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Random Bouts Of Dizziness/loss Of Balance


UnhappyCoeliac

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UnhappyCoeliac Enthusiast

I have still be struggling with the gluten free diet but have been gluten free for the last 3 days. But today I feel TERRRRRRRRIBLE I had a gluten free pizza but after walking home I dizzy when i turn my head quickly as I did to check for cars on my walk home I got a vertigo like feeling. And when i place my feet I feel vulnerable like they wont go where I want them too because I feel dizzy.

In the last year or so I have had two other experiences like this, both are when I have been overtired or up in excess of 28hrs or so.

I have been diagnosed for a 1 year. 22 years old currently and male. I carry some weight to so maybe it could be related to that <_< Anyone else experienced this.

I bought b12 vitamins just because I thought i may help. It comes from nowhere!


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tom Contributor
And when i place my feet I feel vulnerable like they wont go where I want them to . ..

This part sounds like ataxia.

Was the gluten-free pizza at a restaurant? CC might be hard to avoid.

P.S. I see Melbourne right NOW - Rafa vs Roger.

RiceGuy Collaborator

The vitamin B12 is a very good idea. Just make sure it's methylcobalamin, sublingual, and take at least 3mg per day. It may also be advisable to ask a doctor for a shot or two, in order to get your levels up more quickly. The blood test is simple enough, and although it isn't always accurate, in the case of extreme deficiency, I'd hope it would show up.

Other deficiencies should not be overlooked, such as B-complex, vitamin D3, and minerals including potassium and other electrolytes.

As was mentioned, CC could have occurred, but you know your body better than anyone else, and what symptoms to expect. However, it is not uncommon for new symptoms to show up after going gluten-free, when CC occurs.

rinne Apprentice

My symptoms included walking like I was drunk, when I hadn't had a drink in months, and other neuro symptoms from a B12 deficiency. It is very common for Celiacs to be deficient in this and other vitamins, Vitamin D too.

It is well worth the effort to have your doctor do the blood work to check your vitamin and mineral levels.

Of course, if you had the gluten free pizza out somewhere there is always the chance of cross contamination. :(

I hope you feel better soon. :)

UnhappyCoeliac Enthusiast

What is CC guys?

I hadn't taken my vitamins for 3 days and now I have taken them again

I take daily most of the time when I am not lazy: d, multi, b12, fish oil

Yes Rafa V Roger was just one... I and most other Australians really like Roger Federer it was so sad to see him overcome with grief from his loss, bu Nadal is a terrific champ.

I took my vitamins and the dizziness has actually gone away. Do vitamin levals drop when your in a state of sleep depravation?

Minimal sleep last night and I am noticing I get these sort of symptoms when I have not slept adequate levals but sometimes when out, or when there is much to do its simply impossible to sleep for too much

Gfresh404 Enthusiast

I was going through the exact same thing and I think I know exactly what you're talking about. It used to happen to me all the time, to the point where I could not do anything. Try removing all dairy from your diet for at least one week. See if you notice a difference.

It might just be a coincidence that you felt like crap after eating pizza (cheese).

It could just be lactose intolerance but in my case, I believe it's a milk allergy, most likely casein - a protein in milk. Let me know if this helps. Good luck

  • 3 weeks later...
Pegleg84 Collaborator

Did you (or anyone else) have dizzy/vertigo spells before they were diagnosed with celiac? In the past couple years I have had a few incidents of mild constant vertigo and a couple serious dizzy spells, though they seem to be caused by sudden elevations of humidity, heat and air pressure. I spent nearly a month feeling dizzy while I was in Japan during the summer (extremely humid), and have had a couple heat-related dizzy spells. I've put it down to dehydration. But could people with undiagnosed celiac be prone to these conditions??? I could be completely off base, but what do you think?


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GFinDC Veteran
Did you (or anyone else) have dizzy/vertigo spells before they were diagnosed with celiac? In the past couple years I have had a few incidents of mild constant vertigo and a couple serious dizzy spells, though they seem to be caused by sudden elevations of humidity, heat and air pressure. I spent nearly a month feeling dizzy while I was in Japan during the summer (extremely humid), and have had a couple heat-related dizzy spells. I've put it down to dehydration. But could people with undiagnosed celiac be prone to these conditions??? I could be completely off base, but what do you think?

