Quite Disheartening....

[KaitiUSA]

Michael

These are the common tests for celiac:

-Anti-Gliadin (AGA) IgA

-Anti-Gliadin (AGA) IgG

-Anti-Endomysial (EMA) IgA

-Anti-TissueTransglutaminase (tTG) IgA -This is tTG

-Total Serum IgA

[Canadian Karen]

Okay, here the prescription:

Prednisone 5 mg.

Take 6 tablets at one time once daily for one week.

Next week take 5 tablets for one week.

Next week take 4 tablets for one week.

Next week take 3 tablets for one week.

Next week take 2 tablets for one week.

Next week take 1 tablet for one week.

Then continue with the one budesonide per day after that......

Has anyone else been on this schedule?

Thanks!

Karen

[tarnalberry]

I've been on a taper, but not one that long. It was for asthma, and it started, I think, at 40mg, but tapered off after three weeks, I think. What you described looks fairly standard for a heavy treatment of pred. I hope you take to it better than I did! :-)

[Merika]

Hi,

Wow, that must be really frustrating (((hugs))) If it's not gluten directly in your diet (and believe me, I've missed sources too, or had a product change ingredients...), I think the kids may be a likely culprit.

I can't imagine having four non-gluten-free kids running around the house!!!

My one gluten-free kid - age 3 - is unknown celiac. We have him on a gluten-free diet just to be safe, and will test him when he's older. But ANOTHER reason I have him gluten-free is because I don't want to be preparing non-gluten-free meals. He can eat what I eat. Otherwise, I know I'd be accidentally licking the peanut butter off my fingers (that was touching the bread) and getting wet non-gluten-free kisses, and holding sticky non-gluten-free hands, etc.

I'm sure older kids would rebel against eating gluten-free at home (though it's a thought), but you may want to consider some new rules in your house. Such as - mom doesn't make non-gluten-free foods when she's cooking her own. Kids - Always wash your hands after every meal. No non-gluten-free snacking around the house (have a dedicated snacking area). And so on. You know your family and what would be best.

I think kids of any age can grasp this concept, and be ok with it, and I don't think it's too much to ask of them.

Best of luck with everything,

Merika

[Rikki Tikki]

Karen:

I agree with Laura. I took prednisone for 16 days. It seemed to heal my tummy and gave me a push in the appetite area. I took it just a couple of months ago. I didn't have any long term effects that I could see. Maybe a little more cranky than usual Grrrr

But that too passed!

[Canadian Karen]

Well, let me tell ya, "cranky" is not the word I would use to describe myself the last few days - more along the lines of miserable , angry , argumentative , sullen , in other words, I have been just a joy to be around the last few days!!! Very quick to temper, which is usually not me at all..... Also, one thing that surprises me, the doctor told me that I would probably be full of energy and wanting to clean my house at midnight, etc. etc..... Well, since I have been taking it, I just can't seem to be able to keep my head on straight or my eyes open . I wake up in the morning and it feels like I have had no sleep at all!!! Has anyone else had this reaction?

I was looking forward to getting some spring cleaning done with this anticipated burst of energy!!!

Karen

[Rikki Tikki]

Karen:

I kept waiting for the burst of energy and never got it! I was dissapointed. He also said I would have this wonderful sense of well-being, almost like I was high, never got that either. I was just so hungry.... A friend I work with also had to take it, and she was really, really cranky so I suppose it's normal.

[Rikki Tikki]

Hi Canadian Karen:

I was just wondering how you are feeling?