It is so frusterating when people don't understand, especially if they're a doctor and should know about this stuff! So is there any truth to what he said or should we run as fast as possible in the other direction? I really want my family members to get tested but so far there doesn't seem to be much hope.

Share this post


Link to post
Share on other sites

Hi Emi, Im from Australia, i so hear what you're saying ive been gluten free for 2 years and have found it tough to get any DR hear that understands celiac enough to help me in anyway,

its realy hard to help youre own family when no one will listen to you, ive got atxia problems, i believe due to the years of undiagnosed celiacs, and its taken its toll on my mental health.

i'm so at wits end,

the medical proffession is so far behind in this matter here that i'm left to help myself, convincing them to do tests has been a nightmare to say the least, they say stupid stuff like OH but you'd have the runs not constipation if you had celiacs. i'm so distressed at the moment as i now see my daughter and other family members showing health problems, but no one will listen to me due to no confirnation of celiac. so i'm off for an MRI next week, to see what damage has been done to my brain,due to malabsorbtion of B12.

i hope you get some results soon for you and youre family. take care.

jenny

Share this post


Link to post
Share on other sites
I was diagnosed about 4 months ago with celiac disease and was the first one in my family diagnosed so my parents were told to get tested also, even though they don't appear to have symptoms (although i know it's possible they still have it and are asymptomatic) . Both my mom and dad tried calling their doctors to see if insurance would pay, but they were told insurance wouldn't pay because it was just a "screening" since they didn't have symptoms. Then yesterday, my dad went for a physical and the doctor pretty much refused to test him, saying, and I quote, "if you're asymptomatic, then what difference does it make. There's no reason to stop eating gluten because there's no effect." My dad then inquired about the damage to the intestine and long term effects such as cancers, but the doctor replied that that you wouldn't get the intestinal cancer if you're asymptomatic.

Everything I've read and heard makes me think this doctor is completely mistaken, but I just wanted to make sure before I tell my dad to change doctors! It is so frusterating when people don't understand, especially if they're a doctor and should know about this stuff! So is there any truth to what he said or should we run as fast as possible in the other direction? I really want my family members to get tested but so far there doesn't seem to be much hope.

Dear Emi 220,

Tell your parents to ditch Dr. Dipstick. It is for their own good. This disease is serious. Just because the disease is latent and and not showing symptoms does not mean it is not causing damage. These geniuses we call doctors often have a God complex. They need to get with it. If they were the ones at risk, their attitude would change, I assure you.

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

Share this post


Link to post
Share on other sites


  • Celiac.com Sponsors (A19):


  • Member Statistics

    • Total Members
      92,014
    • Most Online
      6,255

    Newest Member
    luvbaggio
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      115,623
    • Total Posts
      969,316

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)


  • Celiac.com Sponsor (A22):


  • Blog Entries