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Positive Blood Test, Negative Biopsy?

LoraW76

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LoraW76 Rookie
LoraW76
Posted

I was tested for celiac disease last month via blood test and that came back positive. My endo ordered it since I am a type 1 diabetic and he said that celiac disease is common with diabetics. Last Friday I had the endocopy and biopsy done and when I called the gastroenterologist, the nurse told me that I had no bacteria in my intestines and I was negative for celiac. What?

When I heard from the endo that I was postive, I eliminated gluten from my diet. Did that affect the biospy negatively? I would think that if I truly had celiac disease, the damange was done and 2 weeks worth of not eating gluten couldn't possibly give me a healthy small intestine. I am scheduled in 2 weeks to go back to the gastro to talk about the results. Right now I am confused...

Has this ever happened to anyone?

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mushroom Proficient
mushroom
Posted
When I heard from the endo that I was postive, I eliminated gluten from my diet. Did that affect the biospy negatively? I would think that if I truly had celiac disease, the damange was done and 2 weeks worth of not eating gluten couldn't possibly give me a healthy small intestine. I am scheduled in 2 weeks to go back to the gastro to talk about the results. Right now I am confused...

Yes, it could have affected the results. It is recommended that you continue eating gluten up to the day of the scope. Your doctor should have told you this. Each person heals at a different rate and the damage may have been minimal. However, it is not uncommon to have negative biopsy with positive blood work even if you continue eating gluten.. Sometimes the endo does not biopsy the damaged area(s), sometimes it is caught early before there is any damage to the intestine. Your endo will probably tell you to try the diet anyway. I hope it is working for you and that this is your answer; a positive response to the diet is diagnostic in and of itself.

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