Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Probiotics


kkcarlton

Recommended Posts

kkcarlton Newbie

Hi All,

I found out several months ago that I am gluten intolerant. IN addition, I have been casein, lactose, egg, and soy intolerant for a while. I also have multiple other food sensitivities to the point that I don't know what to eat anymore. I have guy dysbiosis detected by a stool test - I knew without the test but when I saw it I was amazed at how bad things really are.

Anyway, I am looking for a good probiotic. Many people like Primal Defense and although they claim it's gluten free, I found some posts dating back to 2006 indicating that people reacted to it (two ingredients are wheat grass and oat grass). In addition, the bacteria are cultured in dairy and although the end product is supposedly dairy free, in the past I have reacted to probiotics that are cultured in dairy.

So what I am looking for is a good probitiotic that is entirely dairy, wheat, soy, and gluten free. Meaning I want a product where none of those items where used at any time of producing the probiotic. I read that Natren is good as well as Genestra but wanted to see if anybody here has personal experience with them.

And last but not least - is there hope? I am ok avoiding gluten and even dairy, but I react to so many things that eating has become a chore and something I actually dread.

Thanks,

Kristina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sweetfudge Community Regular

I have talked w/ my GI and a lot of people who have said Align is a good one. It does have soy and dairy in it, which was a concern for me, as I've been avoiding both foods for awhile now. But my doctor said that because it's such an insignificant amount, that it shouldn't bother me. I've been on it for 4 days now, and other than the reported bloating/minor gas, I haven't felt bad. Don't know if this helps, since you're wanting something that avoids soy and dairy, but I thought I'd throw it out there anyway.

Maybe you could try it for a few weeks and see how it does with your body. I got 4 weeks worth from my GI for free.

Anyway, good luck either way :) hope you can find something!

AliB Enthusiast

So many people don't get better after dropping gluten that it is pretty obvious something else is going on.

My personal belief is that rogue bacteria due to gut dysbiosis inflames the gut causing damage and leaky gut, which then triggers intolerances. This disrupts the digestion to the point that we can no longer digest certain foods, particularly carbohydrates. The undigested carbs, instead of feeding us, actually feeds and encourages the growth of the rogue bacteria creating a vicious cycle.

Quite a few of us are benefiting from the Specific Carbohydrate Diet as it removes from the diet the long-chain carbohydrates that usually contribute to the problem, thus allowing the gut time to heal.

Have a look at the Specific Carb thread on this section where you will see the success we are having. We know what it is like to not know where to turn for help - we've all been there! It is such a relief to know that there is something you can do to get yourself better and all it takes is a change of diet.

Unfortunately the gluten-free diet often actually makes things worse as gluten-free foods typically are considerably higher in carbs, so whilst there often seems to be an initial improvement, eventually things actually seem to get worse.

You shouldn't find the transition to the diet to difficult if you do decided to give it a go, as it looks as if your restricted diet is already heading in that direction.

The diet does restrict us to the basic food chain with no complex carbs, no sugar, no starches, and definitely nothing processed or antagonistic to the gut. Although the food choice is limited to meat, fish, poultry, veg, fruit, a little honey, nut flours and probiotic yogurt, it is amazing the amount of different recipes that can be conjured up out of those hundreds of different foods.

The diet encourages no dairy, well, at least until some healing has taken place and then only certain types, but it does encourage from the start plenty of home-made 24 hour cultured yogurt. The long fermentation means that not only is the concentration of bacteria higher, but also that most, if not all the lactose is digested by the bacteria into beneficial lactic acid and also the casein is pre-digested into a more digestible form, so rendering it very beneficial.

A survey has been done recently showing that probiotics have a very beneficial effect on gluten-intolerance - it was posted in the Specific Carb thread and you are welcome to come and have a nose and ask any questions on there and if you wish to give the diet a try we are happy to give you all the support you need.

