Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Celiacs And Other Food Intolerance


ligeia

Recommended Posts

ligeia Apprentice

How common is it for Celiacs to have other food intolerances? It seems that I've come across it being mentioned a lot on this forum so it got me thinking. I'm vegetarian and so eat quite a bit of dairy and soy on a regular basis. I've been off of gluten for a little while now but still have that sort of bogged down feeling. Maybe it's just residual vitamin deficiencies that I need to take care of. Anyhow, if you're a celiac (living gluten free) are you still more prone to having these food intolerances or is it just coincidental? If anyone has some info on the subject I would greatly appreciate it. :)

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Well, it's hard to tell from a forum. People that are completely "cured" by not eating gluten have no incentive to hang out on a forum (although some do), so there's probably a higher percentage of multiply intolerant people here.

Mother of Jibril Enthusiast
Well, it's hard to tell from a forum. People that are completely "cured" by not eating gluten have no incentive to hang out on a forum (although some do), so there's probably a higher percentage of multiply intolerant people here.

Actually, I've found this forum to be REALLY helpful for lots of things... like learning more about autoimmune disorders and my son's intolerance to casein. :D

I'm not officially diagnosed as a celiac (I was already off gluten when I took the blood test), but I do have one celiac gene and one gluten-sensitive gene. When I took gluten out of my diet it made a BIG difference. I was still having a little abdominal pain and bloating, but it went away when I stopped eating corn. Nice!

If you suspect another food (like dairy) is causing you problems, why not try an elimination diet for a couple of weeks? Also, not that you have to do it... but have you had a genetic test? I didn't think dairy was causing my problems (I went off dairy for my newborn son's benefit), but I found out the DQ7 gene is connected to casein intolerance... I'm planning to stay off it, even when I'm done breastfeeding.

Janessa Rookie

my doctor says you are more prone to developing additional intolerances once you have one, eating the same foods everyday also makes it more likely. I developed several more after celiac and am now on a rotation diet to prevent any more, so far it is working. Soy is one of the worst foods for you, look it up, I am vegetarian too so I know it is hard to cut out soy as well but it could make the difference for you.

kbtoyssni Contributor

I haven't found a lot of information about casein intolerance, but it seems one of the theories is that in people with celiac, the body starts to react to other types of proteins in addition to the gluten protein. This would seem to suggest that those with celiac are much more likely to have casein intolerance.

Jestgar Rising Star
I haven't found a lot of information about casein intolerance, but it seems one of the theories is that in people with celiac, the body starts to react to other types of proteins in addition to the gluten protein. This would seem to suggest that those with celiac are much more likely to have casein intolerance.

I think I would state this more generally.

There are some proteins that are big and hard to digest. Casein is one of them.

If you have some digest problem that allows these big proteins to escape your gut, you can, potentially, start making antibodies directed against them. You are very unlikely to make antibodies against a protein you rarely consume. So if you only occasionally eat dairy (especially during the worst manifestations of your digestive problems) you may not ever develop casein intolerance. If, you eat a lot of soy, you may develop intolerances to soy, if not, then not.

example. I was never a big dairy person, and now I can eat dairy with no problems (although I still don't eat much). Used to eat a lot of soy, now I can't eat any. I inundated my system with soy when it was most vulnerable, and now it rejects soy entirely.

caveat: Everyone is different.

veggienft Rookie

I'm not aware of any research on the phenomenon, but there's certainly a lot of testimony confirming it on these pages. There is a proven mechanism for celiac, and the mechanism makes a model for added food intolerance.

Celiac disease is characterized by intestinal permeability in the presence of ingested gluten. Zonulin creates a sieve effect. The small intestine dumps its contents into the bloodstream. The blood's immune system takes on the roll of food digestion.

The celiac diet stops the zonulin dump, and forces the digestive system to digest food. In any given person, substances the blood tolerates differ widely from substances the gut tolerates. The dietary cure forces the gut to try and digest foods which it did not previously encounter.

..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to lehum's topic in Super Sensitive People
      16

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    2. - trents replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      6

      Celiac flare years after diagnosis

    3. - Russ H replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      6

      Celiac flare years after diagnosis

    4. - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,049
    • Most Online (within 30 mins)
      10,442

    Chris farrugia
    Newest Member
    Chris farrugia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      It sounds like you have an allergy or separate intolerance to quinoa, but there is the slight possibility it was somehow cross-contaminated with wheat, even though it was certified gluten-free.
    • trents
      Unless gluten exposure is happening on a regular basis, it is doubtful that blood antibodies would show up elevated in testing. It takes time for them to build up to detectable levels.
    • Russ H
      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
×
×
  • Create New...