Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Rye Bread


EMMETT

Recommended Posts

EMMETT Newbie

I SEEM TO BE ABLE TO HANDLE RYE BREAD WITHOUT TROUBLE. I DO LOOK FOR RYE FLOUR ON THE BREAD BECAUSE SOME RYE BREADS CONTAIN HI GLUTEN FLOUR. DOES ANYONE HAVE THE EXPERIENCE OF BEING TOLERANT OF CERTAIN FOOODS WHICH WERE THOUGHT TO BE OFF-LIMITS?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

Well, the current wisdom is that rye, and barley contain gluten and are off-limits, as you say.

You do raise a good question. Corn has gluten,too, I believe--at least, I see "corn gluten" on ingredient lists occasionally, yet it does not seem to be a problem for most celiacs, though many have reported developing an intolerance to corn as well as to gluten.

Some celiacs have reported that they had able to tolerate sourdough bread (made with regular flour), and others report that they had not had problems with spelt.

Perhaps these people have a wheat-specific allergy rather than what is believed to be the standard definition of celiac? Or perhaps celiac is different than what we believe?

I have long wondered if the current understanding of celiac is either inaccurate or incomplete or both. There is an awful lot of debate over the difference between gluten intolerance and celiac, but the only officially "acceptable" diagnosis of celiac is via intestinal biopsy--which itself has an extremely high false negative rate unless the villi are uniformly severely damaged.

There are also people with NO visible intestinal damage who have active celiac in the form of DH (though most DH sufferers probably do have some intestinal damage). Genetic testing is not an accurate diagnostic tool, as some people with biopsy-diagnosed celiac do not have any of the genes that mark a predisposition to celiac.

Canadian Karen posted a fascinating article a while back on the DNA of wheat--the wheat grown today, that has been genetically modified over the last couple of hundred years to have more gluten. Here is the article:

THE NATURAL HISTORY OF WHEAT

"The Roman Empire was built on Egyptian wheat, which they called "korn". It was Einkorn, which is the ancestor of modern wheats. (In Latin, this was the earliest form of Triticum, not to be confused with what we call "corn", which is Zea.)

It had two sets of chromosomes like human beings and is described as 2N or diploid. There were also some naturally occurring wheat that had four sets of chromosomes, or 4N or tetraploid. This was the wheat that the Roman Emperor, Eqyptian pharoahs and Christ were eating.

But what is on our table has been selectively bred over time to increase the gluten content for baking or pasta-making. Most are hexaploid, octoploid, double hexaploid, or hexaploid-octoploid hybrids. This means that they have 6, 8, 12, or more sets of chromosomes. Some of this extra DNA is coding for amino acid sequences that human beings cannot break down, including a 33-amino acid sequence named 33-MER. This 33-MER is what is causing the problem for celiac. Our immune systems are attacking this chain as though it were an invader or parasite. But this sequence is also similar to human tissue, and this inflammation can progress into an auto-immune disease. This auto-immune phase is really damaging, and largely incurable. Control is the only treatment, and life-long gluten free diet is the only control."

I wouldn't go out and eat rye bread or sourdough at this point, though, even if you don't have obvious symptoms. Heck, I don't even eat oats, and Scott has an article on celiac.com that says that studies show that oats do NOT do damage to celiacs. I am too afraid of developing still more autoimmune disorders. I will never forget that miserable feeling of being severely allergic to my own skin; I never want to go through that or anything like that again. And I know too many people with fibromyalgia, lupus, MS, RA, and other similarly gluten-induced or gluten-exacerbated illnesses to feel that eating a piece of bread is worth that kind of risk.

But I think we SHOULD be asking questions like this, and keep asking them until (decades later) more studies are done, and we know more than we do today.

bluejeangirl Contributor

Rye flour has gluten but it's low in gluten. Not nearly as much as wheat. Most rye breads in the store will have wheat flour in them to get a better rise. They are selling a sour dough german rye bread in our local health food store right now. It does look good so I bought it for my husband. He loves it. The other thing I know about rye is that its a hearty grain and can grow under the toughest conditions. And for some reason its suseptable to mold.

Gail

kenlove Rising Star

Hi

Is there a book or souce that this is from? Would love to share the info and attribute it

thanks

Ken

--

THE NATURAL HISTORY OF WHEAT

"The Roman Empire was built on Egyptian wheat, which they called "korn". It was Einkorn, which is the ancestor of modern wheats. (In Latin, this was the earliest form of Triticum, not to be confused with what we call "corn", which is Zea.)

It had two sets of chromosomes like human beings and is described as 2N or diploid. There were also some naturally occurring wheat that had four sets of chromosomes, or 4N or tetraploid. This was the wheat that the Roman Emperor, Eqyptian pharoahs and Christ were eating.

But what is on our table has been selectively bred over time to increase the gluten content for baking or pasta-making. Most are hexaploid, octoploid, double hexaploid, or hexaploid-octoploid hybrids. This means that they have 6, 8, 12, or more sets of chromosomes. Some of this extra DNA is coding for amino acid sequences that human beings cannot break down, including a 33-amino acid sequence named 33-MER. This 33-MER is what is causing the problem for celiac. Our immune systems are attacking this chain as though it were an invader or parasite. But this sequence is also similar to human tissue, and this inflammation can progress into an auto-immune disease. This auto-immune phase is really damaging, and largely incurable. Control is the only treatment, and life-long gluten free diet is the only control."

Fiddle-Faddle Community Regular

It was originally in a thread from back in 2005. Here is the link to that thread: Open Original Shared Link

THere is a link listed for www.encyclopedia.family. somethingorother, but I couldn't make that link work.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    2. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    3. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      19

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    5. - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,189
    • Most Online (within 30 mins)
      10,442

    Lhughes327
    Newest Member
    Lhughes327
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
×
×
  • Create New...