Regards, Ali.

kkcarlton Newbie

Hi,

Thank you for your replies and suggestions...I appreciate the feedback. I took a glance at the SCD and it looks like I am already doing that. I live on protein, veggies, and fat - nothing canned or packaged. Very occasionally I have half of a sour apple and that's about it. Nuts make me go nuts to the point that I can't stop, I have high blood sugar and candida issues so I avoid fruits, I am intolerant to eggs which is very disappointing, and I don't think grains are healthy period whether they have gluten or not. And I cannot tolerate any dairy from cows, sheep, or goats. I can eat small amounts of butter if I take a lactase enzyme and a glutenease with it.

Despite eating this way I have gained weight due to hormonal imbalance and can't seem to get it off. Since I have pretty bad gut dysbiosis I suspect it's part of the reason my body can't heal and I keep reacting to so many foods. Therefore I feel it's time to get back on a probiotic. I started reacting to the one I was taking last year and then couldn't find one that I did not react to. So for a while I did not take any plus I took antibiotics twice last year. It took me a while to figure out I was reacting to the probiotics cultured in dairy. I know they say all the dairy is "eaten up" in the growth process, but some people are so sensitive they still react and I seem to be one of them.

I read that Natren Healthy Trinity is good and it got GREAT reviews on (Company Name Removed - They Spammed This Forum and are Banned) but it's very expensive. Unfortunately my symptoms to taking probiotics are abdominal distention and fluid retention, much like I get to many foods, and much like I get from hormonal imbalance. I am working with a compounding pharmacist to regulate my hormones with bioidentical hormone cream and kind of need to know when the symptoms are from hormones or something else. If I take a probiotic every day that makes me swell up like that I will have no idea what the hormones are doing. And since I have had a hysterectomy and only have one ovary, I don't menstruate anymore and don't have a reference point.

There is also some conflicting information I have been getting regarding reactions to food. One theory is that it's a food intolerance of course and one must avoid that food for 3 to 4 months then slowly re-introduce it. These delayed allergies can be tested with an ELISA food allergy test. I used to get them for several years and then had an eye opening experience. A reputable lab ran the test, I got my results, and a week later they had to rerun the test. Within one week there was a noticeable difference in results. The first week I was reacting to beef at level 4 and the next week I had no reaction to it (according to the test). Or I was low the first week and high the second week on some foods. Since then I have read that this is common and the tests are very inaccurate so now I just go by symptoms which is hard and frustrating unless you eat only one food 3 days in a row before switching to another food.

Another theory is that soy, gluten/wheat, dairy, and eggs are the only TRUE intolerances. If you avoid those your body will heal even if you continue to eat the other healthy foods that you may have a noticeable reaction to.

Then there's the whole adrenal fatigue connection. If you have adrenal fatigue, which I have, your cortisol output is too low and your body will react to foods. Once the adrenals are healed the food intolerances will go away and it's ok to keep eating the foods you are reacting to.

And last but not least I have read that a reaction to a healthy, unadulterated food (that would exclude dairy, soy, grains, and legumes) is a healing reaction, not an allergic reaction and you NEED to keep eating it so your body can heal. Eventually the reaction to it will go away.

Needless to say I don't know what to believe anymore and I am afraid to do something wrong because I don't want to make things worse.

Feedback is appreciated. I know I am frustrated and ready to be healthy. Judging by the people and posts in this forum I am not the only on.

~K

spunky Contributor

In Asian cultures they ferment veggies right and left... In Japan they pickle all sorts of veggies in rice bran, in Korea they make kimchi, there's all sorts of other ways they do that.

You can make sauerkraut or even deli pickles just in salt water; you can ferment just about any veggie you want in salt water...I even know of a guy from Russia who keeps bottles of brine all around with nothing but garlic cloves fermenting in there.

Get some recipes for pickles (the kind that don't require vinegar, just salt water brine), sauerkraut, kimchi, etc., and you can grow your own probiotics without any diary, soy, etc.

I use the book by the guy they call Sandokraut... it's called Wild Fermentation...he shows you the cheap/easy ways to do these ferments without any special equipment or ingredients.

kkcarlton Newbie

Thanks - I ended up ordering Healthy Trinity by Natren. The probiotics in it are cultured on garbanzo beans - no dairy, soy, or gluten used anywhere in the process. It got great reviews. We'll see how it goes.

