Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

What Does Having Hl-dq2 + Subset Of That Gene Mean?


Newbyliz

Recommended Posts

Newbyliz Rookie

I am currently scheduled for my second upper endoscopy in a week bcause my gastro. said that I tested positive for HLA-DQ2 plus a subset of that gene and he feels that, that alone puts me in a moderate risk group for developing celiac since my symptoms are pretty bad. I get confused about the genetic testing because I know it doesn't mean you will get celiac it just means you have the genetic predisposition needed to develop it. Does having the HLA-DQ2 plus a subset of it really put me at a higher risk? I do have to say that I have been trying to eat gluten containing foods at each meal for the past week and I am not feeling too well. My stools are really loose and I am really foggy, it seems so strange to be conciously eating something that potentially is harmful to you but I know its necessary for the testing. I am a little skeptical going through another upper endoscopy since the first didn't show anything but I guess I just have to trust my new doc and pray that he sees something that will explain how rotten I feel. I am so tired I want to know why I am deficient in vitamin b12 and d and I want to get to a point where this isn't something that haunts me each day. Even if the endoscopy comes back like the first and just shows inflammation throughout my whole digestive tract I am definitely going to try a gluten free diet. Sorry to be rambling and fussing I just am so thankful that this forum is here and that there are people who understand completely what you are going through in trying to, for once an for all, figure out what is wrong.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



homemaker Enthusiast
I am currently scheduled for my second upper endoscopy in a week bcause my gastro. said that I tested positive for HLA-DQ2 plus a subset of that gene and he feels that, that alone puts me in a moderate risk group for developing celiac since my symptoms are pretty bad. I get confused about the genetic testing because I know it doesn't mean you will get celiac it just means you have the genetic predisposition needed to develop it. Does having the HLA-DQ2 plus a subset of it really put me at a higher risk? I do have to say that I have been trying to eat gluten containing foods at each meal for the past week and I am not feeling too well. My stools are really loose and I am really foggy, it seems so strange to be conciously eating something that potentially is harmful to you but I know its necessary for the testing. I am a little skeptical going through another upper endoscopy since the first didn't show anything but I guess I just have to trust my new doc and pray that he sees something that will explain how rotten I feel. I am so tired I want to know why I am deficient in vitamin b12 and d and I want to get to a point where this isn't something that haunts me each day. Even if the endoscopy comes back like the first and just shows inflammation throughout my whole digestive tract I am definitely going to try a gluten free diet. Sorry to be rambling and fussing I just am so thankful that this forum is here and that there are people who understand completely what you are going through in trying to, for once an for all, figure out what is wrong.

I would like that answer too! I also have HLA-DQ2 plus what I think is a subset of that ...I am so confused

Link to comment
Share on other sites
Newbyliz Rookie

I see that you went gluten free the beginning of October. Do you feel any better? Thank you so much for your reply.

Link to comment
Share on other sites
homemaker Enthusiast
I see that you went gluten free the beginning of October. Do you feel any better? Thank you so much for your reply.

I now have been gluten free for 2 months now...and yes I feel so much better....an almost total turnaround intestinally....

Link to comment
Share on other sites
Newbyliz Rookie

I can't wait to get the second endoscopy over so that I can see if I feel better on the gluten free diet. Did you say or not if you had a positive biopsy or bloodwork? Thanks!

Link to comment
Share on other sites
homemaker Enthusiast
I can't wait to get the second endoscopy over so that I can see if I feel better on the gluten free diet. Did you say or not if you had a positive biopsy or bloodwork? Thanks!

My bloodwork was negative and I did not have an endoscope down...my Doc I went to for the blood test basically told me to go out an celebrate with a bagel...after my blood test came back negative...

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,162
    • Most Online (within 30 mins)
      7,748

    Lenabeana
    Newest Member
    Lenabeana
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • CatherineWang
      I'm pretty sure that in stores, you can find plenty of gluten-free options. But they are usually a bit more expensive.
    • cristiana
      Hello @BunnyBrown and welcome to the forum. I cannot say that I have had the procedure you describe, but recently I did have general surgery and was routinely intubated.  That pain was what troubled me most after the operation, far more than the operation site.  It took a few days to really settle down, I was quite badly bruised. It was taking so long I was a bit concerned so asked the question on another forum. A few patients came back to me and said they had suffered the same.  I imagine in my own case possibly the throat got bashed about a bit,  maybe they had difficult inserting the tube?  I've suffered with a painful throat post-endoscopy too, but never as long as the intubation pain.   I hope you will be feeling better very soon.   PS BTW - love the name!  I saw this today in an Easter display in a shop and your name reminded me of it.🙂  
    • cristiana
      This wonderful, Anne. I think you have a point about why people disappear off forums.  I found the first few years post diagnosis a real struggle and frankly wondered if I would ever feel better (not to dishearten people, but just to say it can take a while longer for some folk to heal).  However, once my antibodies were back within normal range it really has made a big difference to my health.  I've chosen to stick around because I'm a Mod, otherwise I might have been one of those that disappeared, too!      
    • Exchange Students
      Yes absolutely, we work with all public schools and some private schools in all 50 states.
    • Scott Adams
      Just a quick question, can the host live in any state in the USA?
×
×
  • Create New...