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Anyone Purposfully Eat Gluten Before To Test?

loxleynew

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loxleynew Apprentice
loxleynew
Posted

Maybe it's called a gluten challenge but I'm in doubt wether this is my case. I have only had one test confirm I am gluten intolerant the IGG. Everything else 7 tests say normal. I have been on the diet for 2 months now and feel a little bit better, but that could be because of not eating certain other foods. I just recently accidentally ate a whole bag of lay chips that had wheat in it. I felt normal afterwards even days later.

Would you think 2 months off gluten would be long enough to at least purposely test if I have gluten intolerance by eating something with a lot of gluten? Also has anyone ever tried something like this?

I just have doubts now because other things cause IGG levels to increase, not only gluten.

Thanks for reading.

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ravenwoodglass Mentor
ravenwoodglass
Posted

When my allergist had me do a challenge he told me you need to eat the suspect item at least 3 times a day for a week.

CMG Rookie
CMG
Posted

I did a gluten challenge - 4 servings a day for a month after a year gluten-lite. My biopsy was negative (no blood work - I don't know why). But the severity of symptoms, along with DQ2 gene, left me with no doubt that I won't eat gluten again.

2 months off gluten is enough to affect your test results. I think you would have to be back on a full gluten diet for a few months to have any faith in the outcome of the tests.

Good luck!

Billygean Apprentice
Billygean
Posted

I ate a slice of bread a day for four days and only experiences any symptoms on the fourth day. They were severe and lasted 6 weeks and I wish I had never done it (though at least I know now as I too tested negative). I think everyone has a level which they must reach before their body reacts.

loxleynew Apprentice
loxleynew
Posted
  • Author
I ate a slice of bread a day for four days and only experiences any symptoms on the fourth day. They were severe and lasted 6 weeks and I wish I had never done it (though at least I know now as I too tested negative). I think everyone has a level which they must reach before their body reacts.

How long were you gluten free before doing this test?

ravenwoodglass Mentor
ravenwoodglass
Posted

I challenged twice. Once after I had been gluten, and just about everything else, free for a month and a half on a doctor prescribed elimination diet. I reacted on day three after adding back in cream of wheat and triscuits for the week I had to add wheat in 3 times a day. After my strong reaction I called the allergist, as i had been instructed to do and asked him if I should continue for the rest of the week. His reply was an empathic NO. He referred me to a GI and I saw the GI after continueing the restricted diet for another month. He got me scheduled for a biopsy the next week. His ordered 3 day challenge for the biopsy made me so ill that I couldn't get off the floor the day of the biopsy.

Mtndog Collaborator
Mtndog
Posted
Maybe it's called a gluten challenge but I'm in doubt wether this is my case. I have only had one test confirm I am gluten intolerant the IGG. Everything else 7 tests say normal. I have been on the diet for 2 months now and feel a little bit better, but that could be because of not eating certain other foods. I just recently accidentally ate a whole bag of lay chips that had wheat in it. I felt normal afterwards even days later.

Would you think 2 months off gluten would be long enough to at least purposely test if I have gluten intolerance by eating something with a lot of gluten? Also has anyone ever tried something like this?

I just have doubts now because other things cause IGG levels to increase, not only gluten.

Thanks for reading.

Tough question. Are you planning on having a biopsy? Just curious.

I think you would definitely have to eat it more than once to test. I was gluten-free for two months and did a "gluten challenge" for my biopsy. I ate gluten at least twice a day and by day 10 I felt hideous! It took weeks for me to feel better.

You will probably need to reintroduce it for a longer period of time to know.

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jaime1103 Rookie
jaime1103
Posted

I was gluten free for 2 months. My Gi dr wanted me to do a gluten challenge for my endoscopy. I ate gluten for 6 weeks, and then all of the blood work and the biopsy taken. All blood work was positive and my biopsy was positive, as well.

ranger Enthusiast
ranger
Posted
Maybe it's called a gluten challenge but I'm in doubt wether this is my case. I have only had one test confirm I am gluten intolerant the IGG. Everything else 7 tests say normal. I have been on the diet for 2 months now and feel a little bit better, but that could be because of not eating certain other foods. I just recently accidentally ate a whole bag of lay chips that had wheat in it. I felt normal afterwards even days later.

Would you think 2 months off gluten would be long enough to at least purposely test if I have gluten intolerance by eating something with a lot of gluten? Also has anyone ever tried something like this?

I just have doubts now because other things cause IGG levels to increase, not only gluten.

Thanks for reading.

I had to do a gluten challenge for an endo. Doc advised me to eat wheat once a day for three weeks. Endo turned out negative, but I was so sick! Now I know that I should have eaten more gluten for a longer time, but I will never, ever attempt it again! I know my body, and no Doc can tell me that I'm not celiac. And, no way will I go through that again to "prove" it. Do what feels right for you, but if you do chose to do a challenge, make sure you do it right. Good luck. Susan

loxleynew Apprentice
loxleynew
Posted
  • Author
Tough question. Are you planning on having a biopsy? Just curious.

I think you would definitely have to eat it more than once to test. I was gluten-free for two months and did a "gluten challenge" for my biopsy. I ate gluten at least twice a day and by day 10 I felt hideous! It took weeks for me to feel better.

You will probably need to reintroduce it for a longer period of time to know.

I had two biopsies done about 2 and 3 years ago respectively. Both came back negative. Ive only been gluten free though this year starting January, so those times I was eating gluten my whole life.

ranger Enthusiast
ranger
Posted
Maybe it's called a gluten challenge but I'm in doubt wether this is my case. I have only had one test confirm I am gluten intolerant the IGG. Everything else 7 tests say normal. I have been on the diet for 2 months now and feel a little bit better, but that could be because of not eating certain other foods. I just recently accidentally ate a whole bag of lay chips that had wheat in it. I felt normal afterwards even days later.

Would you think 2 months off gluten would be long enough to at least purposely test if I have gluten intolerance by eating something with a lot of gluten? Also has anyone ever tried something like this?

I just have doubts now because other things cause IGG levels to increase, not only gluten.

Thanks for reading.

I had to do a gluten challenge for an endo. Doc advised me to eat wheat once a day for three weeks. Endo turned out negative, but I was so sick! Now I know that I should have eaten more gluten for a longer time, but I will never, ever attempt it again! I know my body, and no Doc can tell me that I'm not celiac. And, no way will I go through that again to "prove" it. Do what feels right for you, but if you do chose to do a challenge, make sure you do it right. Good luck. Susan

Billygean Apprentice
Billygean
Posted
How long were you gluten free before doing this test?

4 -5 months

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    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possibly way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

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      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
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    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
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