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Canadian Karen

Quite Disheartening....

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Michael

These are the common tests for celiac:

-Anti-Gliadin (AGA) IgA

-Anti-Gliadin (AGA) IgG

-Anti-Endomysial (EMA) IgA

-Anti-TissueTransglutaminase (tTG) IgA -This is tTG

-Total Serum IgA


Kaiti

Positive bloodwork

Gluten-free since January 2004

Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

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Okay, here the prescription:

Prednisone 5 mg.

Take 6 tablets at one time once daily for one week.

Next week take 5 tablets for one week.

Next week take 4 tablets for one week.

Next week take 3 tablets for one week.

Next week take 2 tablets for one week.

Next week take 1 tablet for one week.

Then continue with the one budesonide per day after that......

Has anyone else been on this schedule?

Thanks!

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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I've been on a taper, but not one that long. It was for asthma, and it started, I think, at 40mg, but tapered off after three weeks, I think. What you described looks fairly standard for a heavy treatment of pred. I hope you take to it better than I did! :-)


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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Hi,

Wow, that must be really frustrating (((hugs))) If it's not gluten directly in your diet (and believe me, I've missed sources too, or had a product change ingredients...), I think the kids may be a likely culprit.

I can't imagine having four non-gluten-free kids running around the house!!!

My one gluten-free kid - age 3 - is unknown celiac. We have him on a gluten-free diet just to be safe, and will test him when he's older. But ANOTHER reason I have him gluten-free is because I don't want to be preparing non-gluten-free meals. He can eat what I eat. Otherwise, I know I'd be accidentally licking the peanut butter off my fingers (that was touching the bread) and getting wet non-gluten-free kisses, and holding sticky non-gluten-free hands, etc.

I'm sure older kids would rebel against eating gluten-free at home (though it's a thought), but you may want to consider some new rules in your house. Such as - mom doesn't make non-gluten-free foods when she's cooking her own. Kids - Always wash your hands after every meal. No non-gluten-free snacking around the house (have a dedicated snacking area). And so on. You know your family and what would be best.

I think kids of any age can grasp this concept, and be ok with it, and I don't think it's too much to ask of them.

Best of luck with everything,

Merika

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Karen:

I agree with Laura. I took prednisone for 16 days. It seemed to heal my tummy and gave me a push in the appetite area. I took it just a couple of months ago. I didn't have any long term effects that I could see. Maybe a little more cranky than usual Grrrr :angry:

But that too passed!


Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

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Well, let me tell ya, "cranky" is not the word I would use to describe myself the last few days - more along the lines of miserable :( , angry :angry: , argumentative :angry: , sullen <_< , in other words, I have been just a joy to be around the last few days!!! Very quick to temper, which is usually not me at all..... :unsure: Also, one thing that surprises me, the doctor told me that I would probably be full of energy and wanting to clean my house at midnight, etc. etc..... Well, since I have been taking it, I just can't seem to be able to keep my head on straight or my eyes open -_-. I wake up in the morning and it feels like I have had no sleep at all!!! Has anyone else had this reaction?

I was looking forward to getting some spring cleaning done with this anticipated burst of energy!!! <_<

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Karen:

I kept waiting for the burst of energy and never got it! I was dissapointed. He also said I would have this wonderful sense of well-being, almost like I was high, never got that either. I was just so hungry.... :blink: A friend I work with also had to take it, and she was really, really cranky so I suppose it's normal. :angry:


Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

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Hi Canadian Karen:

I was just wondering how you are feeling?


Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

Share this post


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