I used to get almost constant sinus infections and ear pressure before going gluten-free. I always blamed that on hayfever before but I think gluten was the real cause of both my infections and balance probs. I've had some more recent episodes of starting to pass out that have cleared up. I blame those on my thyroid cyst that I think was compressing my carotid artery. Just a theory. I also had bad balance problems when I was taking HCTZ hypertension meds recently but they cleared up when I stopped that stuff and cut out most salt from my diet.. My blood pressure stayed much lower after cutting out the salt too. Of courser then again I had lots of problems due to something in wine that caused my feet and ankles to swell and other bad things to happen like not being able to sleep. Dairy does the sleep thing to me also.

mushroom Proficient
Did you (or anyone else) have dizzy/vertigo spells before they were diagnosed with celiac? In the past couple years I have had a few incidents of mild constant vertigo and a couple serious dizzy spells, though they seem to be caused by sudden elevations of humidity, heat and air pressure. I spent nearly a month feeling dizzy while I was in Japan during the summer (extremely humid), and have had a couple heat-related dizzy spells. I've put it down to dehydration. But could people with undiagnosed celiac be prone to these conditions??? I could be completely off base, but what do you think?

I had a terrible spell of vertigo for 6 months, which resolved spontaneously. Don't think gluten related. The one symptom that was definitely related was dizziness and fainting from gas and bloating pressure. Haven't had this happen since gluten free. (I have always felt faint when I get too hot; don't relate this to gluten though.) I guess I am just a dizzy kind of person--must be because I am blonde :lol:

  • 10 months later...
bellis Rookie
I have still be struggling with the gluten free diet but have been gluten free for the last 3 days. But today I feel TERRRRRRRRIBLE I had a gluten free pizza but after walking home I dizzy when i turn my head quickly as I did to check for cars on my walk home I got a vertigo like feeling. And when i place my feet I feel vulnerable like they wont go where I want them too because I feel dizzy.

In the last year or so I have had two other experiences like this, both are when I have been overtired or up in excess of 28hrs or so.

I have been diagnosed for a 1 year. 22 years old currently and male. I carry some weight to so maybe it could be related to that <_< Anyone else experienced this.

I bought b12 vitamins just because I thought i may help. It comes from nowhere!

do you still get dizzy? I am gluten-free for about 3 months but get bad gas with dizziness associated. My dizziness and gas go together. . wierd!

haleym Contributor
I have still be struggling with the gluten free diet but have been gluten free for the last 3 days. But today I feel TERRRRRRRRIBLE I had a gluten free pizza but after walking home I dizzy when i turn my head quickly as I did to check for cars on my walk home I got a vertigo like feeling. And when i place my feet I feel vulnerable like they wont go where I want them too because I feel dizzy.

In the last year or so I have had two other experiences like this, both are when I have been overtired or up in excess of 28hrs or so.

I have been diagnosed for a 1 year. 22 years old currently and male. I carry some weight to so maybe it could be related to that <_< Anyone else experienced this.

I bought b12 vitamins just because I thought i may help. It comes from nowhere!

My sister and I get that also, and my sister says that it can be related to hypoglycemia, so you may want to watch that. I am a massage therapist, and I got a horrid dizzy spell in the middle of working with one of my patients... it's a good thing I was sitting on my stool because I really could have fallen on my patient, the room was spinning so much!

Good luck, keep us posted!

Guest dyscelia

I was actually diagnosed with POTS (postural orthostatic tachycardia syndrome) before I ever discovered the celiac. I didnt have the classic pots symptoms, but I was dizzy-vertigo style- very frequently. I'm a nursing student so I did my own research and found a connection between POTS and celiac and asked my doctor to test me for celiac. Turns out the celiac CAUSED the pots!!!!

Do you consistantly follow a gluten free diet? Unfortunately the only way I feel better is by really strict adherance. I had a coffee from starbucks the other day thinking it was harmless, but ended up getting dizzy a little while later. I then called starbucks and found out that the particular coffee I had ordered had gluten in it!!! <_<

I hope you can find some relief from your gluten free diet!! Keep with it, it worked for me!! :)

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
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      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
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      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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