Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Gastro Dr.

sdore

By sdore
in Doctors

Recommended Posts

sdore Enthusiast
sdore
Posted

I was diagnosed by my family doctor. He just told me to go on the gluten-free diet.

Should I seek a GI doctor too or just stick with my family dr.?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Did he do tests on you? If so which ones?

A family doctor can diagnose you.

Link to comment
Share on other sites
sdore Enthusiast
sdore
  • Author
Posted

He did a blood test. See, I had my gall bladder out December 2003. I still remained sick when eating. So finally a year later after complaining he did the following: (This is what I know)

A upper GI

A blood test to see if I have some bad bacteria somewhere

And a blood test to see if I cannot tolerate gluten

I week later he said I cannot tolerate gluten. I asked if I needed a biopsy because what I have read states you should. He said that the blood test I took stated I was (I think) a 17 and the borderline for celiac disease is 11. So I was way over thus not needing a biopsy, but he said he would order one for me if I wanted one.

Does this make any sense? Should I ask what the names of these tests were?

Link to comment
Share on other sites
celiac3270 Collaborator
celiac3270
Posted

The bloodtest would probably be a TtG IgA, but you can ask to make sure. In that case, a 17 would be definite.

Link to comment
Share on other sites
KaitiUSA Enthusiast
KaitiUSA
Posted

Yeah ask to make sure what test it was.

I only had a blood test done because mine was high as well. I did not bother with a biopsy

Link to comment
Share on other sites
  • 2 weeks later...
Rikki Tikki Explorer
Rikki Tikki
Posted

I agree. I don't think the biopsy is necessary. I am not sure why they even do it if the numbers are positive. the only think I can think of is that they make more money? I hope that's not the case, it's just a thought.

Link to comment
Share on other sites
Carriefaith Enthusiast
Carriefaith
Posted
the only think I can think of is that they make more money? I hope that's not the case, it's just a thought.

The gluten-free diet is a big change for some people and I guess the biopsy just confirms the diagnosis so that people don't question their diagnosis. Some people need the intestinal proof!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sdore Enthusiast
sdore
  • Author
Posted

Should I stick with my family Dr. or see a specialist?

Link to comment
Share on other sites
Carriefaith Enthusiast
Carriefaith
Posted

I was referred to a GI specialist by my family doctor. My GI doc did the blood test and the biopsy. To my knowledge, the only thing that the GI specialist can do that the family doctor can't do is a biopsy. If you want a biopsy go to a GI specialist.

Link to comment
Share on other sites
ianm Apprentice
ianm
Posted

It's a good sign that your family doctor even has a clue about celiac and gluten-free diets, most doctors don't. Let us know more about what your doctor has to say and we'll be able to tell if he is any good. We've been to so many and some of us have good ones. Unfortunatley I happened to have found all of the idiot ones. Keep reading this website and you will learn probably more than you ever wanted to know.

Link to comment
Share on other sites
sdore Enthusiast
sdore
  • Author
Posted

My doctor is good (I think).

He more or less told me to stay away from gluten and that possiblty after a year I could have some once in awhile.

He also told me to get the book Glutenfree Living by Betty Haggman.

Link to comment
Share on other sites
Rikki Tikki Explorer
Rikki Tikki
Posted

Oh sidore

You can't eat gluten even after a year. If anything it will make you more sick because your body is not used to it.

I am glad we have each other or statements like that will just make people sick :(

Link to comment
Share on other sites
ianm Apprentice
ianm
Posted

Well thats one wrong answer from your doctor :angry: . If you are gluten intolerant that means NO gluten ever again :( . I'm hoping by once in a while he means an accidental ingestion of gluten which is unfortunatley unavoidable.

Link to comment
Share on other sites
sdore Enthusiast
sdore
  • Author
Posted

me too. I will let you know whan I see him again this month.

Link to comment
Share on other sites
celiac3270 Collaborator
celiac3270
Posted

Oh no! You can never eat gluten again. After one year, your intestines will be healed--and so if you ate gluten, you'd knock yourself back to square one very quickly.

Link to comment
Share on other sites
celiac3270 Collaborator
celiac3270
Posted

Whoops...I opened this thread about 20 min. ago and walked away so I didn't see the other replies come in--looked like I posted a little late ;)

Link to comment
Share on other sites
sdore Enthusiast
sdore
  • Author
Posted

thanks for the support!

I myself don't ever want to eat gluten again due to the fact that I have by accident and have gotten very ill.

Link to comment
Share on other sites
KaitiUSA Enthusiast
KaitiUSA
Posted

Definitely no gluten again. The doctor needs to be informed a bit about celiac disease because your doctor doesn't seem to have a clue. As celiac3270 said, your intestines will be healed but eating gluten will set you back to square one quickly. The more you are off of gluten the more you become sensitive to it as well.Your body will not like it if you try to put gluten back in it.

It's good you are noticing the reaction you have to gluten. Good luck if you have any questions just ask :D

Link to comment
Share on other sites
celiac3270 Collaborator
celiac3270
Posted
thanks for the support!

I myself don't ever want to eat gluten again due to the fact that I have by accident and have gotten very ill.

Good! :) Very few regular drs. will know a lot about celiac disease, so trust your knowledge over what he says.....or verify what he says with a message board or GI...

Link to comment
Share on other sites
  • 2 weeks later...
mommy2james Newbie
mommy2james
Posted

My son who is 9 now was diagnosed in Oct of 2004 by his diabetic doctor and then we had the biopsy per his wishes.Yes James is celiac and hasjuvenile diabetic.We are still learning and we see 3 doc's,his tummy doc his diabetic doc and his pediatrician who has no idea about diabetes nor celiac so I welcome all the other doctors input.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748
    Nicole K
    Newest Member
    Nicole K
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Waiting for urgent referral.

      By trents · Posted

      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name.
    • Scott Adams
      50 YO Male Recently Diagnosed with Celiac Disease

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Waiting for urgent referral.

      By cristiana · Posted

      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      Celiac Dietician

      By Denise I · Posted

      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      14 year old with Celiac & EOE still suffering...

      By Posterboy · Posted

      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...