Jump to content



Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.

    💬

    • Sign In
    • Sign Up

Celiac Doctors


debmidge

Recommended Posts

Is there a specialty of doctor other than gastro or GP which everyone goes to, that specializes in Celiac Disease only? A specialist who knows the digestive problems, neurological and osteo problems of a celiac? Like a one-stop doctor you can go to after you get your endoscopy.

Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Probably not..... :(

The specialist I go to is a professor who does specialize in celiac, but he is also an expert for collagenous colitis etc.... He is affiliated with St. Michael's Hospital here in Toronto which is a teaching hospital. That's probably as close to a "celiac specialist" as we will come......

Karen

Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

Link to post
Share on other sites

Here's the link to the Celiac Center at Columbia Presbyterian where Dr. Green is Director. There's some good info there. The Pocket Guide (see Online Store tab) is really helpful, especially if you're a 'newbie'

http://www.celiacdiseasecenter.columbia.edu/CF-HOME.htm

I think Dr. Green can actually be called a celiac doctor if anyone can! :)

Link to post
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-m):




×
×
  • Create New...