Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Why Doesn't My Doctor Know About This ?


marciab

Recommended Posts

marciab Enthusiast

Dr. Kent Holtorf, MD, is Medical Director of the Holtorf Medical Group Center for Hormone Imbalance, Hypothyroidism, and Fatigue in Torrance, California.* He specializes in treating CFS and FM patients.

This article says that doctors are 10 - 20 years behind on current research ... Marcia

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

The overwhelming majority of physicians rely on what they learned in medical school and on pharmaceutical sales representatives to keep them

kirbymom Newbie

In my area of Canada, the doctors are mainly practicing reactive (not proactive) medicine and using drugs. I did not wait for a diagnosis for my daughter (age 3 in June) because of this. I do not think we have pinpointed all of her intolerances and even though my doctor thinks I am doing a good job and has no qualms about me having her on a gluten free dairy free diet, he is unwilling to have her have further testing. She is almost 3 and 23.5 lbs!!! Hey, this is better than most of her life. At least her height is on the chart now since gluten was taken out of her diet! I am woandering if I have to gluten her to get him to take me seriously - probably would only say - oh look, she has another cold! One of her symptoms is major ruuny nose.

Anyway, he is a family physician teaching new docs! He is so busy, he does not have time to check all of the recent literature so the new docs are seeing all of the old stuff - depressing, isn't it?

  • 2 weeks later...
loco-ladi Contributor

I took all the information I could gather into my "local Dr" and still he insists its acid reflux, there are pills for that ya know ;) I had it all in cronological order from my early years right up to current, still he insists "thats not it"..... I have others in my family with this as well..... everything to me points to this direction and after being 99% gluten free (had a couple of accidental glutenings) for a few months can say I am self diagnosed, I refuse to go back to the way I was before to get a dr to listen to me or to have the appropriate tests done, most of my symptoms have either reduced greatly or in a couple of instances disappeared altogether....

I would wait until your daughter got older and you could explain to her what went on and let her decide, she is after all the one who will suffer if you are correct and take her off the diet, and seriously is it hurting her now to be gluten free? It sounds like she is doing great.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442

    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...