GlutenWrangler Contributor

Natren Healthy Trinity are by far the best probiotics I have ever used. Good choice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kkcarlton Newbie
Natren Healthy Trinity are by far the best probiotics I have ever used. Good choice!

Hi GlutenWrangler (great name) - thank you for the reply. That makes me feel better about the fact that I got them because they certainly are not cheap. Where do you buy yours? Also, do you or did you have food intolerances and if so, did you see improvements when using Healthy Trinity?

thanks ~ Kristina

  • 2 weeks later...
Guest Jsn7821

Here I am staring down the label of some Probiotics that I just got this evening. "Cultures grown on a milk-based media". I'm a bit hesitant to try them, but out of everything I could find locally they seemed the best (at the time).

I would like to hear your feedback from the Healthy Trinity, Kristina. You sound about as sensitive to stuff as I am. I've never done probiotics before. I'm on the edge about trying goat yogurt instead - my sister swears by the stuff, but I have been staying away from all dairy.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

    2. - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

    3. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

    4. - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Zaalouk moroccan eggplant salad

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,060
    • Most Online (within 30 mins)
      10,442

    Barbjwils
    Newest Member
    Barbjwils
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
    • Aretaeus Cappadocia
      Maybe this is sciatica? When mine acts up a little, I switch my wallet from one back pocket to the other. this isn't a substitute for more serious medical help, but for me it's a bandaid.
    • HectorConvector
      OK so I just learned something completely new about this for the first time in years, that is REALLY WEIRD. One of my nerves that likes to "burn" or whatever is doing it every time I bow my head! I mean it is completely repeatable. Literally every time. Once my head goes beyond a certain angle *boom*. Nerve goes mental (lower right leg pain). What the hell. I've never seen a direct trigger such as this before that I can recall. The pain was the usual type I get from this problem - I suspect somehow the head movement was interrupting descending inhibition processes, causing the pain to leak through somehow.
    • Aretaeus Cappadocia
      I've only made this a couple of times but it's really easy and I love the flavor. If you can, use all of the ingredients to get the full palette of flavors. I use fresh or canned tomatoes and I don't worry about peeling them. If you don't have harissa, there are replacement recipes online. If you don't have the greens, I suggest adding a little chopped baby spinach or celery leaves to add a dash of green color to this red dish. Best eaten in first couple days because flavor tends to fade. Leftovers are still good, but not as vibrant. Ingredients 2 medium eggplants, partially peeled and cut into cubes (original recipe says 1 in, but I prefer 1/2 to 3/4 in) 2 tomatoes, peeled and crushed 4 garlic cloves, finely chopped or minced 1 tablespoon fresh flat-leaf parsley, chopped 1 tablespoon fresh cilantro, chopped ¼ cup extra virgin olive oil 2 tablespoons spicy harissa (I use Mina brand) 1 teaspoon cumin 1 teaspoon paprika ½ teaspoon black pepper 1 tablespoon apple cider vinegar or lemon juice 1 tablespoon tomato paste (optional) Salt to taste Preparation     • Heat olive oil in skillet or pot over medium heat. Add all ingredients and cook for 10 minutes, stirring occasionally. Cover and cook on low heat for an additional 20 minutes, stirring occasionally.       • Serve warm or cold as a side or with bread for dipping. Enjoy! Original recipe is here, if you want to see photos: mina.co/blogs/recipes/zaalouk-moroccan-eggplant-salad  
    • xxnonamexx
      I checked consumer labs that I'm a member of they independently check products for safely and claims the wolfs was rated great and bobs redmill buckwheat cereal. Ultra low gotten no dangerous levels of arsenic heavy metals, mold, yeast etc. plus they mention to refrigerate. I wonder if the raw buckwheat they rinse bc it's not toasted like kasha. Toasted removes the grassy taste I have to try the one you mentioned. I also bought Qia which is a quinoa mixed got great reviews. 
×
×
  • Create New...