Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


Strange Allergist Doc Visit

Rate this topic

Recommended Posts

I went to see the allergist doctor today to hopefully help find out why after going gluten-free I am still experiencing regular symptoms (constipation, D, and constant gas!). My scratch test came back completely clear so he explained to me that I am getting sick due to intolerences....then he proceeded to tell me there is no "test" for intolerences and suggested I see a nutritionist. I explained to him that places such as "enterolab" take samples to test for intolerences but he said its a total waste of money and there is no way to test for them other than maybe journaling food intake on an elimination diet. I REALLY dont have the money to spend on both a nutritionist and getting the lab tests done so I have to choose and was hoping anyone could shed some light with their experiences.

Also after leaving the tests I have had a terrible cough and my chest feels like its closing a little...could be just a coinsident but could this also be a reaction to something I was scratched with?

Please let me know if you can help.


Share this post

Link to post
Share on other sites

Do keep a watch on yourself. there are delayed ige allergies (skin scratch test for those) and not all drs believe in those. I have made a few believers out of drs when my skin tests went hyper 12 hrs after the test and I had to be hauled back in for violent reactions to mushrooms, dust,mold, and pollen. I also have a delayed onset of insect stings and will have an ige response nearly 12 hours after the insect sting.

Now the kids allergist also believes in IGG allergies which cause delayed stomach/intestional issues and his thinking seems to be rather new as well. But as far as I know, there is no realiable test for that and he has always reccomended the elimination diet to see what triggers those.

If you are 100% gluten-free and have checked all the weird hiding places, have you taken out diary? We are discovering that causes similiar signs to gluten. We all had a nice bag of peanut mms yesterday and I have many of the same symptoms as I do with gluten. The kids are having issues with all direct diary as well.

If you keep a food dairy for awhile, the nutrionist will be helpful in finding things in your diet that you may not realize on your own.

I have no experience with Entrolab so can't comment about them.


Share this post

Link to post
Share on other sites

I don't understand why your Dr. said there is no test for intolerance. Of course there is. In 1979 when I developed gas,constipation,severe abdominal pain, diarrhea, I was tested for lactose intolerance. It involved drinking lactose, then monitoring my blood and urine for about 6 hours. It was positive. Now, the test is simplified by simply drinking lactose and blowing into an instrument that "reads" your breath and will tell if you are lactose intolerant.

This past year I developed other severe health problems, and blood tests for celiac were negative. I then had Enterolab tests done, and I have both celiac and gluten genes, ( a double whammy), also casein sensitivity (another double whammy with the lactose intolerance) and a soy sensitivity.The egg test was negative.

I was stunned, never in a million years would I have suspected. When I start to have symptoms again, it takes some detective work to find the offending food. After being sick for 6 weeks recently, I found out that the product Rice Dream has barley in it. The barley was never listed before, apparently it is now being included in the labeling.

I've had no medical insurance, and had to do so much detective work. I'd strongly recommend Enterolab as a starting point for your symptoms.

I think the previous poster, worried to death, has the words diary and dairy mixed up. I think she is recommending removing all dairy products from your diet.

Share this post

Link to post
Share on other sites

I actually think your allergist gave you good advice. Food diaries and elimination diets can actually be more useful and more accurate than "intolerance" testing. (They are less expensive too :) )

Share this post

Link to post
Share on other sites

He actually said the words..."thats all BS" in regards to the stool tests done by enterolab. He is an older man so maybe things have progressed since his days in med school....well Thanks for the advice. I also wanted to know what test did u check off to have the intolerences tested...I have already been diagnosed celiac diseasse and have been on a gluten-free diet for almost 3 years. Ok, thanks!

Share this post

Link to post
Share on other sites

Yep--I agree that your allergist gave you great advice. It was exactly the same thing my allergist told me.

I did an elimination diet (it took a while) and when I finally was able to cut out the foods that caused my symptoms, I began to heal.

Share this post

Link to post
Share on other sites
im willing to do the diet but... what elimination diet did u follow?? they all seem to be different to me...

Did your allergist offer to help you formulate one? That would be the easiest way to go. Mine started mine the day I had the skin tests done. You could also simply eliminate gluten and dairy and eat a whole foods for sure gluten free diet for a while and then, if you need to, do a short gluten challenge to see if you react.

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
What are your iron results?  Was ferritin (iron stores) taken?  Are you actually anemic (low hemoglobin)?  The results you posted are your Immunoglobulins.  Looks like your IgE is high, but then it is Spring and allergy season is supposed to be pretty bad this year (at least in the US).  What riggers your allergies (e.g. cats, horses, mold, etc.)? Have other autoimmune issues been ruled out that could cause tendinitis or vertigo?    
  • Blog Entries

  • ×
    • Create New...