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Treen Bean

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Treen Bean Apprentice

I travel with a touring Broadway show for 8 months out of the year. Eating on the road is very difficult and monotonous for me. Last night, our company threw a Christmas party since we weren't able to go home for Christmas. I was so annoyed because I didn't think I would be able to eat anything. Boy was I wrong! Our props head was in charge of the catering and set up for the party. He took me grocery shopping with him to buy all gluten free crackers and cheese, chips and salsa, veggies and hummus, and fruit. Then, when he set everything up, he made sure all of the gluten filled foods were kept far away from my safe foods. He also made sure that only uncontaminated hands touched the gluten free foods. Then, he went one step further, before I arrived he made an announcement to everyone to be extra careful not to cross contaminate anything due to my food allergies. It was a wonderful party! I was able to eat just like everyone else without any fear of becoming sick! I love my cast and crew!


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Lisa Mentor

Sounds like you have wonderful people around you, people who are used to working together to achieve a common goal.

home-based-mom Contributor
I travel with a touring Broadway show for 8 months out of the year. Eating on the road is very difficult and monotonous for me. Last night, our company threw a Christmas party since we weren't able to go home for Christmas. I was so annoyed because I didn't think I would be able to eat anything. Boy was I wrong! Our props head was in charge of the catering and set up for the party. He took me grocery shopping with him to buy all gluten free crackers and cheese, chips and salsa, veggies and hummus, and fruit. Then, when he set everything up, he made sure all of the gluten filled foods were kept far away from my safe foods. He also made sure that only uncontaminated hands touched the gluten free foods. Then, he went one step further, before I arrived he made an announcement to everyone to be extra careful not to cross contaminate anything due to my food allergies. It was a wonderful party! I was able to eat just like everyone else without any fear of becoming sick! I love my cast and crew!

That's really cool! Doesn't it make you feel good when somebody goes out of their way to be nice? :)

YoloGx Rookie

Wow! that truly is wonderful! A good thing to counteract some of the down political news right now ....

Bea

jlinc Rookie

I always get so uncomfortable when people go out of their way to accomodate me, but it sure feels good, doesn't it?! :)

Treen Bean Apprentice

My cast and crew are amazing people! It's wonderful how they are always looking out for me. They are always telling me when they discover/see gluten free foods, etc.... I even get surprise gluten free gifts left on my bus seat (everything from gluten-free cheesecake to gluten-free pretzels)!

JNBunnie1 Community Regular
My cast and crew are amazing people! It's wonderful how they are always looking out for me. They are always telling me when they discover/see gluten free foods, etc.... I even get surprise gluten free gifts left on my bus seat (everything from gluten-free cheesecake to gluten-free pretzels)!

Wow! Those guys are awesome!


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kkkkaty Rookie

It is no small thing to have people around who are so supportive! I have been counting my blessings lately as I realize I have 3 close friends (couples) who cook wonderful meals for me- they will sometimes call several times while they are preparing to cook and ask me if I can eat this or that and what pans should they use etc. My other friends may not go to such lengths but at least they do not try to push food on me or get mad at me if I don't eat a meal. My husband and boys are also wonderful as well- my youngest now automatically reads labels on foods and will announce if I can eat it or not.

Still a little dicey going to Mom's but she tries hard and always has a basket of gluten free products awaiting every time I visit.

It's disheartening to read of how little support some are getting from family and friends. On the other hand it's great to see the support available here.

ang1e0251 Contributor

I'm so happy you are with people that are so caring since you live with them for most of your year. Family members could learn a lesson or two from your crew!

Jenny (AZ via TX) Enthusiast

What a wonderful, loving group of friends you have!

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      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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